I'm passionate about people. I've spent my life in advocacy. People matter - whether or not we agree on the issue, people matter - Ann Marie Buerkle


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Patient groups are supposed to represent patients. But many have deep ties to industry.

Drop in on any of the fierce debates about drug prices or the need for new medicines in the US, and you’ll find patient advocacy groups right in the middle, speaking up for the sick. These organizations represent millions of people with diseases like cancer, MS, and diabetes, and they are among the first places people turn to for help when they get sick.

But new research sheds light on a disturbing problem with these organizations: Their deep ties with industry may be compromising their ability to serve the very patients they’re supposed to help.

A new study from the New England Journal of Medicine found that 83 percent of the nation’s top 104 patient advocacy groups —…

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Last Updated : Friday, March 25, 2022