Lymphedema
The most difficult disease to be treated is not the lymphedema, but the prejudice and ignorance that dwells in the minds of many physicians - Professor Carlos Mayall
image by: Lymphedema Treatment Act
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Chronic Positivity: Choosing to stay positive in the face of a chronic health condition
I have lymphedema, but my lymphedema does not have me. It may require me to make some adjustments to my life, but I can live with that. It’s worth it. I am worth it. I’ve finally realized that my health is absolutely paramount to me, and I refuse to deny myself the care and treatment I need just because I’m anxious about what other people may think, or because I’m caught up in wishing things were different.
Hey, everybody’s got something they wish was different—but when it comes to our lymphedema, there’s literally no point in sitting around wishing it away. That doesn’t do us any good! Instead, we’ve got to do what we need to care for our bodies and keep our swelling…
Resources
Common Misconceptions about Lymphedema and Advances in Treatment
When there is a problem in the lymphatic system, it’s not like a toxic clog that prevents a house’s pipes from draining correctly. That’s the wrong mental image to use. Instead, think of a malfunctioning lymphatic system as a house that’s full of termite damage, where the entire architecture of the body has become abnormal. Sure, it may start as fluid accumulation, perhaps even in a single location, but the tissues become so altered throughout the body that the entire system changes for the worse.
Ensuring Every Lymphedema Patient Receives the Best Care Possible
As medical professionals, if we can facilitate lymphatic drainage so there is no stasis fluid we can work to reduce the consequences of lymphedema. That means if we can nip edema in the bud, and prevent it from worsening, we drastically reduce the chances of lymphedema occurring. This helps preserve a patient’s quality of life.
Lymphedema—More Than Just Cancer’s Nasty Little Secret
Ask a breast cancer survivor about her lymphedema and you are likely to hear her say, “It’s worse than my cancer. They cured my cancer. Lymphedema is forever.” However, as familiar as we all are with breast cancer, when you ask someone to tell you everything they know about lymphatic disease and lymphedema, they just scratch their head. Most Americans know little about these diseases, and that includes medical professionals.
New Science and Lymphedema
New research is proving that it’s crucial to have a lymphatic-first mindset. Why? Because all edema is lymphatic overload - a fact that phlebologists and other medical practitioners learn in their training, but isn’t emphasized in mainstream medical education.
A Painful Lymph Illness Often Follows Cancer
Many cancer survivors develop lymphedema, which can lead to serious infections like the one that landed Ms. Malone in the hospital over a year ago. Though it can occur without cancer, patients whose lymph nodes were removed during cancer treatment are particularly susceptible. Some studies suggest that 30 to 40 percent of breast cancer survivors develop lymphedema, sometimes years after surgery.
Efforts Mount to Combat Lymphedema, A Devastating Side Effect of Cancer Care
Lymphedema is beginning to get more attention in part because so many cancer patients now are living far longer, forcing doctors and researchers to focus on the long-term effects of cancer treatments.
I Have Lymphedema and I'm Mad as Hell
Getting lymphedema “felt like a punishment for having cancer”. When asked why, after all she’s been through with cancer, she didn’t just curl up in a corner and give up, she simply replied — “I was pissed off!”
Chronic Positivity: Choosing to stay positive in the face of a chronic health condition
When living with a chronic health condition like lymphedema, “staying positive” is somewhat of a weighted phrase: some days it’s an empowering and buoying sentiment, but other days it can feel like an empty platitude that seems to ignore how difficult it really is to stay positive when living with an incurable condition.
Lymphatic Education & Research Network
The Lymphatic Education & Research Network is a 501C3, non-profit organization whose mission is to fight lymphatic disease and lymphedema through education, research, and advocacy.
LymphCare
Join the movement and become part of the lymphedema community.
Lymphedema Treatment Act
The Lymphedema Advocacy Group is an all-volunteer organization of patients, caregivers, healthcare professionals and industry partners. Our mission is to advance lymphedema care in the United States by advocating for improved insurance coverage for the diagnosis and treatment of the disease.
The LymphieLife.com
I created this blog to help spread awareness of lymphedema to those who maybe aren’t so aware, with the hope that one day no one will go without treatment or care simply due to lack of awareness.
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