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Caring for Persons With Advanced Kidney Disease Should Not Feel Like a Nail-Biting Game of Jenga
For family game night, my daughter’s favorite game is Jenga. As the tower destabilizes, she nervously anticipates whether the next poke of a block will destabilize the tower and elicit screams of “Jenga!” when it falls.
Sometimes, as a nephrologist caring for persons with advanced kidney disease, I feel like my daughter does during a round of Jenga. I’m just watching on the sidelines, waiting to see which move will destabilize the patient.
A few years ago, the daughter of a 94-year-old patient called me. Her mom had been admitted to a hospital after falling and breaking her hip. The ER doctors also said her mom would need dialysis because her kidneys were failing. When…
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How this S.F. startup is taking on chronic kidney disease
Using a mix of remote, in-person and at-home care services, the program helps patients manage their CKD, slow down the progression to kidney failure and, if necessary, get prepared so that they’re not starting off dialysis in the hospital.
Kidney Exchange Registries Should Collaborate to Save More Lives
Kidney exchange registries in the United States help connect compatible donors and recipients who don’t know each other. With increasing competition among different registries, they search for matches between donors and patients more and more frequently. Are they at risk of depleting their donor pools too fast? A new study by Yale SOM’s Vahideh Manshadi and her colleagues says no—but points to better outcomes if registries collaborate to build a unified database.
KidneyX Prize Winners Rethink Dialysis
Artificial kidneys and a wearable that prevents blood clots were among the winning designs.
Caring for Persons With Advanced Kidney Disease Should Not Feel Like a Nail-Biting Game of Jenga
Persons with advanced kidney disease should be empowered to understand how each new medication, life event, dietary change, or hospitalization can influence their disease progression. Care should be easily organized and accessible, so that any provider can readily understand where patients are in the course of their kidney disease.
Cricket Health
Our mission is to eliminate the burden of kidney disease.
The Kidney Project
The Kidney Project is a national research project with a goal to create a small, surgically implanted, and free-standing bioartificial kidney to treat end stage renal disease (ESRD).
National Kidney Registry
The mission of the NKR is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.
RareRenal
The National Registry of Rare Kidney Diseases (RaDaR) is an initiative by UK kidney specialists (the Renal Association). It is designed to pull together information from patients who have certain rare kidney diseases. This will give a much better understanding of how these illnesses affect people. It will also speed up research.
American Association of Kidney Patients
The American Association of Kidney Patients (AAKP) is recognized as the leader for patient-centered education — continually developing high quality, professionally written, edited and reviewed educational pieces covering every level of kidney disease.
American Kidney Fund
The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.
American Society of Diagnostic and Interventional Nephrology
The mission of the American Society of Diagnostic and Interventional Nephrology is to promote the appropriate application of new and existing procedures in order to improve the care of patients with kidney disease.
American Society of Nephrology
The American Society of Nephrology is organized and operated exclusively for scientific and educational purposes, including enhancing the field of nephrology by advancing the scientific knowledge and clinical practice of that discipline through stimulation of basic and clinical investigation...
American Society of Pediatric Nephrology
The American Society of Pediatric Nephrology is an organization of pediatric nephrologists and affiliated health care professionals. Our primary goals are to promote optimal care for children with kidney disease through advocacy, education and research; and to disseminate advances in clinical practice and scientific investigation.
Australian and New Zealand Society of Nephrology
The aims of the Society are to promote and support the study of the kidney and urinary tract in health and disease, and to ensure the highest professional standards for the practice of nephrology in Australia and New Zealand. The Society provides information about research grants, scholarships, and vacant nephrological positions, and annually awards a number of travel grants and research fellowships, grants and scholarships.
British Association for Paediatric Nephrology
The BAPN is an inclusive organisation open to all professionals working towards improving the care and lives of children with kidney diseases. We welcome everyone working or training in renal units, caring for patients with kidney disease, and/or working or training in renal research to improve patient care in the future.
British Renal Society
The British Renal Society began as The British Renal Symposium in 1989 to promote formal dialogue between the many specialist groups supporting professionals involved in the care of patients with kidney disease. It soon became apparent that such a strong multi-professional input could be of major benefit to the future development of renal care, by exerting influence at a number of levels including the advancement of the evidence base, the commissioning process, and the formulation of policy.
British Transplantation Society
The British Transplantation Society (the BTS) is the professional voice of transplantation in the UK, representing all the varied disciplines in transplantation including clinicians, nurses, pharmacists, scientists involved both in basic research and in histocompatibility laboratories, ethicists and other professions allied to medicine.
Canadian Society of Nephrology
The Canadian Society of Nephrology is a society of physicians and scientists specializing in the care of people with kidney disease, and in research related to the kidney and kidney disease.
Chinese American Society of Nephrology
The Chinese American Society of Nephrology (CASN) was founded by a group of nephrologists of Chinese heritage in 1988. Since its inception, CASN has been a platform for members, clinicians and basic researchers alike, to promote the professional growth, to encourage the exchange of ideas, to provide educational, research, and professional opportunities, and to provide a social environment for building friendships.
European Society for Paediatric Nephrology
The aim of the Society is to promote research knowledge of paediatric nephrology through teaching, scientific meetings and other methods, for the benefit of children with renal disease.
Hong Kong Paediatric Nephrology Society
The Society advances the interest and knowledge in childhood kidney diseases, improves the standard of care of children suffering from kidney diseases and promotes child health in relation to kidney diseases in Hong Kong.
Indian Society of Nephrology
The Society has continuously provided a platform for dissemination and sharing of scientific exchange amongst professionals interested in the study of kidney and its diseases in the country.
