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What is Vasculitis?

What is Vasculitis?

As I am busy promoting awareness of my Charity Pop Concert and begging people to join me, it suddenly dawned on me that the people I am asking to support me, have no idea what this disease is, or how it effects anyone. Why would you know about it, when I only learnt of its existence eight months ago when I was given the diagnosis?

If you research the definition you will find something like ‘Vasculitis is a rare inflammatory disease which means inflammation of the blood vessels. Any vessels in any part of the body can be affected…’ It is an Auto-Immune disease, you may have heard of Lupus or MS, Vasculitis attacks the body in a similar way but can…

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 What is Vasculitis?

How rare is this disease? Well let’s put it this way – take £2.00 and play the lottery, you will have more chance of winning that than being diagnosed with Vasculitis.

ANCA Vasculitis News

ANCA Vasculitis News is strictly a news and information website about the disease.

Lauren Currie Twilight Foundation

UK support for vasculitis awareness, education. research and patient support.

Vasculitis Foundation

The Vasculitis Foundation has developed this resource to assist patients, family members and medical professionals in learning about vasculitis. VF welcomes and encourages you to use this site to find and share information.

Vasculitis Foundation Canada

Vasculitis Foundation Canada mission is to encourage and support research efforts for the cause and cure for all forms of vasculitis.

Vasculitis UK

Here you will find a wealth of accurate and up to date information about everything to do with vasculitis. This site is for everyone; whether you have a casual or a more direct interest. Vasculitis UK is run by people with vasculitis for people with vasculitis and for their families and careers.

European Vasculitis Society

EUVAS is an open collaboration of physicians interested in research and education in vasculitis.

Living with Vasculitis

I am a 19 year old female who has been living with a rare medical disorder called vasculitis and an underlining immune system disorder called common variable immune deficiency. It has been challenging and scary but it has made me the person I am today and has taught me so much.

The Prednisone Project: Living With Vasculitis

This blog is for all of you out there living with some unkillable monster inside of you. It does not have to be Vasculitis. This blog with cover my daily struggles and triumphs with Vasculitis, as well as advice on diet, exercise, and medicine.

American College of Rheumatology

We do not know what causes most types of vasculitis. Genetic factors (different genes) appear be somewhat important in the disease. Vasculitis is thought to be an autoimmune disease, which means the body comes under attack by its own immune system. In vasculitis, the immune system attacks blood vessels.

Cleveland Clinic

The precise treatment of vasculitis depends on the specific type of vasculitis and the areas/organs that are involved. Some measures that may be necessary include the use of steroids, such as prednisone. For more serious types of vasculitis, cytotoxic (causing a toxic effect in the cells) medications are used.

Johns Hopkins Vasculitis Center

The vasculitic diseases are serious disorders, and often require potentially dangerous treatments. For our readers’ benefit, we discuss most of the potential side—effects of medications used in the treatment of vasculitis. All of the medicines have a frighteningly long list of possible side—effects, but we emphasize that many of the side—effects can be avoided through careful management by experienced physicians.


Vasculitis is an inflammation of your blood vessels. Also called angiitis, vasculitis causes changes in the walls of your blood vessels, including thickening, weakening, narrowing and scarring. Inflammation can be short-term (acute) or long-term (chronic) and can be so severe that the tissues and organs supplied by the affected vessels don't get enough blood. The shortage of blood can result in organ and tissue damage, even death.


Each of the vasculitis diseases is defined by certain patterns of distribution of blood vessel involvement, particular organ involvement, and laboratory test abnormalities. As a group, these diseases are referred to as vasculitides.


Symptoms of vasculitis can vary, but usually include fever, swelling and a general sense of feeling ill. The main goal of treatment is to stop the inflammation. Steroids and other medicines to stop inflammation are often helpful.


Vasculitis describes a condition in which there is inflammation of the blood vessels. They may be damaged by the inflammatory process. Vasculitis can be primary, or secondary (as a result of infection, or in association with some chronic diseases including rheumatoid arthritis).

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