Cholesteatoma

Hearing loss doesn’t define or disempower who you are. Instead, it gives you a unique way of experiencing the world that is yours only - Priscila Soares

Cholesteatoma
Cholesteatoma

image by: Ayush Speech and Hearing Clinic

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Fiona’s story

Like many people with this condition, I had several ear infections as a child which seemed to calm down as I grew. The first indication that there might be a problem was a lump behind my right ear. It felt like a swollen gland. There was some tenderness and a general ache. That was back in 2003 around the time my mother was undergoing a mastectomy. It niggled but I had more important things to worry about. The lump never really went down and pretty soon the headaches commenced. Initially they were predictable. I would get a pulsating sensation in my right eye and a migraine type headache with nausea and dizziness would follow. They would typically last for 3 days and seemed to roughly happen…

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Resources

 Fiona’s story

Like many people with this condition, I had several ear infections as a child which seemed to calm down as I grew. The first indication that there might be a problem was a lump behind my right ear. It felt like a swollen gland.

Cholesteatoma Support & Awareness Group

Page dedicated to the hidden disease.

International Cholesteatoma Association

Cholesteatoma affects many people around the world. We are a small group of volunteers helping to unite people affected by this disease. This website has been created to support functions of the not-for-profit organisation, International Cholesteatoma Association, formed in March 2016.

Vestibular Disorders Association

Over time, the cholesteatoma can increase in size and destroy the surrounding delicate bones of the middle ear. Hearing loss, dizziness, and facial muscle paralysis are rare but can result from continued cholesteatoma growth.

All in My Head - Cholesteatoma Blog

This page is designed to offer an insight into what it is like to live with cholesteatoma - a condition that is often refered to as the hidden disease.

My Lucky Years

Through my art, I want people to understand the view of a person with an invisible disability. I know now that having a disability such as hearing loss doesn’t define you, but instead, it gives you a unique way of experiencing the world.

Dizziness-and-Balance.com

Cholesteatomas are tumor like growths in the middle ear (see above). They are generally formed from the skin cells on the outside of the eardrum, that have become folded into the middle ear as a result of an ear infection with a perforation of the ear drum. Some are also congenital due to pockets of tissue located in the middle ear.

GARD

Cholesteatoma is an abnormal growth of skin in the middle ear behind the eardrum. It can be congenital (present from birth), but it more commonly occurs as a complication of chronic ear infections. Individuals with this condition usually experience a painless discharge from the ear

Patient

Cholesteatoma is the name given to a collection of skin cells deep in the ear that form a pearly-white greasy-looking lump deep in the ear, right up in the top of the eardrum (the tympanic membrane).

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