Sjogren's Syndrome

It is important, especially for those of us who live with chronic illness, to learn and to master our own medical advocacy - Sandy Burkett

Sjogren's Syndrome
Sjogren's Syndrome

image by: Sjogren's Strong

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An Open Letter To Those Without Sjogren’s Syndrome

What I would like you to know is that I have a mostly invisible, chronic illness called Sjogren’s Syndrome. Life as I know it, is unpredictable and changes daily for me. Just because you cannot see those changes or their impact on my daily functioning, does not mean that they are not real.

Most people have never heard of Sjogren’s Syndrome. And for the small number who have, they mistakenly believe that it is only a simple and benign case of dry eyes and dry mouth. In the spirit of informing those who wish to understand…

Please understand that I have limitations. My energy, emotional and pain levels are constantly fluctuating. What you may see when you look…

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Resources

 An Open Letter To Those Without Sjogren’s Syndrome

What I would like you to know is that I have a mostly invisible, chronic illness called Sjogren’s Syndrome. Life as I know it, is unpredictable and changes daily for me. Just because you cannot see those changes or their impact on my daily functioning, does not mean that they are not real.

Sjodry & Parched

My journey with Sjogren's Syndrome.

Sjögren's Foundation

When we were founded in 1983 the mission was simple: help patients cope with their Sjögren's, increase awareness, and support Sjögren's research efforts. Today, our mission has remained the same while we have grown into a multi-faceted organization that has expanded its outreach, increased its funding for research and education, and continued to raise awareness for this common, yet little known disease.

Sjögren's Society of Canada

To provide support and encouragement to all who have Sjögren’s Syndrome, and to provide information and education to patients, the public and the medical community as to the symptoms, condition and research findings.

Sjögren's Syndrome Program

Rheumatologists at the Penn Sjögren's Syndrome Center collaborate closely with specialists in ophthalmology and oral medicine to provide a complete diagnosis and treatment program for patients suffering from Sjögren's.

Sjogrens blog

Hi, thanks for dropping by. I am a female, over 40, living in Australia, who has Sjogren's Syndrome - an annoying, common but little known condition. I hope this blog is useful to you in some way...

SJS World

A worldwide Internet Community created for those who have Sjogren's Syndrome. It is a place for all to meet and share experiences and knowledge with others who live with Sjogren's in order to improve quality of life. The loneliness and isolation that often accompanies living with this *rare* disease need not be.

American College of Rheumatology

In the early 1900s, Swedish physician Henrik Sjögren (SHOW-gren) first described a group of women whose chronic arthritis was accompanied by dry eyes and dry mouth. Today, rheumatologists know more about the syndrome that is named for Sjögren and—most significantly for patients—can offer advice about how to live with it.

Arthritis Foundation

There is no single test to definitively diagnose Sjögren’s syndrome. Because Sjögren’s symptoms mimic those of many other diseases, it can often take years to make a proper determination.

National Institute of Arthritis and Musculoskeletal and Skin Diseases

Through basic research on the immune system, autoimmunity, genetics, and connective tissue diseases, researchers continue to learn more about Sjögren’s syndrome. The hope is that a better understanding of the disease and its causes will lead to better treatments and perhaps even prevention.

Oklahoma Medical Research Foundation

Our team is using powerful, cutting-edge technologies to gain new insight into a variety of autoimmune diseases. The goal of this study is to identify and isolate the genes responsible for Sjögren’s syndrome and to understand how genetic and environmental factors contribute to this disease.

Reasonably Well

Living Well With Sjogren's Syndrome.

Dry.org

Internet resources for Sjogren's Syndrome. Dry mouth. Dry eyes. Dry nose. Dry skin. Dry throat. Fatigue. Sjogren's Syndrome can cause any combination of these, and sometimes much, much more.

MedlinePlus

Researchers believe that Sjögren's syndrome is caused by both genetic and environmental factors. Several genes have been linked to Sjögren's syndrome, and some scientists think that an abnormal immune response to an infection—such as from a virus or bacteria—might trigger the disease.

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