A cluster headache is like sawing your arm off with a rusty saw with no anesthesia — Tyler Mann  


image by: Algie Vasculaire de la face/Cluster Headaches un combat de tous les jours

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What is a cluster headache? A first-person account of the most painful condition known to man

It wakes me from a deep sleep. The agony is all-encompassing. It feels like having a white-hot screwdriver thrust through my eyeball and left there. The screwdriver is then wired up to an electric current and the voltage is continually increased.

My sinus feels like it has been washed out with acid, my temple is swollen and hot, the area under my cheek burns, my upper jaw feels like I have a toothache in every tooth. Even the roof of my mouth is sore.

Most of the pain is focused on my eyeball: as well as the screwdriver, it feels like there is a red-hot metal ball, the size of a golf ball, directly behind it, pushing it out of the socket.

If only this was a migraine,…

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 What is a cluster headache? A first-person account of the most painful condition known to man

Cluster headaches often top online ‘most painful’ lists, beating gunshot wounds, childbirth and amputation without anaesthetic. What is it like to have ‘the beast’ inside your head? One sufferer shares his story

8 Things You Need to Know About Excruciatingly Painful Cluster Headaches

“Cluster headaches are debilitating, even for the toughest of individuals,” Dr. Weber says. “But they’re also very treatable.” Here’s everything you need to know about cluster headaches.


We exist to raise general awareness of Cluster Headache within the medical profession and the general public. We offer support and guidance to sufferers and their families...

Cluster Busters

Finding relief from cluster headache through research, education, advocacy and support.

Cluster Headache Support Group

The Cluster Headache Support Group, Inc. is a 501(c)3 non-profit organization dedicated to improving the lives of patients with cluster headache and other TACs through research, information, advocacy, and compassionate support.

Doc's Cluster Headache Journal

\ Welcome to Doc's cluster headache journal. This is a place for Doc and Katy to keep a record of his cluster headache cycles and any issues related to that. It also will serve as a resource as Katy works on her documentary film project on cluster headaches.

Cluster Kate

This is a blog about my life with Cluster Headaches, Chronic "tension type" headaches, Migraines, Trigeminal Neuralgia & newly diagnosed with Fibromyalgia. Frankly, I don't have a clue when or where pain the will strike, or what tomorrow has in store.


I have a rare neurological disease called "Cluster Headaches" or more commonly known as "Suicide Headaches" for obvious reasons. I am starting this blog to connect, help and provide assistance to others in need to help.


Cluster headaches occur as attacks of severe, one-sided headaches. Typically, a number of attacks occur over several weeks - a bout (cluster) of attacks. The headaches then usually go for weeks, months or years until a next cluster of headaches develops.

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