Chiari Malformation

They call us “Chiari Warriors” for a reason - Ella

Chiari Malformation
Chiari Malformation

image by: Chiari Malformation Awareness

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Hattie's Arnold Chiari Malformation diagnosis story

I was a normal 13 year old girl, I loved school and my teenage life was just beginning. I didn't really have a care in the world (apart from trying to steal all of Georgia's make-up and clothes). Everything was changing at this time in my life; I was really starting to grow up. In 2010 I started to get horrific headaches and begun to notice that my balance was getting really bad… ‘Oh it's just hormones!’, I always said to myself.

But then weirder things started to happen to me and I asked myself: ‘why can't I swallow properly without choking?, why do I have disabling headaches countless times a day?, why am I throwing up every morning?, why can't I walk without nearly falling over?,…

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 Hattie's Arnold Chiari Malformation diagnosis story

I was a normal 13 year old girl, I loved school and my teenage life was just beginning. I didn't really have a care in the world (apart from trying to steal all of Georgia's make-up and clothes). Everything was changing at this time in my life; I was really starting to grow up. In 2010 I started to get horrific headaches and begun to notice that my balance was getting really bad...

Bobby Jones CSF

CSF is a non-profit organization that was founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.

Chiari Fund

Chiari Fund is a nonprofit organization that is dedicated to helping those in need who have Chiari and/or Related Disorders.

Chiari Sisters

Welcome to Chiari Sisters. We are two sisters who both live with a serious rare neurological condition called Arnold Chiari Malformation. We have decided to create a blog to help support and inspire others living with an invisible illness or disability. We hope that by sharing our journey we will encourage you to share yours and in doing so we will gradually build a world of understanding and support for everyone our there silently suffering.

Chiari-Life

I was diagnosed with Chiari Malformation and Syringomyelia in 2003, I was 15 years old. I had decompression surgery that same year.

Conquer Chiari

The C&S Patient Education Foundation is a 501(c)(3) non-profit organization dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research. Conquer Chiari is our informal name, our goal, and our website.

Dave's Big Brain

My Chiari Malformation journey

It's All in my Head

My life with Chiari malformation.

Living with Arnold Chiari Malformation Type 1 (ACM1)

This is blog focuses strictly on living with an uncommon and silent disease. I am going to use this to catalog symptoms and my everyday emotions of dealing with Arnold Chiari Malformation Type 1.

My life with Chiari Malformation Type I

This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones.

Rebecca's Brain

This blog is about my individual journey with Chiari and all of its related disorders. I also hope to provide some helpful information along the way.

Spinal Cords Gone Wild

My experiences with mysterious, painful, Syringomyelia (SM), as well as resources for others with SM, Chiari, (Occult) Tethered Cord Syndrome, and related disorders.

The Chiari Institute

The Chiari Institute is the world's first comprehensive, multidisciplinary center for the management of patients suffering from Chiari malformation, a rare structural condition that affects the cerebellum; syringomyelia, a chronic disease of the spinal cord; and related disorders.

American Syringomyelia & Chiari Alliance Project

To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure.

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