"We’ve all said it before: “I won’t let IBD define me.” Despite the sincerity of this statement, it is truly difficult to carry out. There are times when we can’t avoid it and have to let others take care of us. It mirrors what Stuart Scott said about his battle with cancer:
Sometimes we have to let the people around us help us in the battle. There is no truer statement. There are times we have to let others battle for us.
But what about the times when we can battle for ourselves? What should we do during those times? Live. We need to live. I don’t mean live with a “make it through the day” sentiment. I mean LIVE: do fun things, hang out with incredible people, and lead a full life.
Source: Brian Greenberg, It’s Not Easy But I Won’t Let My IBD Define Me, Intense Intestines, September 21, 2014.
A to Z of IBD
When I talk about IBD I'm often faced with blank stares and so here is my A-Z guide to Inflammatory Bowel Disease.
Hope for People with IBD and Those at Risk
A cure remains elusive because we don’t know what causes IBD. However, the recent mapping of the human genome (the complete set of a person’s genetic information) has strengthened our grasp of how genes relate to complex immune diseases like IBD.
IBD Is More Than ‘Just a Bathroom Disease’
When people think of Crohn’s disease and ulcerative colitis, they usually think, “it’s just a bathroom disease” or “it’s just a bad stomach ache.” What they don’t consider is the multitude of ways that inflammatory bowel diseases (IBD) impact the 5 million people worldwide living with these diseases.
Inspirational Quotes Inspired by Women with IBD
Welcome to my " The Womans Book of Inspirational Quotes. written by women with Inflammatory Bowel Disease Project! My goal is to put these quotes into a book where the world can see life though our lives living with Crohn's and Colitis Disease!
It’s Not Easy But I Won’t Let My IBD Define Me
We’ve all said it before: “I won’t let IBD define me.” Despite the sincerity of this statement, it is truly difficult to carry out. There are times when we can’t avoid it and have to let others take care of us.
New Therapies for Bowel Diseases
“Ulcerative colitis and Crohn’s are in many ways the poster child for which sequencing the genome is having a tremendous impact,” Dr. Xavier said in an interview.
Equally important to improved treatment has been understanding how environmental factors like diet and antibiotics can disrupt the balance of microbes in the gut. Some bacteria are protective and keep the gut healthy, while others result in chronic inflammation.
5 Hot Topics in Inflammatory Bowel Disease Research
Inflammatory bowel disease research, just like clothes and music, is subject to trends. To give you a good idea about where things are heading at the moment, I’ve composed a list of five hot topics in IBD research. The choices were based mainly on my own research experiences, the research prioritization report published by the Crohn’s and Colitis Foundation of America (CCFA), as well as ideas found on patient forums.
Ali On The Run
I have Crohn’s Disease. I’ve was diagnosed when I was 7, so I’ve pretty much had it my whole life. In 2010 I had several bad flare-ups, but I’m learning more about my body and how to deal every day. Despite having this autoimmune disease, I consider myself to be a very healthy person. I wrote an article for The Frisky about my life with Crohn’s.
Blood, Poop & Tears
Since I started this blog over 2 years ago now my life has become consumed with advocacy and raising awareness. I eat, breathe, and poop it. I am here to help, so please send me your questions, comments, hate mail…whatever. I found when I started this blog there weren’t a lot of other jpouchers out there willing to give the true story about their lives with a jpouch and an ostomy. I however have no problem making a fool of myself on the internet to help others. Call it my gift to the world.
Carrots 'N' Cake
While not an IBD specific blog, follow a girl with Colitis as she finds ways to enjoy the things she loves and still be healthy! - GBM
Colitis and Me
Documenting the human side of Inflammatory Bowel Disease and how it has changed my life.
I started writing Colitis Ninja™ for therapeutic reasons… it wasn’t long before I noticed that the little ninja wasn’t just helping me, but she was helping many others learn how to cope with IBD. She became a symbol of hope and helped put a face on the invisible battle that millions of people fight every day.
Rather than encouraging people to feel sorry for us, Colitis Ninja™ seeks to inspire others.
Crohn's and Colitis Foundation of America
Founded in 1967, the Crohn's and Colitis Foundation of America (CCFA) is a 501(c)(3) non-profit organization dedicated to finding cures for Crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases, collectively referred to as inflammatory bowel diseases (IBD). CCFA funds cutting-edge medical and scientific research, provides supportive and educational programs and aims to raise public awareness about IBD.
Crohn's and Colitis UK
Crohn's and Colitis UK is the working name for the National Association for Colitis and Crohn's Disease (NACC). Founded in 1979, the charity has been providing information and support, funding research and fighting for change by bringing together people of all ages who have been diagnosed with IBD, their families and friends, and the professionals involved in their care.
There are more than 5 million people that have IBD around the world and there is so little awareness of the disease compared to many others. As sufferers, one of the key things we should all be doing is to learn more about the disease.
Crohn's Disease - Leaving the Seat Down
A sometimes frank, sometimes straight up and sometimes humorous discussion about Crohn's and living with Crohn's. I have Crohn's, but I figure that it's just using my body, hitchin' a ride for a while....until something better comes along.
Support group and forum for Crohn's Disease, Ulcerative Colitis, and other IBD.
The official website of Professor John Hunter - Everything you’ll ever need to know about IBD.
Living with a chronic disease like IBD can sometimes be discouraging, and you may feel embarrassed by your disease.
