Lupus
If you want to live a long life, get a chronic disease and learn how to take care of it - Sir William Osler
image by: Lupus Foundation of America
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What Is Lupus? 11 Things to Know About the Misunderstood Autoimmune Disease
If you’ve ever watched an episode of Grey’s Anatomy or heard Lady Gaga talk about the inspiration for her album Joanne (it was inspired by her aunt, who passed away due to complications from the autoimmune disease) chances are, you’ve probably heard of lupus. But how much do you actually know about the somewhat enigmatic disease?
According to the Lupus Foundation of America, lupus affects over 1.5 million Americans, yet research done by the Lupus Foundation shows 63 percent of Americans surveyed "knew little or nothing about this disease and its symptoms beyond the name." But don't worry — class is now in session, and we’ve got you covered with everything you didn’t know you needed…
Resources
Explainer: what is lupus and how is stress implicated?
We know from genetic studies that at least some risk of lupus is inherited from our parents, but we also know that inheritance explains only a fraction of the risk of getting lupus. So other factors must contribute.
Patient Voices: Lupus
Lupus is a mysterious disease, affecting the skin, joints, kidneys and many other organs. Ninety percent of those with lupus are women, and the disease is disproportionately common in minorities. Here, six people affected by lupus speak about their experiences.
What is my life expectancy if I have lupus?
While lupus can be an on-going source of discomfort, its outlook is generally positive. With appropriate treatment and frequent clinical follow-up, lupus organizations estimate that 80 to 90 percent of people with lupus will have a normal life expectancy.
Drug-induced subacute cutaneous lupus erythematosus associated with nab-paclitaxel therapy
Drug-induced lupus erythematosus (dile) includes several lupus-like syndromes that develop during continuous medication exposure and resolve after the associated medication is discontinued. To date, the pathogenic mechanisms by which implicated medications induce autoimmunity and lead to dile syndromes are incompletely understood.
A Person With Lupus Might Hold the Key to Developing An HIV Vaccine
Generally, you don’t want to contract another serious autoimmune disease when you’re already HIV-positive. But it turns out that a patient with the extremely rare combination of both lupus and HIV is creating antibodies that might one day lead to an effective HIV vaccine.
A Stress Link to Lupus
Compared to women without trauma, women with PTSD were almost three times as likely to have lupus. Exposure to trauma, even without having symptoms of PTSD, more than doubled the risk of developing the disease.
I have lupus. Here are 8 things I wish people understood about my disease.
While the laundry list of problems that are inherent to having an autoimmune disease might seem overwhelming, like anything in life, you eventually get better at coping. And the thing we need more than anything else from our family and friends is that you're understanding of our condition, and not resentful when the most adventurous thing we can do on a Friday night is hang out on the couch and chat.
Lady Gaga’s Lupus Face
For many years Lupus was thought to be a fatal disease; however that is a big misconception. In fact, the prognosis for Lupus is much better today than ever before.
The Male Faces of Lupus
Yes, it's a "woman's disease," and yes, some men have it.
What Is Lupus? 11 Things to Know About the Misunderstood Autoimmune Disease
There's actually more than one kind of lupus, and it can take a really long time to get a diagnosis.
Lupus News Today
Lupus News Today is dedicated to providing comprehensive coverage of news related to lupus.
National Resource Center on Lupus
A living collection of up-to-date resources and information on lupus.
Despite LUPUS
How to live WELL with a chronic illness.
DxLupus
This is a website designed and created for people who have lupus, those who share their lives, those who care for them, and everyone who wants to know more about lupus.
Kaleidoscope Fighting Lupus
It is our mission to EDUCATE the public and to INFORM the medical community about lupus, to ADVOCATE for earlier life-saving diagnosis, to SUPPORT people living with lupus and to COLLABORATE with government and foundations to fund research toward a cure.
Lupus Foundation of America
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
Lupus LA
Lupus LA, the West Coast division of the S.L.E. Lupus Foundation, promotes lupus research, awareness, and education, and serves the needs of people with lupus and their families in Los Angeles County.
Lupus Research Alliance
From among scientists at the most prestigious universities, medical schools, and hospitals throughout the world, we select and support the most promising research projects that we believe will treat, cure, and help prevent lupus.
Lupus Support
Meeting the needs of individuals-affected-by-lupus''.
Lupus Trust
This website contains information for medical professionals, patients and supporters.
Sick of Lupus
Spreading Lupus Awareness.
The Kelly Fund for Lupus
To educate, support and serve those affected by Lupus.
The Lupus Site
Here you'll find information on Lupus, including symptoms, diagnosis, tests, medications, news, complementary therapies, living with lupus & more!
BC Lupus Society
The Lupus Society is the only BC organization dedicated solely to providing lupus education and support services. We are committed to sponsoring research and providing hope for those affected by lupus.
International Congress on Systemic Lupus Erythematosus
The Congress will focus on highlighting the work of trainees and new faculty as well as strengthening international links to improve lupus treatment worldwide.
Italian Lupus Association
Extensive site covering lupus news and information.
Lupus Association of Belgium
Extensive website promoting the interests of those affected by Lupus.
Lupus Association of Denmark
Extensive lupus news and information.
Lupus Association of Germany
This website contains information for medical professionals, patients and supporters.
Lupus Canada
Lupus Canada is a national voluntary organization dedicated to improving the lives of people living with lupus through advocacy, education, public awareness, support and research.
Lupus Europe
Lupus Europe's mission is to make Lupus a well-known illness throughout Europe and, in partnership with the medical profession, secure high quality standards of treatment and support for people with lupus, their families and their careers.
Lupus Group Ireland
We are a registered voluntary charity which helps those with Lupus, supporting our members as required.
Lupus Legends
I hope by looking through my site you will learn a little about me and a whole lot about Lupus. It is important for everyone to know about this disease in the hopes of finding a cure.
Lupus UK
LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis.
MedicineNet
Lupus is an autoimmune disease characterized by acute and chronic inflammation of various tissues of the body. Autoimmune diseases are illnesses that occur when the body's tissues are attacked by its own immune system.
MedlinePlus
Anyone can get lupus, but women are most at risk. Lupus is also more common in African American, Hispanic, Asian and Native American women. The cause of lupus is not known.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
The immune system is designed to attack foreign substances in the body. If you have lupus, something goes wrong with your immune system and it attacks healthy cells and tissues.
TeensHealth
Lupus (pronounced: loo-pus) is a disease that involves the immune system and affects about 1.5 million Americans; nearly 90% of those diagnosed with the disease are female.
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