Advocates

I'm not a scientist. I'm not a clinician. I'm there on behalf of patients - Nancy Roach, Advocate For Patients

Advocates
Advocates

image by: Pancreatic Cancer Action Network

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A Patient's Advocate Story

When we first started going to doctors appointments with my Mom after her Ovarian Cancer diagnosis, my sisters and I assumed that our role was to be an extra set of eyes and ears in the exam room. And that was true to some extent. Especially at the very beginning.

But over time we came to realize that a far more important contribution was being an extra set of eyes and ears between doctors’ appointments. Helping to make sure my Mom was taking her medications, and creating a schedule for those meds that worked for her. Helping make lists of things she wanted to discuss with her doctors, and jumping into the discussion when "chemo brain" set in and she couldn't remember anything from…

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Resources

 A Patient's Advocate Story

When we first started going to doctors appointments with my Mom after her Ovarian Cancer diagnosis, my sisters and I assumed that our role was to be an extra set of eyes and ears in the exam room. And that was true to some extent. Especially at the very beginning.

CanCare

You are not meant to endure cancer alone. Cancer is hard, but it doesn’t have to be lonely.

Cancer Hope Network

Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families. We provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

Cancer Support Community

Transforming the cancer experience through community and connection.

CancerCare

CancerCare is a national nonprofit organization that provides free, professional support services for anyone affected by cancer.

CancerConnect

CancerConnect is a comprehensive online resource center and social network for cancer patients and their caregivers. Since 1996, it has been providing best in class, disease-specific patient information, covering relevant topics such as latest treatments, management of side effects, clinical trials, and support groups.

Living Hope Cancer Foundation

We exist to offer cancer coaching.

International Cancer Advocacy Network

The ICAN® mission is to assist and empower late-stage patients worldwide with cutting-edge information regarding anticancer drugs in clinical trials as well as physician referrals at the patient’s request based on the patient’s reported medical situation.

National Coalition for Cancer Survivorship

NCCS’ mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life.

Society for Cancer Advocacy and Awareness

We are a group of people that is dedicated to be the voice of Sarawak people in matters affecting our cancer health care and to educate the general public.

Bladder Cancer Advocacy Network

The Bladder Cancer Advocacy Network (BCAN) is a community of patients, caregivers, survivors, advocates, medical and research professionals united in support of people touched by bladder cancer.

Pancreatic Cancer Action Network

Our mission is to take bold action to improve the lives of everyone impacted by pancreatic cancer by advancing scientific research, building community, sharing knowledge and advocating for patients.

Stand Up To Cancer

Stand Up To Cancer works relentlessly to offer the newest, most effective, and most promising cancer treatments to patients quickly by bringing together the best minds to collaborate, innovate, and share cancer research.

Young Survival Coalition

Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally.

Zero

As ZERO — The End of Prostate Cancer, we commit ourselves not only to reduce prostate cancer or alleviate the pain from the disease but to end it.

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