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The Future of Testing Your Genetic Future

It's my body and my genes, and I have the right to know what's in them," a woman once told me. She was at risk of breast cancer and had been tested for that gene as part of research study but wanted to know what else was in her DNA. The researcher was planning to conduct other tests but thought it would be too complicated to tell her all of the results and thus decided that he would not do so. Understandably, she was upset. She knew she could get such additional testing done online through direct-to-consumer (DTC) testing companies but was unsure if she should do so -- how accurate the online tests were.

Since ancient times, Oracles, soothsayers, and fortune tellers have been…

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 The Future of Testing Your Genetic Future

Since ancient times, Oracles, soothsayers, and fortune tellers have been offering prophesies about the future. Palm readers now occupy store fronts and many newspapers run horoscopes. This desire for foreknowledge leads many people to read horoscopes. And to seek answers in their genes.

National Human Genome Research Institute

National Human Genome Research Institute began as the National Center for Human Genome Research (NCHGR), which was established in 1989 to carry out the role of the National Institutes of Health (NIH) in the International Human Genome Project (HGP).

Association for Clinical Genomic Science

The Association for Clinical Genomic Science is the new name for the Association for Clinical Genetic Science. It was established in December 2012 from a merger of the Association for Clinical Cytogenetics and the Clinical Molecular Genetics Society with the vision of bringing together scientists working within genetics into one professional association.

Association of Genetic Technologists

Founded in 1975, is a non-profit professional organization established to promote cooperation and exchange of information among those engaged in classical cytogenetics, molecular and biochemical genetics, and to stimulate interest in genetics as a career.

Association of Professors of Human and Medical Genetics

The Association of Professors was incorporated in 1995 to promote human and medical genetics educational programs of human and medical genetics in North American medical and graduate schools.

Clinical Genetics Society

The Clinical Genetics Society (CGS) was set up in 1970 to bring together doctors and other professionals involved in the care of individuals and families with genetic disorders

Genetic Alliance

Genetic Alliance transforms health through genetics. We promote an environment of openness centered on the health of individuals, families, and communities.

Genetic Professional Societies & Organizations

A directory from the Genetics Education Center, University of Kansas Medical Center.

Genetics Society of America

The Genetics Society of America (GSA), founded in 1931, is the professional membership organization for scientific researchers and educators in the field of genetics. Our members work to advance knowledge in the basic mechanisms of inheritance, from the molecular to the population level.

Human Genome Sequencing Center

The BCM-HGSC, founded in 1996, is a world leader in genomics. The fundamental interests of the BCM-HGSC are in advancing biology and genetics by improved genome technologies.

Institute of Genomics and Integrative Biology

Our mission is to translate concepts developed in basic biological research to commercially viable technologies for health care.

The Genetics Society

The Genetics Society organises a wide-ranging programme of scientific meetings covering all areas of genetics. It co-owns and manages some of the leading academic journals in the field, publishes a newsletter twice a year and represents the interests and opinions of the genetics community to governments and other public institutions.

J. Craig Venter Institute

For more than two decades Dr. J. Craig Venter and his research teams have been pioneers in genomic research. The revolution began in 1991 when at the National Institutes of Health Dr. Venter and his team developed expressed sequence tags, a new technique to rapidly discover genes.

National Newborn Screening and Genetics Resource

The National Newborn Screening and Global Resource Center (NNSGRC) serves as the independent U.S. national resource center for newborn screening and provides newborn screening information globally. It serves as the only non-federally funded source of newborn screening information.

National Society of Genetic Counselors

The Society promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.

Sanger Institute

The Sanger Institute is a genome research institute primarily funded by the Wellcome Trust. We use large-scale sequencing, informatics and analysis of genetic variation to further our understanding of gene function in health and disease and to generate data and resources of lasting value to biomedical research.

American Board of Genetic Counseling

The American Board of Genetic Counseling (ABGC) is the credentialing organization for the genetic counseling profession in the United States and Canada. The ABGC certifies and recertifies qualified genetic counseling professionals. In this way the work of the ABGC protects the public and promotes the ongoing growth and development of the genetic counseling profession.

American Board of Medical Genetics and Genomics

The mission of The American Board of Medical Genetics (ABMG) is to serve the public and the medical profession by promoting and assuring standards of excellence in medical genetics.

American College of Medical Genetics and Genomics

The ACMG provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public.

American Society of Gene & Cell Therapy

ASGCT's MISSION is to advance knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.

American Society of Human Genetics

The American Society of Human Genetics (ASHG), founded in 1948, is the primary professional membership organization for human genetics specialists worldwide. The Society’s nearly 8,000 members include researchers, academicians, clinicians, laboratory practice professionals, genetic counselors, nurses and others who have a special interest in the field of human genetics.

British Society for Genetic Medicine

The British Society for Genetic Medicine (BSGM) represents health professionals working in specialised genetic services in the NHS and scientists and health professionals in medical research.

Canadian Association of Genetic Counsellors

The mission of the Canadian Association of Genetic Counsellors is to promote high standards of practice, encourage professional growth and increase public awareness of the genetic counselling profession in Canada.

Canadian College of Medical Geneticists

“The voice of medical genetics in Canada”

European Cytogeneticists Association

ECA is an affiliate member of the International Federation of Human Genetic Societies,

European Genetics Foundation

The European Genetics Foundation (EGF) is a not for profit organization founded in 1995 by a group of researchers who were involved at the time in the activity of the European School of Genetic Medicine.

European Society of Gene and Cell Therapy

The European Society of Gene and Cell Therapy (ESGCT) is a leading organization committed to support scientists and clinicians involved with basic and translational research on gene transfer and clinical applications of gene and cell therapy.

European Society of Human Genetics

The European Society of Human Genetics is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims, particularly those working in Europe.

Federation of American Societies for Experimental Biology

FASEB is the organization that legislators, federal agencies, and the media turn to for information on policies related to biomedical science and engineering.

Human Genetics Society of Australasia

The Human Genetics Society of Australasia was formed in 1977 to provide a forum for the various disciplines collected under the title of Human Genetics.

International Federation of Human Genetics Societies

Founded in 1996, an international collaboration of professional human genetics societies, the IFHGS ensures that an International Congress of Human Genetics will take place every five years and that a credible forum for the sharing of ideas about human genetics is provided.