Lyme Disease

Lyme is a word. Not a sentence ― Rebecca VanDeMark

Lyme Disease

image by: Lymedisease.org

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Lyme, the tick-borne disease that’s spreading fast, explained

Lyme can, in some cases, be really difficult to diagnose. Up to 30 percent of people never get a rash. Many can’t recall a tick bite. The blood tests approved by the Food and Drug Administration only look for Lyme antibodies — or evidence that a person’s immune system has fought off the disease.

This means that people who get the test too early may have a false negative because there aren’t enough antibodies in their system to show up in the test. People who get the test late may have a false positive, after their bodies have fought off the infection. So doctors are often left to diagnose the disease on the basis of clinical symptoms that can be really vague.

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Resources

 Lyme, the tick-borne disease that’s spreading fast, explained

Summer is the season for Lyme. Here’s how to protect yourself.

Global Lyme Alliance

Global Lyme Alliance is the leading 501 (c)(3) dedicated to conquering Lyme and other tick-borne diseases through research, education and awareness.

LymeDisease.org

LymeDisease.org is a non-profit corporation that is a central voice for Lyme patients across the nation through advocacy, education and research. Since 1989, LymeDisease.org (formerly CALDA) has been revolutionizing the Lyme disease arena in public policy, advocacy, and science. Our grassroots membership and state based on line network reach thousands, providing a powerful voice for patients across the country. We seek the hard truths, ask the tough questions, and are not afraid to rock the boat.

A Lyme Disease Journal

This is a blog about my experiences with Lyme Disease. I’ve also written up a short history of these experiences. I created this at the urging of a friend because so little information is available about lyme, and what little there is tends to fall into one of two “camps” that are diametrically opposed to each other. I have spoken to numerous doctors in both camps and done a lot of reading myself, and while I am no expert, my opinions fall somewhere in the center of those two camps. I will do my best to present a balanced view point and provide pointers to resources from both sides so that anyone reading this can draw their own conclusions just as I have.

Bay Area Lyme Foundation

At Bay Area Lyme Foundation, we are committed to making tick-borne disease easy to diagnose and simple to cure.

CanLyme

The Canadian Lyme Disease Foundation (CanLyme) was formed to provide the public, including medical professionals, with balanced and validated information on Lyme disease and related coinfections. CanLyme aims to provide research funding for zoonotic disease, to increase awareness of Lyme and its associated diseases, and to communicate concerns to government public health agencies.

Children’s Lyme Disease Network

The Children’s Lyme Disease Network (CLDN) was launched in May 2011 with the sole purpose of focusing attention on the impact and prevalence of Lyme Disease and other tick-borne infections in children.

International Lyme And Associated Diseases Society

ILADS is a nonprofit, international, multi-disciplinary medical society, dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme and its associated diseases through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases.

LYME 300,000+

"We are the 300,000+" is a movement dedicated to raising awareness about the worldwide Lyme epidemic that is being ignored by the CDC and HMOs. Lyme patients from around the world are standing up to demand change.

Lyme and Tick-borne Diseases Research Center

The Lyme and Tick-borne Diseases Research Center was established as the first academic research center in the country to focus multidisciplinary research on chronic Lyme disease. In recognition that a growing number of patients experience ongoing or relapsing symptoms after having been treated for Lyme disease, in recognition that diagnostic tests often do not provide definitive information regarding the presence or absence of infection, and in recognition that there are multiple possible mechanisms by which symptoms persist, the mission of this center has a particular focus on identifying better diagnostic assays, better treatments, and a better pathophysiologic understanding of the mechanisms of symptom persistence.

Lyme Disease Association

The Lyme Disease Association began as Lyme Disease Association of Central Jersey, Inc. (LDACJ) in 1992 and then became Lyme Disease Association of New Jersey, Inc. (LDANJ) in 1993. It was formed by several patients and doctors─ the Fordyce and Drulle Families were particularly instrumental ─who saw the need to organize and fund research and educate people. It had first a regional then state focus.

Lyme Disease Audio Network

Lyme disease news and information in audio.

Lyme Disease Treatment Institute

The majority of our Lyme Disease patients have previously undergone treatment by 20 or more physicians. At Sponaugle Wellness Institute, we have successfully treated Chronic Lyme Disease patients from around the world. Vastly misunderstood, Lyme Disease symptoms mimic those of other diseases making it commonly misdiagnosed as something else.

Lyme Info

This site provides details about Lyme disease symptoms, diagnosis, treatment, and prevention. Advocacy info and peer-reviewed medical literature are also available. You will find articles as well as an extensive directory of information about Lyme disease and other tick-borne infections.

LymeMD

Medical practice focused on tick-borne illness and associated medical syndromes. The alternative paradigm: the evaluation of patients with unusual and complex symptoms, where diagnoses and treatments by the standard medical model have failed.

LymeNet

Welcome to The Lyme Disease Network, a non-profit foundation dedicated to public education of the prevention and treatment of Lyme disease and other tick-borne illnesses.

LymeNet Europe

The goal of LymeNet Europe is to provide reliable information and discussion about Lyme disease, and support for Lyme patients. Both general (worldwide) and related to Europe specifically.

The Tick That Bit Me

A supportive resource for patients with Lyme, Borrelia hermsii, and other tick-borne infections.

TickEncounter Resource Center

The TickEncounter Resource Center promotes tick-bite protection and tickborne disease prevention by engaging, educating, and empowering people to take action.

Tired of Lyme

Tired of Lyme.com was launched in October of 2011 with the intent of becoming a site dedicated to continuously provide support, consolation, and education for those enduring Chronic Lyme Disease.

BC Centre for Disease Control

Ixodes ticks can be found throughout BC. However, most ticks found to carry B. burgdorferi are found in southern BC, including Vancouver Island, the Lower Mainland, the Sunshine Coast, the Fraser Valley and the Kootenays. In BC, less than 1 percent of ticks tested carry the bacteria that cause Lyme disease. The prevalence of B. burgdorferi in ticks in BC has remained constant over time and consistently low between 1996 and 2014.

CDC

Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful if used correctly and performed with validated methods. Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics.

MedBroadcast

In general, routine use of antibiotics to prevent Lyme disease following tick exposure is not recommended. However, antibiotics such as doxycycline*, amoxicillin, cefuroxime, and ceftriaxone can be used to treat Lyme disease if an infection develops. If you notice symptoms of Lyme disease, see your doctor for treatment.

MedlinePlus

After treatment, some patients may still have muscle or joint aches and nervous system symptoms. This is called post-Lyme disease syndrome (PLDS). Long-term antibiotics have not been shown to help with PLDS. However, there are ways to help with the symptoms of PLDS, and most patients do get better with time.

NHS

Lyme disease is the most common tick-borne infectious disease in Europe and North America. People who spend time in woodland or heath areas are more at risk of developing Lyme disease because these areas are where tick-carrying animals, such as deer and mice, live.

ScienceDaily

Lyme Disease News

Lyme Wellness Initiative

Patient-driven, evidence-based resources to empower you.

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