International Kidney Stone Institute
The International Kidney Stone Institute is a charitable organization dedicated to supporting clinical and basic science research and education for the detection, management and prevention of kidney stone disease. As we push toward a cure, we strive for excellence in patient and physician education. Affiliated with Methodist Hospital and Indiana University School of Medicine, the International Kidney Stone Institute is a center for excellence in kidney stone disease and a major center for independent evaluation of the safety and effectiveness of stone disease treatments.
International Pediatric Nephrology Association
The International Pediatric Nephrology Association (IPNA) is comprised of roughly 1500 pediatric nephrologists and allied professionals representing 89 countries around the world. Together, we work to disseminate knowledge about kidney disease in children in the areas where care is needed most.
International Society for Hemodialysis
The International Society for Hemodialysis was formed in 1999 by a group of world-renowned nephrologists who believed that the science and clinical practice of hemodialysis was being overlooked by the other major societies and journals in favor of molecular biology and other basic science-focused research endeavors.
International Society for Peritoneal Dialysis
The purpose of this Society will be to advance knowledge of peritoneal dialysis and to promote advancement of such knowledge through international scientific meetings and scientific publications. The Society is organised exclusively for educational and scientific purposes.
International Society of Nephrology
Since its foundation in 1960, the International Society of Nephrology has pursued the worldwide advancement of education, science and patient care in nephrology (the medical sub-specialty dealing with the Kidneys).
Interstitial Cystitis Association
The Interstitial Cystitis Association (ICA) advocates for interstitial cystitis (IC) research dedicated to discovery of a cure and better treatments, raises awareness, and serves as a central hub for the healthcare providers, researchers and millions of patients who suffer with constant urinary urgency and frequency and extreme bladder pain called IC.
Irish Kidney Association
The Irish Kidney Association is a charitable voluntary organisation founded in 1978. We are dedicated to meeting the needs of renal patients and their families and carers, living with and affected by end stage renal disease. These needs are spread across all aspects of life — medical, social and psychological.
Irish Nephrology Society
The mission of the Irish Nephrology Society is to ensure a high quality care for patients with kidney disease by promoting the highest standard of medical practice. It has an integral role in the education and training of medical practitioners and advises the government, public and the profession on health care issues relating to kidney disease.
Kidney & Urology Foundation of America
The Kidney & Urology Foundation of America provides research grants and develops quality educational conferences for physicians and other medical professionals in the nephrology, urology and transplant communities.
Kidney Cancer Association
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers.
Kidney Care UK
The British Kidney Patient Association (BKPA) is a really well established charity working to improve the quality of life for adults and children with kidney disease.
Kidney Patients UK
The largest kidney patient charity in the UK. Run by kidney patients, for kidney patients.
Kidney Research UK
Founded in 1961, Kidney Research UK is the leading UK charity funding research that focuses on the prevention, treatment and management of kidney disease. Kidney Research UK also dedicates its work to improving patient care and raising awareness of kidney disease.
National Institute of Diabetes and Digestive and Kidney Diseases
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports basic and clinical research on many of the most serious diseases affecting public health.
National Kidney Foundation
The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
National Renal Administrators Association
The National Renal Administrators Association can trace its roots back to 1977 when a group of Administrators established a network for the purpose of exchanging information and best practices amongst themselves.
Organ Procurement and Transplantation Network
The primary goals of the OPTN are to increase the effectiveness and efficiency of organ sharing and equity in the national system of organ allocation, and to increase the supply of donated organs available for transplantation. deletepaid PKD Foundation
PKD Foundation
To provide medical professionals in depth information about various aspects of polycystic kidney disease, the PKD Foundation has teamed up with UpToDate.
Renal Pathology Society
The Renal Pathology Society (RPS) is a nonprofit organization committed to improvement and dissemination of knowledge regarding the pathology and pathophysiology of renal disease.
Renal Physicians Association
Organized in 1973, the RPA is a national medical speciality association with a membership comprised of healthcare providers in the subspeciality area of internal medicine known as nephrology.
Renal Research Institute
The Renal Research Institute is dedicated to advancing therapy options for dialysis patients to provide the highest caliber of care based on advanced clinical technology. The Institute is committed to research and innovation that will lead to improved patient outcomes and quality of life.
The Asian Pacific Society of Nephrology
The Asian Pacific Society of Nephrology aims to promote and encourage the advancement of scientific knowledge and research in all aspects of nephrology, and to promote the exchange and dissemination of this knowledge in the Asian-Pacific area.
The Association of Renal Technologists
The purpose of ART is to promote the field of work shared by technicians, technologists, engineers, scientists and other members of the multi-professional team working within the sphere of Renal Technology.
The Cystitis and Overactive Bladder Foundation
The Cystitis and Overactive Bladder (COB) Foundation gives support to people with all forms of cystitis, overactive bladder and continence issues together with their families and friends. We are the largest bladder patient support charity in the UK. We have the busiest message board forums in Europe and the most widely used website for those bladder illness sufferers seeking information, help and support.
The Kidney Foundation of Canada
The Kidney Foundation of Canada is committed to achieving excellent kidney health, optimal quality of life, and a cure for kidney disease.
The National Forum of ESRD Networks
/ The Forum of ESRD, End-stage Renal Disease, Networks advocates for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the United States.
The Nephron Information Center
Our mission is to use this medium to make the public more aware of kidney disease in a sincere effort to prevent it when we can, and to help our colleagues achieve good outcomes in those who already have end stage renal disease. Our role is to provide as much information as possible to patients, professionals and the general public.
The Renal Association
The Renal Association is the professional body for United Kingdom nephrologists (renal physicians, or kidney doctors) and renal scientists in the UK.
The Scottish Renal Registry
The Scottish Renal Registry (SRR) is a national registry of patients receiving renal replacement therapy for established renal failure in Scotland.
UK Renal Registry
The UK Renal Registry is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society.
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