Other times, contacting one of the IBD support groups or organizations listed below may be just what you need. You may take comfort in learning how other people with IBD are managing their condition.
forCrohns mission is to fund research that helps those with the condition today and contributes to finding a cure for Crohn’s disease in the future whilst making more people in the UK aware of the disease and its symptoms.
Great Bowel Movement
The Great Bowel Movement is a social awareness movement with the goals of empowering patients associated with Inflammatory Bowel Disease (IBD) including Crohn’s Disease and Ulcerative Colitis, as well as J-Pouch and Ostomy, to embrace their disease, be proud of their experience, and spread awareness throughout their communities.
IBD Survival Guide
Ryan chronicles his daily life, struggles, and victories with Crohn’s Disease, sharing his experiences to help others survive. His current efforts are to swim across Lake Erie - GBM
Inflamed and Untamed
Hey there! I’m Sara (some people call me Sadie), a classy, sassy, female living life with Crohn’s disease, a j-pouch, intestinal dysmotility, and autoimmune arthritis. It is my goal to show others how to be positive, and to own their disease instead of letting it own them, while educating them about Crohn’s disease and ulcerative colitis (IBD) along the way.
Inflammatory Bowel Diseases
Inflammatory Bowel Diseases® brings the most current information in clinical and basic sciences to physicians caring for patients with inflammatory bowel diseases, and investigators performing research in IBD and related fields.
This is my personal story about my specific Crohn's disease. I talk about poop a lot. I cuss occasionally and all pictures are completely jacked from the internet...probably illegally. I claim no rights to them.
Journal of Crohn's and Colitis
Journal of Crohn's and Colitis is concerned with the dissemination of knowledge on clinical, basic science and innovative methods related to inflammatory bowel diseases.
These are stories of happenings and feelings about the Jpouch surgery, preliminary surgeries, and life without a colon.
Keeping Things Inside is Bad For My Health
You name it, Marisa’s been through it. Diagnosed at a young age with UC, she has been through countless medications and surgeries. Her blog is fairly new, but chock full of lessons she’s learned, written with wisdom beyond her years - GBM
"Imperfection is beauty, madness is genius and it is better to be absolutely ridiculous than absolutely boring."
Those of us with IBD and ostomies certainly aren't perfect, but that is what makes us so special. Stay tuned for inspiration!
Living With Chronic Illness
This is my life's journal. Living with IBD; Crohn's disease and Colitis. I've lived with Crohn's disease since my early teens in the late 70's. Most recently, Colitis. THIS IS MY STORY; as I see it, as I live it. I will be 'gut' honest, forthright, and just me, in my posts. All in hopes of being a small voice, about a big disease. Those who suffer silently with IBD are not alone.
News From the Tail End
Elizabeth was diagnosed at a young age and has dealt with Crohns with positivity and maturity ever since. Now that she’s in college, she’s sharing her story of college life, support groups, and clinical trials - GBM
This blog chronicles my return to the world of outdoor adventures with a permanent ileostomy.
Laura bravely, openly, and honestly about life with Ulcerative Colitis and an ostomy. Her videos include both helpful “how-to” demonstrations, personal experiences, and tips for dealing. Laura’s YouTube popularity even landed her a spot discussing ostomies on Tosh.0! - GBM
SCD Lifestyle is a can-do blog that focuses on the “specific carbohydrate diet” as a healing approach to Crohn’s, colitis and IBDs - Healthline
So Bad Ass
So Bad Ass came into being as a website and blog about Inflammatory Bowel disease and my journey with Ulcerative Colitis and living with a stoma.
The Crohn's Colitis Effect
My name is +Frank Garufi Jr. My son, Domenic Garufi, is 8 years old and has been battling Crohn’s Colitis disease since he was born. My hopes is that this site will bring about awareness for Crohn’s Colitis disease along with giving others a perspective on what Domenic goes through on a daily basis.
The Gutless Cyclist
This project is about the adventures of a guy who loves to bicycle. I also happen to have Crohn's disease, and later complications from it, which required me to have emergency ileostomy surgery in July of 2009. I'm hoping to show that having guts doesn't require guts! And, that life with a chronic illness can still be pretty awesome, despite the challenges. And maybe, just maybe, in the process I'll make some sense of the happenings of my life.
The IBD Immunologist
The goal of The IBD Immunologist is to provide you coverage of the latest IBD research news and with the basic immunology background needed to understand it. The most exciting new research on IBD is focused on the immune system. This site will help you stay abreast of the latest information.
The OCD Diaries
I started this blog in December 2009 during a wave of depression. The goal was to get the sad and angry feelings out of my system. Then I decided to simply come clean with the world about all of my demons, OCD and addictive behavior in particular. Maybe doing so would destroy a few stigmas along the way, I reasoned.
I soon expanded it into a memoir of sorts, including my upbringing in Revere, Mass., my childhood battle with Crohn’s Disease and how those things shaped the manifestation of OCD within me.
Trust Your Gut
In this highly anticipated book, Dr Greg Plotnikoff and Dr Mark Weisberg show how to listen to your gut and to interpret symptoms as important messages that can help correct imbalances.
Uncover Ostomy is an awareness campaign sparking a positive conversation about the ostomy. We share positive stories and thought provoking images–dare we say sexy?–to spark this conversation. We invite you to share your comments and ideas on this website, on Facebook, on Twitter and everywhere that you engage with other people.