Now, God be praised, that to believing souls gives light in darkness, comfort in despair - William Shakespeare
"Sarcomas affect thousands of people around the world; yet they are rare cancers that receive limited research funding. Sarcomas are not fully understood, and this makes them difficult to treat. Even though the need for research is great, most cancer research funds are used for the more well-known cancers.
The good news is that people affected by sarcoma can make a significant impact by choosing to advocate for sarcoma-specific research! Much of the funding for the Initiative's cutting-edge research program has been raised by inspiring families and communities who want to help." Source: Why Team Sarcoma? The Liddy Shriver Sarcoma Initiative.
Someday the future will be bright for those with sarcoma so that people like Elsa haven't lived in vain.
"Elsa asked me several times to let everyone who reads her blog know that she could not post any longer. For the past few weeks, and months, she used all her strength to continue fighting, to make sure that the disease that ravaged her body would get all the fight-back she could muster.
It was her hope when she started "Living with a Sarcoma" that it would help other people with the same condition to benefit from the things she learned throughout the over a decade long battle with her cancer. Her motivation was always to help others, to encourage, and to hopefully make life better for everyone. All who met her got this message instantly, I think.
In the end, she told me that she did not want anyone to be sad, but to celebrate the time she had on this earth, and it was her hope for those with liposarcoma, that they also fight against their cancer, because Science will one day triumph over it. As she explained to our daughters, she never knew, when our nine year old daughter was born, if she could live long enough to see her walk.
Yet, she did that, and then saw her start kindergarten and to grow into a nine year old who already shows evidence of Elsa's influence in her likings, her personality, her engagement with the world around her. Elsa will not see our oldest daughter start college this coming September, but Elsa's imprint is evident in her, in the deepest core of her humanity. So the eleven years were well worth it, is what I am saying, and is what Elsa believed.
Elsa passed away on this past Sunday morning, March 20th, at home, surrounded by family and friends who comforted her until her last breath.
... don't give up the fight." Elsa never did.
Eric D. Davis Sarcoma Foundation
The Eric D. Davis Sarcoma Foundation is dedicated to finding a cure for sarcoma, a rare cancer, by increasing public awareness, funding sarcoma research, and ensuring improved therapies for patients diagnosed with the disease.
Northwest Sarcoma Foundation
The NW Sarcoma Foundation is a non-profit organization committed to providing education and support to patients and families who are living with this specific cancer.
This journal provides a central forum for the description of advances in diagnosis, assessment and treatment of this rarely seen, but often mismanaged, group of patients. It is of interest to all those working with bone and soft tissue tumours, including medical, surgical and paediatric oncologists, radiotherapists, pathologists and research scientists.
Sarcoma Foundation of America
The mission of the Sarcoma Foundation of America (SFA) is to act as an advocate for increased research to find new and better therapies with which to treat patients with sarcoma. The SFA raises its own funds to provide research grants to sarcoma researchers.
Sarcoma Oncology Center
This booklet was written to provide information about how soft tissue sarcoma is currently being treated at the nation’s leading cancer centers. You can use this information to better understand your type of sarcoma and your treatment options and ultimately, to become an active, informed participant in your care.
This site is a resource for sarcoma patients in the UK. We offer basic information about sarcoma but we do not attempt to duplicate what is being provided well elsewhere - we provide links on the appropriate pages.
Sarcoma Warriors was formed as a way to show support for sarcoma patients during a local charity 5-K run in the summer of 2010. A team of people consisting of patients and their families, physicians, nurses, and medical personnel was assembled to support the mission of the race, but more importantly to have fun.
Soft tissue sarcomas are a heterogeneous group of tumors arising from the supporting extraskeletal mesenchymal tissues of the body–i.e., muscle, fascia, connective tissues, fibrous tissues, and fat. They are rare lesions, constituting less than 1 percent of all cancers.
Stick It To Sarcoma
Stick It To Sarcoma was created to help raise awareness and assist with funding in the fight to find a cure for sarcoma. Less than 1% of cancer funds are used towards sarcoma research.
The Liddy Shriver Sarcoma Initiative
The Liddy Shriver Sarcoma Initiative was founded in 2003. Its mission is to improve the quality of life for people dealing with sarcomas around the world. The Initiative increases public awareness of sarcoma, raises funds to award research grants, and provides support and timely information to sarcoma patients, their families, and medical professionals.
There are over 70 types. They're named after the abnormal cells that make up the sarcoma. The most common type is malignant fibrous histiocytoma (MFH), which is made up of many abnormal spindle-shaped cells.
Liposarcoma is the next most common type of soft tissue sarcoma.
Cancer Research UK
This section of CancerHelp UK is about soft tissue sarcomas. It includes information about causes and symptoms of soft tissue sarcomas, treatment, living with soft tissue sarcomas, and questions for your doctor.
How long a person lives with sarcoma depends on many factors, including the size of the tumor, where it is located, the type, the mitotic rate (how fast the tumor cells are growing and dividing), and whether it is superficial or deep (see Staging). If the sarcoma is diagnosed at an early stage and hasn’t spread from where it started, treatment is very effective and many people can be cured. On the other hand, if the sarcoma has spread to other parts of the body, treatment can usually control the tumor, but it is not often curable.
Scientists do not fully understand why some people develop sarcomas while the vast majority do not. However, by identifying common characteristics in groups with unusually high occurrence rates, researchers have been able to single out some factors that may play a role in causing sarcomas.
Kristine Becker's Sarcoma Story
Since her first diagnosis Kristine endured: 7 rounds of intense chemotherapy, one of which caused severe hallucinations; Heart and vascular surgery to remove several tumors from her Superior Vena Cava and the veins behind her right clavicle; 37 rounds of radiation to her back; Metastatic tumor in her lung and brain; Brain surgery to remove a large tumor from her right frontal lobe; Paralysis on the left side of her body as a result of a blood vessel rupture that was caused by the brain tumor...
Living with a Sarcoma
When I first heard of Sarcomas I was being diagnosed with one. That was seven years ago. At the time I did not associate any malignancy to the word sarcoma. I though that my retroperitoneal liposarcoma was just a harmless mass of fat. Here you'll find out how I deal with my recurrent retroperitoneal liposarcoma.
Macmillan Cancer Support
Soft tissue sarcomas are cancers that develop from cells in the soft, supporting tissues of the body. They can occur in muscle, fat, blood vessels or in any of the other tissues that support, surround and protect the organs of the body.
National Cancer Institute
There are many types of soft tissue sarcoma. The cells of each type of sarcoma look different under a microscope, based on the type of soft tissue in which the cancer began.
Sarcomas of Soft Tissue: The Basics
In this section, you can find information about our expertise in treating patients with soft tissue sarcomas, our services, and our research.
The Kristen Ann Carr Fund
The Kristen Ann Carr Fund provides grants for cancer research and seeks to improve all aspects of cancer patient life with an emphasis on adolescents and young adults.
Soft tissue sarcomas aren't common. Fewer than 10,000 cases are diagnosed annually in the United States. They occur slightly more often in men than in women, and they sometimes occur in children and adolescents.
No one knows exactly what causes these cancers. They are not common, but you have a higher risk if you have been exposed to certain chemicals, had radiation therapy or have certain genetic diseases.
Wikipedia is written collaboratively by volunteers from all around the world.