Idiopathic Intracranial Hypertension

What would you think if someone told you the disease you had was a “fat girls sickness”? Hurt? Self-conscious? Depressed? Suicidal? How can Idiopathic Intracranial Hypertension be a “fat girls sickness” if it affects men, children and slender women? Unfortunately no matter what we think, the doctors will always believe IIH is in fact a “fat girls sickness - Secilia

Idiopathic Intracranial Hypertension

image by: IIH UK National Charity
     

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Living with IIH

Imagine your head feels as though it's been crushed by a vice, a headache unlike anything you've ever felt before, where every part of your head hurts and the pressure is unbearable, and it's a pain no-one can see.

Imagine a world in permanent soft focus, where things come in twos, where things disappear momentarily, where you can't tell how deep a step is, where bright light is a pain you can't stand.

Imagine a world that sways around you, where you feel as though you're in the middle of a storm on a cross channel ferry, feeling dizzy and sick - yet you're standing still.

Imagine you're so totally exhausted that your body doesn't want to move and all you want to do…

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Last Updated : Monday, November 18, 2019