Pulmonary Fibrosis
So, don’t let ANYONE tell you that they know how long you are going to live. You are alive today. You are living with pulmonary fibrosis. Living. Treasure that - David Lederer MD
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The Internet Said I Have 3 Years to Live
I’ve been having a hard time writing this post about “prognosis”, or how long you might expect to live with Pulmonary Fibrosis. It’s a tough subject. After struggling for about 30 minutes, I realized two things:
Number one – my difficulty writing about prognosis is a pebble in comparison to your mountain of difficulty living with Pulmonary Fibrosis. So I’m going to stop complaining right now.
And number two – it’s difficult to write about prognosis because…. Well, because prognosis is a lie. A myth. Let me explain.
I first need to tell you that all that stuff on the internet about a short survival time in Pulmonary Fibrosis comes from studies of…
Resources
Living With The Terminal Lung Condition You’ve Never Heard Of
We can make real progress in finding treatments for IPF but more people need to be aware of it to hopefully donate to research.
7 Things Everyone Should Know about Pulmonary Fibrosis
There are a number of known causes of pulmonary fibrosis as well as unknown causes, called idiopathic. Exposure to toxins like asbestos, or coal dust or silica (including workers in the coal mining and sandblasting industry) can lead to pulmonary fibrosis.
I.P.F., Not Aging, Could Be Causing Breathlessness
On average, it takes patients with I.P.F. two years to be diagnosed correctly. People often attribute their breathlessness to lack of fitness or advancing age because I.P.F. is typically a disease of older people.
New Treatments for Deadly Idiopathic Pulmonary Fibrosis
Recently approved drugs and new therapies are helping people keep lungs functioning longer.
The Internet Said I Have 3 Years to Live
I’ve been having a hard time writing this post about “prognosis”, or how long you might expect to live with Pulmonary Fibrosis. It’s a tough subject. After struggling for about 30 minutes, I realized two things...
Lungs & You
If you’re looking for information on idiopathic pulmonary fibrosis (IPF), you’ve come to the right place.
Pulmonary Fibrosis: Clearing the air
A doctor blogging about Pulmonary Fibrosis, Interstitial Lung Disease, Prednisone, Oxygen, and Lung Transplantation for patients and their caregivers. No one is average. Demographics are not destiny. Doctors are not fortune tellers.
Pulmonary Fibrosis Foundation
The Pulmonary Fibrosis Foundation mobilizes people and resources to provide access to high quality care and leads research for a cure so people with pulmonary fibrosis will live longer, healthier lives.
Pulmonary Fibrosis MD
Pulmonary Fibrosis MD is an educational resource for patients, caregivers, friends, and family members interested in learning about Idiopathic Pulmonary Fibrosis or IPF.
Pulmonary Fibrosis Trust
The Pulmonary Fibrosis Trust was established in 2012 to raise awareness of pulmonary fibrosis and to support patients with the condition in the UK. The site is concerned mainly with what the trust is doing to raise funds and how those funds are being used to help people with Pulmonary Fibrosis.
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