ESRD (End Stage Renal Disease)

I'd like people to know that you can head off kidney disease, maybe prevent a transplant or stop the disease from progressing after detection by doing a simple urine test in the doctor's office - Sean Elliott

ESRD (End Stage Renal Disease)

image by: American Kidney Fund

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My Journey with Kidney Failure: From Engaged Patient to Patient Mentor

I was placed on dialysis when I was 30 years old. Before my diagnosis of end-stage renal disease (ESRD) or kidney failure, I had been an active, adventurous world traveler. I spent time in the Middle East, first in the Army, then later as a civilian defense contractor. When I finally rotated back to Kansas City, I got a job with a security company and starting fielding new opportunities that could send me around the world again.

It was around that time that I began to experience some health issues. I was rapidly gaining weight and performing even the simplest tasks would wipe me out. One night after work I decided to stop by an emergency room and get checked out. After the nurse…

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Resources

 My Journey with Kidney Failure: From Engaged Patient to Patient Mentor

I was placed on dialysis when I was 30 years old. Before my diagnosis of end-stage renal disease (ESRD) or kidney failure, I had been an active, adventurous world traveler. I spent time in the Middle East, first in the Army, then later as a civilian defense contractor. When I finally rotated back to Kansas City, I got a job with a security company and starting fielding new opportunities that could send me around the world again.

Coalition for Supportive Care of Kidney Patients

The Coalition for Supportive Care of Kidney Patients (CSCKP) brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. We are professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life.

End Stage Renal Disease Network Program

The mission of the End Stage Renal Disease (ESRD) Network Program is to promote health care for all ESRD patients that is safe, effective, efficient, patient-centered, timely, and equitable.

The National Forum of ESRD Networks

Advocating for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the USA.

Dialysis Patient Citizens

Dialysis Patient Citizens (DPC) is the nation’s largest patient-led organization working to improve the quality of life for dialysis patients. Join us in making a difference for those with kidney disease by enrolling as a DPC member today. (Membership is free.)

ESRD Networks

CMS relies on the Network Organizations to develop a relationship with the dialysis professionals, providers, and patients and create a collaborative environment to improve patient care. One of the primary functions of the Network Organizations is to assist CMS in understanding the needs of ESRD patients by including patients in quality improvement activities and meetings with CMS.

Home Dialysis Central

Home Dialysis Central is a one-stop, online source of up-to-date, unbiased information about home dialysis—in all its forms—for people with kidney disease, their families, and the healthcare professionals who provide kidney disease care.

American Association of Kidney Patients

As the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

StatPearls

End-stage renal disease can present with a constellation of signs and symptoms. Some include volume overload refractory to diuretics, hypertension poorly responsive to medication, anemia, mineral and bone disorders, and metabolic derangements including hyperkalemia, hyponatremia, metabolic acidosis, hypo/hypercalcemia, and hyperphosphatemia.

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