Ehlers-Danlos syndrome

Rare diseases are hard to say, but even harder to live with - Chloe Print-Lambert

Ehlers-Danlos syndrome

image by: The Ehlers-Danlos Society
     

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What the Power of Dreams Can Do

Living with EDS isn't plain sailing and there will be blood, sweat and tears! There will be days you feel angry, resent others, grieve for the life you may have once had and for lost opportunities. There will be times you can't possibly see how to carry on. This is totally okay, feeling upset is not a sign of weakness and it's so important to be honest and open about your feelings. I have found it really helpful to be completely honest and open with people about my condition. With secrecy it is so often associated with shame and embarrassment whereas when you are open and honest, people see things as they are very matter of fact and it is much easier that way.

You know your body best…

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Last Updated : Saturday, December 28, 2019