So now I’m trying to raise awareness as much as I can especially as Vulval cancer doesn’t have any charity’s of there own or a Awareness day/week of its own or official ribbon or any celebrities to help or have tea party’s - Clare Baumhauer
image by: Wiener Zeitung
For most of her life, Clare Baumhauer assumed her sore, itchy vulva was normal. "From when I was primary school [elementary] age, I was telling my mum that I was sore and itchy down there, and that it was burning when I went to the toilet," the 45-year-old hospitality supervisor recalls.
"I remember her taking me to see my GP two or three times. He never looked at me, but I was given different creams and none of them helped. Even at that age, I quickly became reluctant to keep going back."
After nearly 40 years of being misdiagnosed with everything from yeast infections to cystitis, early menopause, eczema, and even herpes, in 2016 Baumhauer received a devastating diagnosis…
For years, Clare Baumhauer's painful symptoms were written off by GPs. Then she was diagnosed with lichen sclerosus—a little-known condition that, for a small number of women, can cause vulva cancer.
This website has been created to help sufferers of Lichen Sclerosus and those who believe they may have it. We are also hoping this website will help us to raise awareness for this condition.
It can start in any part of the female external sex organs. It most often affects the inner edges of the outer lips (labia majora) or the outer lips (labia minora). Most vulval cancers do not form quickly.
Learn about the risk factors for vulvar cancer and what you might be able to do to help lower your risk.
About 80% of vulvar cancers involve the labia, mainly the labia majora (~50%). About ten percent involve the clitoris, and another 10% involve the perineum,
Vaginal and vulvar cancers are very rare. While all women are at risk for these cancers, very few will get them. Together, they account for about 8% of all gynecologic cancers diagnosed in the U.S.
Diagnosis is usually made in the sixth through eighth decades of life and is commonly identified at an early stage of the disease. Squamous cell carcinoma (SCC) accounts for most vulvar cancers, while basal cell carcinoma (BCC), extramammary Paget disease, and vulvar melanoma comprise the less common subtypes.
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