Mast Cell Activation Syndrome
Research indicates that it is an under recognized contributor to neurologic and psychiatric symptoms, as well as multiple chemical sensitivities - Denise Clark
image by: Nicole Wicklund
My hair was long and fair before it all fell out suddenly, along with my eyebrows and eyelashes, when I was just 20. In five days, it was reduced to just a few small patches. I felt I’d lost a lot of my femininity. You don’t realise how much hair changes the look of your face and your sense of identity. It happened because of a rare condition – mast cell activation syndrome (MCAS) that meant that my body had rejected my hair follicles. The first signs of this syndrome started five years ago, when I was 18. I was out with friends at an event at Liverpool Docks and started to feel really unwell. I went to see a first aider, and the next thing I knew, I was being resuscitated in hospital. They…
It took more than two years to get diagnosed. I’ve probably had around at least 500 life-threatening allergic reactions since then. MCAS was first recognised as a condition in 2007. It means that white blood cells in my body are faulty.
The founders and trustees of Mast Cell Action are united in our common vision to provide support, raise awareness, and help advance the diagnosis and treatment of MCAS. Our objective is to build an organisation that gives a voice to patients, supports doctors, and informs policy-makers about this condition.
The Mast Cell Disease Society is a non-profit organization dedicated to providing multi-faceted support to patients, families and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy and collaboration.
Support Community for Mast Cell Disorders.
A mast cell & tick-borne disease resource organization.
MCAS is a condition in which the patient experiences repeated episodes of the symptoms of anaphylaxis – allergic symptoms such as hives, swelling, low blood pressure, difficulty breathing and severe diarrhea. High levels of mast cell mediators are released during those episodes. The episodes respond to treatment with inhibitors or blockers of mast cell mediators. The episodes are called “idiopathic” which means that the mechanism is unknown - that is, not caused by allergic antibody or secondary to other known conditions that activate normal mast cells.
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