Currently there are over 3,000 identified birth defects - some very rare, some more prevalant. Congenital heart disease (CHD) continues to be the most common birth defect and the #1 cause of birth defect related deaths. While no parent wants to hear that their child has CHD the outlook for most children especially those with ASD’s and VSD’s is excellent and most will go on to lead normal and active lives.
"Not all birth defects are detectable at birth. Some, such as sickle cell anemia (a defect in red blood cells that causes severe anemia and bone pain) might not become apparent until the child is several months old. A malformed kidney might take years to be discovered.
Some birth defects might remain silent for many years. For example, Huntington disease is an inherited condition in which affected persons live normal lives for decades. Then, during middle age, they develop dementia and loss of control of their arms and legs." Source: Birth Defects, Cleveland Clinic.
"Living with a disability for some people can be frustrating both for the person and the family. It can also be a rewarding experience when your child or the person with the disability achieves goals in their life. Whether its their first day at school or using a switch to help them communicate, it can give all involved a great boost and the confidence to continue to strive for more."
Source: True Life Accounts of Living with Cerebral Palsy, Living with Cerebral Palsy.
Birth Defect Research for Children
Birth Defect Research for Children is your resource for free birth defect information, parent networking and birth defect research through the National Birth Defect Registry.
When the tragedy of a birth defect strikes, parents often feel helpless while they and their child are at the mercy of medical staff. If your child was born with a congenital defect, you may have many questions. We can help answer them.
My Child Without Limits
Are you worried that your child isn't developing like other children? Has your child been diagnosed with a developmental delay or disability? You are not alone. We are here to help you find answers to your questions. Other parents and therapists are here with you.
National Birth Defects Prevention Network
As Parents of children with birth defects, the Parent Advisory Group is committed to helping our children and all those with birth defects live a happy and healthy life. We look for increased and continued research and surveillance that will lead to improved care and access to services and improve their quality and quantity of life.
National Birth Defects Prevention Study
One in every 33 babies in the U.S. is born with a birth defect. The Centers for Disease Control and Prevention and birth defects programs across the United States are working together to find the causes of birth defects.
Air Pollution Tied to Birth Defects
Exposure in the first two months of pregnancy to air pollution from traffic sharply increases the risk for birth defects, a new study has found.
Air Pollution, Birth Defects, and the Risk in China (and Beyond)
It turns out that several scientists, both inside and outside China, have been studying that question in recent years–and their answer is yes. That doesn’t mean that every woman giving birth in a polluted environment, or every child born, will experience lasting health problems, but the trend lines across a population are clear.
American Pregnancy Association
The American Pregnancy Association is a 501c(3) non-profit committed to helping each person have a healthy pregnancy and promoting the steps to help have a healthy baby.
The common diseases affecting the public’s health are all too well-known in the 21st century: asthma, autism and learning disabilities, birth defects and reproductive dysfunction, diabetes, Parkinson’s and Alzheimer’s diseases, and several types of cancer. Their connection to pesticide exposure continues to strengthen despite efforts to restrict individual chemical exposure, or mitigate chemical risks, using risk assessment-based policy.
Bloom covers “top of mind” issues for parents of kids with disabilities. These are often unspoken or taboo topics that require specific “how-to” information. BLOOM focuses on issues that are common to parents of children with a variety of physical and developmental disabilities.
About one in every 33 babies is born with a birth defect. Not all birth defects can be prevented. But a woman can take steps to increase her own chance of having a baby with the best health possible.
Cleveland Clinic Children's
A birth defect is a significant abnormality of appearance, structure, or function that is present at birth. Birth defects are common. Two percent to three percent of live-born infants show one or more significant defects at birth. This number increases to approximately five percent by 1 year of age due to the discovery of defects that were not obvious at birth.
Disability through illness or injury is indiscriminate. Becoming disabled is a difficult transition both mentally & physically. We need to find our own way to adapt our new lives so we can embrace what we do have & live our lives to the full.
Florida Birth Defects Registry
The Florida Birth Defects Registry is a statewide, population-based surveillance system that has identified birth defects in children born in Florida since 1999. The FBDR is operated by the Florida Department of Health, Division of Disease Control and Health Protection, Bureau of Epidemiology.
Human Diseases and Conditions
More than 28 million people worldwide live with birth defects, and about 93 percent live in countries with low or middle income.
Like most expectant parents, you probably alternate between fantasies about a healthy baby and worries that your baby will have a health problem. Or perhaps you've been told through prenatal screening that your baby might be born with a birth defect.
Love That Max
A blog about kids with special needs who kick butt.
March of Dimes
As you get older, there’s a greater chance of having a baby with certain chromosomal conditions, like Down syndrome. For example, at age 35, your chances of having a baby with a chromosomal condition are 1 in 192. At age 40, your chances are 1 in 66.
Researchers have identified thousands of different birth defects. Currently, birth defects are the leading cause of death for infants during the first year of life.
Birth defects can vary from mild to severe. Some result from exposures to medicines or chemicals. For example, alcohol abuse can cause fetal alcohol syndrome. Infections during pregnancy can also result in birth defects. For most birth defects, the cause is unknown.
The European surveillance of congenital anomalies shows that, across Europe, just over 2% of babies develop a defect that is likely to affect their ability to survive or function normally
Birth defects are often the result of genetic and environmental factors, but the causes of well over half of all birth defects are currently unknown. Here's what you need to know about the risks, treatment, and management of various birth defects.
Birth defects news, article, videos and updates.
Toxic Future Fathers
Birth defects, childhood cancer, and miscarriages have all been linked to the health of a father's sperm. Here's what dads-to-be need to know about the role they play in their unborn children's health