Muscular Dystrophy

We must let go of the life we had planned so as to have the life that is waiting for us - Joseph Campbell

Muscular Dystrophy

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Duchenne Has Forced Me to Reflect on My Own Mortality


My parents tried to shield me as long as they could from data that revealed the average life expectancy of patients with Duchenne muscular dystrophy (DMD).

Once I grew older and more curious, I finally came across those numbers, and they scared me. I might die before I hit my 30s, fall in love, and have kids of my own. Even living with a fatal disease, I’ve realized no one really knows when it’s time to depart this earth, and I better make the best of the time I have.

I don’t resent my parents withholding the realities of the disease until I found out on my own. They often told me if I did happen across life expectancy, I should take it with a grain of salt. I was…

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Last Updated : Tuesday, October 6, 2020