Polycystic Kidney Disease
There’s hope after a PKD diagnosis and you don’t have to do it alone - PKD Foundation
image by: PKD Foundation
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Stigmas
As I was indulging in my previously confessed Facebook addiction, I scrolled across an article entitled something like "Coming out as Fat". It's a provocative title, it's clearly click bait, but it looked kinda interesting, so I took the bait and clicked.
It was mostly an article about how fat people are stigmatized, how there are websites devoted exclusively to fat-shaming (think "People of Walmart") and how this world is difficult for somebody who struggles with his or her size.
I don't doubt it. There are lots of stigmas attached in this world to lots of different things, and I feel for anybody who has had to change a daily routine or can't participate in things…
Resources
How I’ve Outlived My Incurable Kidney Disease for 30 Years
Polycystic kidney disease is a chronic kidney condition that hits more than half a million Americans. Here's what it's like to live with this potentially deadly diagnosis.
In Between the FDA and Pharma, People Wait for Treatments
The FDA is a vital organization. It protects all Americans from unscrupulous companies. Our hope is that it will balance that important mission with the pressing need to finally make an effective treatment available to the estimated 600,000 Americans who suffer from PKD.
Levels Of Thinking About Polycystic Kidney Disease
When you think about your Polycystic Kidney Disease, what are the thoughts that you think? OK, I know. You don’t really want to think about your disease.
The Future of Polycystic Kidney Disease Research—As Seen By the 12 Kaplan Awardees
Polycystic kidney disease (PKD) is one of the most common life-threatening genetic diseases. Jared J. Grantham, M.D., has done more than any other individual to promote PKD research around the world. However, despite decades of investigation there is still no approved therapy for PKD in the United States.
You Are Not Your Kidneys
Associate with people who encourage you. Educate people about PKD. Let them know that you are not your kidneys. You are a wonderful, amazing human being!
Stigmas
So I'm thinking about fat people, thinking about PKD, thinking about uncomfortable social situations, wondering why making a public video about my disease makes me feel a little silly, and then it becomes clear. I'm worried about being stigmatized as a sick person.
PKD Foundation
There’s so much happening in the PKD world — from important advancements in research and science to updates in critical legislation and information about how to manage your health. We got you covered right here. We are the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects.
Living With PKD
A blog about PKD, motherhood, and the dog.
Polycystic Kidney Disease Awareness
Our apparel/ art-works are for spreading Polycystic Kidney Disease Awareness.
Nathan's PKD
The chronicles of a guy afflicted with polycystic kidney disease and how he deals with this disease, dialysis, and his January 2007 kidney transplant.
PKD Charity
We are a UK charity dedicated to the concerns of people affected by Polycystic Kidney Disease - PKD - a range of inherited, incurable renal conditions.
PKD Sucks
My husband has polycystic kidney disease (PKD), diagnosed at age 17. He just turned 40. Five other close relatives also have PKD. We have two boys-ages 8 and 3. Currently he is on transplant list and starting dialysis. I hope in writing this I can help someone going through this same scary process. I could not find much information about it and there is SO much to learn and deal with!
Surviving PKD
The story of my life with Polycystic Kidney Disease, from discovery to transplant.
American Society of Nephrology
Polycystic kidney disease (PKD) is the most common genetic cause of kidney failure in adults and children. PKD is characterized by progressive cystic dilation of the renal tubules, which results in nephromegaly and often culminates in end-stage renal disease. PKD can be inherited as either an autosomal dominant trait (ADPKD) or autosomal recessive trait (ARPKD).
National Institute of Diabetes and Digestive and Kidney Diseases
PKD is a form of chronic kidney disease (CKD) that reduces kidney function and may lead to kidney failure. PKD also can cause other complications, or problems, such as high blood pressure, cysts in the liver, and problems with blood vessels in your brain and heart.
National Kidney Foundation
In the United States about 600,000 people have PKD. It is the fourth leading cause of kidney failure. It is found in all races and occurs equally in men and women. It causes about 5% of all kidney failure.
StatPearls
Polycystic kidney disease (ADPKD) is an autosomal dominant disorder. It's a multisystemic and progressive disease with cysts formation and kidney enlargement along with other organ involvement (e.g. liver, pancreas, spleen). In the adult population, it is the most frequent genetic cause of renal failure with 6-8% of patients on dialysis in the US. By the age of 60 years 50% of them need renal replacement therapy.
The Inner Game of PKD
The intention of this blog is to share my experiences, observations, and methods to assist the reader to obtain a better life, whatever that may mean for you.
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