Endometriosis

It falls into the abyss of “women’s diseases” (overlooked), diseases that don’t kill you (unimportant) and menstrual problems (taboo) - Rachel E. Gross

Endometriosis
Endometriosis

image by: Endometriosis Awareness

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Endometriosis is more than just a ‘women’s problem’

Why does a disease which causes pain and infertility… take up to ten years to diagnose?

Endometriosis is common and debilitating. Deposits of tissue resembling the lining of the womb are left in places they would not normally occur. The ovaries, tubes and walls of the pelvis are common targets. The bladder and bowel can be affected and, on rare occasions, far-flung body parts such as the liver can be involved. With every period the deposits bleed, setting off a vicious cycle of inflammation and scarring.

Women with endometriosis commonly experience very painful periods and painful sex. Some will also have pelvic pain which can last throughout the cycle. Bowel symptoms,…

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Resources

 Endometriosis is more than just a ‘women’s problem’

Why does a disease which causes pain and infertility, and which affects around 10% of UK women, take up to ten years to diagnose?

1 in 10 Women Have Endometriosis. Why Don't Their Doctors Believe Them?

In "Ask Me About My Uterus," Abby Norman exhaustively chronicles her years-long struggle to make doctors take her pain seriously—something everyone who suffers from endometriosis can sadly relate to.

EndoAct

EndoAct’s goal is to drive policy action on endometriosis in Canada. By bringing together people living with endometriosis, health care professionals, and researchers, we represent Pan-Canadian expertise on endometriosis. Together, we are raising awareness about the problems faced by the endometriosis community and solutions to ensure that everyone in Canada who has this condition gets the right care, in the right place at the right time.

SpeakENDO.com

SpeakENDO.com is your go-to resource for endometriosis. Get tips on how to fully express your symptoms, learn to advocate for your own care, and hear from others who've been there.

EMLWY

Endometriosis: my life with you, or EMLWY as I often refer to it, is my own little personal project to help me gain some stability. It is my source of therapy that I want to share with the world in the hope that it can help others too. That and it allows me to have a massive rant at the world whenever I want!

Endometriosis Association

The ultimate goal of the Endometriosis Association is to find a cure and prevention for endometriosis while at the same time providing education, support, and research to those affected.

Endometriosis Foundation of America

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.

Endometriosis UK

We're here to provide vital support services, reliable information and a community for those affected by endometriosis.

Endometriosis Update

This Blog aims to report what is going on in the area of endometriosis research in plain and simple terms, so that everyone can keep up to date. Updates will be pretty sporadic but I'll try to report items of interest as often as possible.

Endometriosis.org

Endometriosis.org is the global platform which links all stake holders in endometriosis - one of the most common causes of pelvic pain and infertility in women.

QENDO

We support anyone affected by endometriosis, adenomyosis, PCOS, infertility or pelvic pain, by offering them the tools, services and programs to understand and take control of their health.

Surviving Endometriosis

My battle with endometriosis.

Endo Sucks

Pinterest site.

Endo Writer

endo writer wants to • make sense of endometriosis • raise awareness of endo, so women don't have to suffer • raise awareness of progesterone intolerance, so women don't have to suffer • share research... • encourage research

Endometriosis Explained

In the “new view” of “endometriosis” these symptoms are caused by injuries to pelvic nerves caused by (1) difficult vaginal deliveries, (2) straining during defaecation, (3) minor gynaecological surgery (D&C) for conditions such as miscarriage, (4) occasional direct trauma.

Endometriosis: the silent life sentence

Endometriosis is that spaz you didn’t invite to the party, of course, but who shows up anyway; the “friend” who always drinks too much and ends up dancing on the table, whilst stripping down to their knickers. It’s Naproxen and a heating pad to the rescue. And maybe, just maybe this time, endometriosis will take the hint, climb down off the table that is my uterus (just stay with me, people), and scram. A girl can hope.

Hope Garden

My journey dealing with endometriosis.

Living with Endometriosis

The pain remains. I am a warrior woman fighting the pain, fighting the workplace establishment that’s only concerned about their bottom line and not their employees, and fighting the medical industry that’s only concerned with kickbacks from the dangerous pharmaceutical industry.

My Endo Diary

I don't proclaim to be an expert. I'm just an endometriosis sufferer, talking about what I know. Wanting to raise awareness of endometriosis and share my endo diary with you.

My Journey with Endometriosis

By journaling here, I hope to benefit both for myself and for others that are dealing with this disease and fertility struggles. Thanks for visiting!

The ICI Experience

A blog about all aspects of the experience of living with Invisible Chronic Illness (ICI), with a new focus on Endometriosis and Pelvic Floor Dysfunction.

MayoClinic

Endometriosis most commonly involves your ovaries, bowel or the tissue lining your pelvis. Rarely, endometrial tissue may spread beyond your pelvic region.

MedicineNet

While most cases of endometriosis are diagnosed in women aged around 25 to 35 years, endometriosis has been reported in girls as young as 11 years of age. Endometriosis is rare in postmenopausal women.

MedlinePlus

This "misplaced" tissue can cause pain, infertility, and very heavy periods. The pain is usually in the abdomen, lower back or pelvic areas. Some women have no symptoms at all. Having trouble getting pregnant may be the first sign.

Patient

Endometriosis can cause painful periods, persistent pain in the pelvic area, infertility, and other symptoms. The symptoms can range from mild to severe. Treatment options include painkillers, hormone treatments, and surgery.

WomensHealth.gov

The most common symptom is pain. The pain happens most often during your period, but it can also happen at other times. Endometriosis may also make it harder to get pregnant. Several different treatment options can help manage the symptoms and improve your chances of getting pregnant.

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