Multiple Myeloma
You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you – Brian Tracy
image by: MAMBO for Myeloma Awareness
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Letters From Cancerland: The Numbers We Count, The Words We Speak
Myeloma is measured by the numbers. Those of us with it are always counting on our fingers, tallying our gains and losses. We know our IgG number. We know our M-spike. We can reel off our free light chain kappa/lambda ratio. Our hemoglobin, our red blood cell count, our creatinine levels, our neutrophil count – we know them all.
Some of us keep detailed spreadsheets, tracking our lab results over long periods of time. Doing this is yet another tool to try to control the uncontrollable. I admit, I used to keep those spreadsheets. With those sheets, I watched my relapse come in slowly like a rising tide. When my oncologist and I agreed to resume treatment, I stopped tracking…
Resources
New research shows 9/11 first responders are twice as likely to develop blood cancer
A team of New York-based researchers have presented new findings showing that firefighters who responded to the chaotic scene of the Sept. 11, 2001 World Trade Center terrorist attack are twice as likely than the average person to suffer from a condition that can lead to multiple myeloma, a type of blood cancer.
She Was Given Three Years To Live. So She Transformed Cancer Research
In 1996, Kathy Giusti, then a 37-year-old pharmaceutical sales exec with a new baby, was told she had a blood cancer called multiple myeloma and three years to live. She refused to act like her life was over. “I decided I was going to live like I was going to live, not like I was going to die," she says.
New Weapons in the Fight Against Multiple Myeloma
Few types of cancer research have witnessed more progress in the past decade than the fight against the blood cancer known as multiple myeloma.
This vaccine just cured a 50-year old woman's cancer
An estimated 11,000 people die from multiple myeloma, a cancer of the white blood cells found in bone marrow, each year in the United States. In a new clinical study researchers cured that cancer in one patient by giving her a mega-dose of measles vaccine. Does this mean they cured cancer? There are many forms of cancer that respond differently to different treatments; this is just one case of one kind of cancer. Even as far as multiple myeloma goes, the treatment is not likely to work in all patients. But this is a promising step forward for myeloma patients, especially those for whom other traditional therapies have failed.
Tom Brokaw's Cancer, Explained
Multiple myeloma occurs when abnormal plasma cells in the bone marrow multiply, eventually collecting in the bone marrow and bone. Since plasma cells are responsible for making proteins called antibodies, which are the body's way of fighting infection, that means an increase in the blood levels of abnormal proteins, according to the Mayo Clinic. As a comparison: In healthy people, plasma cells make up 5 percent of the cells in bone marrow.
Letters From Cancerland: The Numbers We Count, The Words We Speak
Myeloma is measured by the numbers. Those of us with it are always counting on our fingers, tallying our gains and losses. We know our IgG number. We know our M-spike. We can reel off our free light chain kappa/lambda ratio. Our hemoglobin, our red blood cell count, our creatinine levels, our neutrophil count – we know them all.
Myeloma Revealed
Multiple myeloma is the second most common blood cancer, with close to 160,000 new cases diagnosed globally per year. Despite increased availability of novel agents, the disease is characterized by a pattern of recurrent relapses and remains incurable for the majority of patients, leading to approximately 106,000 deaths per year, worldwide.
Beth Morgan Multiple Myeloma Treatment Blog
The website serves to foster community in the form of an online forum where patients and caregivers could learn more about Multiple Myeloma, a plasma cell cancer that resides in the bone marrow.
Ed's Cancer Blog
This blog chronicles my personal journey in my battle to survive Multiple Myeloma. It is cathartic for me and will hopefully keep friends and family up to date on my progress relative to beating the disease.
MAMBO for Myeloma Awareness
Do you know anyone with MULTIPLE MYELOMA? Don’t be surprised if you don’t as it is a RARE, NOT YET CURABLE CANCER of the BONE MARROW PLASMA CELLS.
Margaret's Corner
Living with smoldering myeloma in Tuscany.
Multiple Myeloma Blog
The Killingsworth’s have dedicated their lives to helping other cancer patients and survivors learn to cope with their disease.
Myeloma Crowd
The MYELOMA CROWD is a division of The CrowdCare Foundation, a patient-driven, 501(c)3 non-profit organization that empowers patients with rare diseases at each step of their disease journey – from diagnosis, through education, care and on to a cure.
Myeloma Explained
You’re not alone in this fight. Find resources to help you manage multiple myeloma.
Myeloma Hope
I have been running for eleven years, and I enjoy everything about it. In 2003 I was diagnosed with multiple myeloma, a blood cancer with no cure. In 2008 doctors discovered that the myeloma was attacking my bones, but we are attacking it back, successfully so far. Running is a part of that, as well as a celebration of life. My sweetheart of 50 years and my daughter often run with me. I have a blog for running; one for myeloma; one for building my own computer; and one for everything else. Live one day at a time and make it a masterpiece!
Nick's Myeloma Blog
I created this blog so that I, and others, can track the progress of my Multiple Myeloma and my efforts to combat it. I am blessed to have my family and many good friends to help me defeat this and if you are reading this, you are likely included in that group. Thanks for your support -- with it, I will beat this. So for your edification and perhaps even amusement, read on!
Riding The Wave - Multiple Myeloma
A Caregiver's Inspirational Journey Through Cancer.
The Myeloma Beacon
The Myeloma Beacon is an online service provided by Light Knowledge Resources, an independent Internet publishing company based in Princeton, New Jersey. The Beacon provides objective and unbiased news, information articles, and online forums related to multiple myeloma. Our mission is to be a key Internet resource and online community for multiple myeloma patients, their families, and others interested in multiple myeloma.
International Myeloma Foundation
The IMF is here to help everyone battling multiple myeloma patients, families, friends, caregivers and the medical and scientific communities.
Multiple Myeloma Research Foundation
The MMRF introduces people with multiple myeloma to the answers they seek. We collect, interpret and activate the largest collection of quality information and put it to work for every person with multiple myeloma.
Myeloma Youreloma
The adventures of an ordinary guy making his way through an extraordinary, and often times challenging, world. Please feel free to share your pearls of wisdom with me. Take courage shipmates. Land is in sight!
UAMS Myeloma Center
The UAMS Myeloma Center is the most comprehensive center in the world for research and clinical care related to multiple myeloma and related diseases, such as Castleman Disease and Waldenstrom Macroglobulinemia. Our team of leading scientists and clinicians has pioneered many advances that have become standards of care, leading to improved survival rates. The Myeloma Center is known for its “bench to bedside” approach...
Fred Hutch
Hutchinson Center researchers are pursuing a number of clinical trials aimed at improving survival of multiple myeloma patients. The treatment approaches include bone-marrow and stem-cell transplantation and immunotherapies.
MedicineNet
Multiple myeloma is cancer that begins in plasma cells, a type of white blood cell. To understand multiple myeloma, it is helpful to know about normal blood cells.
MedlinePlus
No one knows the exact causes of multiple myeloma, but it is more common in older people and African-Americans.
National Cancer Institute
Each year, about 15,000 Americans learn they have multiple myeloma. Scientists are studying this disease to find out more about how it develops. And they are looking at better ways to treat it.
Sloan-Kettering
If you or your loved one has been diagnosed with multiple myeloma or another plasma-cell disease, Memorial Sloan-Kettering Cancer Center is ready to help. Our experienced team of doctors, nurses, and other healthcare professionals is dedicated to providing the highest-quality treatment and supportive care for our patients, as well as access to innovative therapies through our clinical trials.
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