Congenital Diaphragmatic Hernia

Behind Each Breath, an Underappreciated Muscle

One in every 2,500 babies is born with a hole in its diaphragm. The baby’s liver, intestines and other abdominal organs can push up through this opening against the lungs, stunting their growth and restricting the baby’s breathing. About a third of babies born with congenital diaphragmatic hernias die, and it is likely that still more die of this defect before birth.

Surgery in the womb: miracle maker for NHS's tiniest patients

Kypros Nicolaides has spent 40 years caring for babies who have yet to be born. We watched him at work

Why I dislike the phrase: "I hate CDH."

I get why parents and family members "hate CDH", our own daughter's death certificate states under "cause of death": "complications of congenital diaphragmatic hernia". I also hated it for a long time. It is a birth defect that sounds so very simple, yet is so complicated.

Congenital Diaphragmatic Hernia

Congenital Diaphragmatic Hernia (CDH) is defined by the presence of an orifice in the diaphragm, more often left and posterolateral that permits the herniation of abdominal contents into the thorax.

Congenital Diaphragmatic hernia – a review

The defect may range from a small aperture in the posterior muscle rim to complete absence of diaphragm. The pathophysiology of CDH is a combination of lung hypoplasia and immaturity associated with persistent pulmonary hypertension of newborn (PPHN) and cardiac dysfunction.

Congenital Diaphragmatic Hernia: The Surgeon’s Perspective

The role of in utero surgery for CDH remains controversial. However, the recent identification of new and reliable ultrasonographic predictors of postnatal mortality and the evolution of a minimally invasive surgical technique justifies in utero surgery for CDH as a reasonable treatment option for select fetuses who have essentially no chance of survival despite optimal postnatal care.

Face of CDH - Noah's Miracle

CDH is an unpublicized nearly unrecognized devastating birth defect that affects many families every day. Most people do not know anything about CDH,

The History of Congenital Diaphragmatic Hernia from 1850s to the Present

Congenital diaphragmatic hernia (CDH) is believed to result from incomplete fusion of the pleuroperitoneal membrane, and passage of the abdominal contents into the chest. A historical review of the literature on this subject shows a wide divergence of opinion on the etiology of the various types of CDH, and on the recommended treatment.

What to Expect After Bringing a CDH Baby Home - the Basics

The most common issue these babies may have is gastresophageal reflux/foregut dysmotility – it is reported to occur in 45% to 90% of infants with CDH. Reflux can be treated with medications, and many parents also use some sort of angle bed – raised head after and during the feeds. As these babies grow, they can outgrow reflux.

Congenital Diaphragmatic Hernia Documented for 300 Years?

Congenital Diaphragmatic Hernia has been recorded for over 300 years, but no one has ever heard of it, unless they encounter it.

CDH International

A global initiative to stop Congenital Diaphragmatic Hernia.

Cherubs

CHERUBS was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness in 1995. In 2017, the organization evolved into CDH International and CHERUBS became the family support division of a new, global entity.

Alliance of Congenital Diaphragmatic Hernia Organizations

International group of professional charity and research organizations working together to better serve babies and families affected by Congenital Diaphragmatic Hernia.

Breath of Hope

Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.

Raising Diaphragmatic Hernia Children

This site offers parents ways to be aware of problems their child may face. There is no two cdh children alike. However many have the same issues.

CDC

Surgery is necessary to repair a diaphragmatic hernia soon after the baby is born. After surgery, the baby will need continued assistance to breathe until the lungs recover and expand.

Congenital Diaphragmatic Hernia Overview

Congenital diaphragmatic hernias are increasingly diagnosed prenatally; however, they are occasionally diagnosed in symptomatic neonates and even asymptomatic or mildly symptomatic children, teens, and adults.

Nationwide Children's

Babies born with CDH can have small, underdeveloped lungs (pulmonary hypoplasia), as well as reduced blood flow to the lungs caused by high blood pressure in the lungs (pulmonary hypertension). These 2 problems, pulmonary hypoplasia and pulmonary hypertension, cause babies with CDH to have a lot of trouble breathing right after birth.