Inflammatory Bowel Disease (IBD)

Know that the pain will pass, and, when it passes, you will be stronger, happier, more sensitive and aware – Mel Colgrove

Inflammatory Bowel Disease (IBD)

image by: Crohn's & Colitis UK

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What I Want You To Know about Crohn’s and Colitis

To all the caregivers, bosses, classmates, and friends. To all the boyfriends and best friends, to the girl that I see at yoga class. I want you to know this:

I have IBD. It stands for Inflammatory Bowel Disease. (It does not stand for Irritable Bowel Disorder, or anything else, and it’s not the same as IBS). If you know me, you probably know this. I talk about it frequently. I volunteer for various organizations. I have my elevator speech worked out, and I can rattle off definitions, facts, and statistics in my sleep. But do you know what that means to me, and the other patients who live day in and day out with IBD?

We all know IBD awareness is important. But…

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Resources

 What I Want You To Know about Crohn’s and Colitis

We all know IBD awareness is important. But there are more reasons that I want you to know about it. I want you to be aware on a personal level, because for this single person, (and millions of others like me) it affects my whole life. I want to be able to go up to someone- a friend or a stranger, and when I say “I have Crohn’s” or “I have Colitis”, they get it.

5 Hot Topics in Inflammatory Bowel Disease Research

Inflammatory bowel disease research, just like clothes and music, is subject to trends. To give you a good idea about where things are heading at the moment, I’ve composed a list of five hot topics in IBD research. The choices were based mainly on my own research experiences, the research prioritization report published by the Crohn’s and Colitis Foundation of America (CCFA), as well as ideas found on patient forums.

GirlswithGuts

A non-profit organization supporting and empowering women with IBD and/or ostomies.

Inflammatory Bowel Diseases

Inflammatory Bowel Diseases® brings the most current information in clinical and basic sciences to physicians caring for patients with inflammatory bowel diseases, and investigators performing research in IBD and related fields.

Let'sTalkIBD

"Imperfection is beauty, madness is genius and it is better to be absolutely ridiculous than absolutely boring." Those of us with IBD and ostomies certainly aren't perfect, but that is what makes us so special. Stay tuned for inspiration!

The IBD Immunologist

The goal of The IBD Immunologist is to provide you coverage of the latest IBD research news and with the basic immunology background needed to understand it. The most exciting new research on IBD is focused on the immune system. This site will help you stay abreast of the latest information.

Crohn’s & Ulcerative Colitis Companion

Living with a chronic disease like IBD can sometimes be discouraging, and you may feel embarrassed by your disease. Other times, contacting one of the IBD support groups or organizations listed below may be just what you need. You may take comfort in learning how other people with IBD are managing their condition.

Colitis and Me

Documenting the human side of Inflammatory Bowel Disease and how it has changed my life.

Crohn's and Colitis Foundation of America

Founded in 1967, the Crohn's and Colitis Foundation of America (CCFA) is a 501(c)(3) non-profit organization dedicated to finding cures for Crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases, collectively referred to as inflammatory bowel diseases (IBD). CCFA funds cutting-edge medical and scientific research, provides supportive and educational programs and aims to raise public awareness about IBD.

Crohn's and Colitis UK

Crohn's and Colitis UK is the working name for the National Association for Colitis and Crohn's Disease (NACC). Founded in 1979, the charity has been providing information and support, funding research and fighting for change by bringing together people of all ages who have been diagnosed with IBD, their families and friends, and the professionals involved in their care.

Crohn's Forum

Support group and forum for Crohn's Disease, Ulcerative Colitis, and other IBD.

Get Your Belly Out

Every 22 minutes someone in the UK is diagnosed with Crohn’s Disease or Ulcerative Colitis… We are here to help! #GetYourBellyOut is an award winning, patient-led, charitable organisation providing support, education and advocacy to a global community of 45,000 people.

Healthy Gut

SCD Lifestyle is a can-do blog that focuses on the “specific carbohydrate diet” as a healing approach to Crohn’s, colitis and IBDs - Healthline

Journal of Crohn's and Colitis

Journal of Crohn's and Colitis is concerned with the dissemination of knowledge on clinical, basic science and innovative methods related to inflammatory bowel diseases.

OstomyOutdoors.com

This blog chronicles my return to the world of outdoor adventures with a permanent ileostomy.

Ostomystory

Laura bravely, openly, and honestly about life with Ulcerative Colitis and an ostomy. Her videos include both helpful “how-to” demonstrations, personal experiences, and tips for dealing. Laura’s YouTube popularity even landed her a spot discussing ostomies on Tosh.0! - GBM

The Fecal Transplant Foundation

The purpose of fecal transplant is to replace good bacteria that has been killed or suppressed, usually by the use of antibiotics, causing bad bacteria, specifically Clostridium difficile, or C. diff., to over-populate the colon. Fecal transplant has also had promising results with many other digestive or auto-immune diseases, including Irritable Bowel Syndrome, Crohn’s Disease, and Ulcerative Colitis.

The Great Bowel Movement

The Great Bowel Movement is a social awareness movement with the goals of empowering patients associated with Inflammatory Bowel Disease (IBD) including Crohn’s Disease and Ulcerative Colitis, as well as J-Pouch and Ostomy, to embrace their disease, be proud of their experience, and spread awareness throughout their communities.

Uncover Ostomy

Uncover Ostomy is an awareness campaign sparking a positive conversation about the ostomy. We share positive stories and thought provoking images–dare we say sexy?–to spark this conversation. We invite you to share your comments and ideas on this website, on Facebook, on Twitter and everywhere that you engage with other people.

CDC

Neither ulcerative colitis nor Crohn's disease should be confused with irritable bowel syndrome (IBS), a disorder that affects the motility (muscle contractions) of the colon. Sometimes called "spastic colon" or "nervous colitis," IBS is not characterized by intestinal inflammation. It is, therefore, a much less serious disease than ulcerative colitis or Crohn’s disease. IBS bears no direct relationship to either ulcerative colitis or Crohn's disease.

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