Marfan Syndrome

Know the signs. Fight for victory - The Marfan Foundation

Marfan Syndrome

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It's So Personal: Marfan Syndrome

My wife has Marfan Syndrome, a condition that (among other things) leaves people susceptible to sudden dilation or aneurysm of the aorta. It weakens the walls of the aorta with no symptoms, followed sometimes by catastrophic tearing. When it tears, there's an 80% of death - 65% en Davinciroute to the hospital, 15% at the hospital - and only 20% survive through aortic graft surgery. Pregnancy greatly exacerbates that risk.

We knew about the dangers during my wife's first pregnancy, so she had repeated measurements of the aorta. It got a little bigger, but never to the danger zone. Our daughter was delivered by C-section without serious complications. Once the aorta gets bigger, however,…

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Last Updated : Tuesday, October 6, 2020