Hip Dysplasia
The subject of delayed diagnosis of Hip Dysplasia is an emotive one. Make no mistake, there are quite number of very angry people out there who are living with long term pain and disability or early hip replacements as a result of their missed diagnosis - Hipster Life
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What is it?
'What is it?' our brains want to know. Is it good, bad? It is going to kill me? What does it mean and how should I act in light of this piece of information...
This is similar to what happened to me with my long route to diagnosis of hip dysplasia. From that first groin strain I noticed when sitting cross legged on my friend's couch at 22, through to the registrar I saw four years later mumbling "yeah, it's hip dysplasia..." as he prodded the x-ray on the screen in front of us with his finger; right through to that final, fateful appointment years down the line, after three previous surgeries, when I finally received a definitive diagnosis & explaination of what I should expect in…
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What Is Hip Dysplasia? All About Paulina Porizkova's Condition And Surgery
Over the past few years, supermodel Paulina Porizkova has opened up on Instagram about the trouble she’s had with hip pain. Now, she’s sharing news about her hip replacement surgery, which she is undergoing due to her congenital hip dysplasia.
Why is Adolescent & Adult Hip Dysplasia so hard to diagnose? (Mark 2)
Somebody asked me a while ago "What is the one reason that people have such difficulty gaining a diagnosis of Hip Dysplasia in adolescence and young adulthood?" I found it a really hard question to answer because I don't think there is just one reason why this seems to happen, but lots of interconnecting reasons.
Articles of Interest
Adults and Adolescents can have Hip Dysplasia too
Hip Dysplasia can develop from adolescence or from a residual infant diagnosis, even if earlier treatment has been successful (Lee et al, 2013; Okano et al, 2015; Pun, 2016). Dysplasia needs to be in your differential diagnosis when seeing a young adult patient with recurring hip or groin pain.
Developmental dysplasia of the hip: What has changed in the last 20 years?
Developmental dysplasia of the hip (DDH) describes the spectrum of structural abnormalities that involve the growing hip. Early diagnosis and treatment is critical to provide the best possible functional outcome. Persistence of hip dysplasia into adolescence and adulthood may result in abnormal gait, decreased strength and increased rate of degenerative hip and knee joint disease. Despite efforts to recognize and treat all cases of DDH soon after birth, diagnosis is delayed in some children, and outcomes deteriorate with increasing delay of presentation.
Hip instability: a review of hip dysplasia and other contributing factors
Although hip instability is classically been associated with developmental dysplasia of the hip, multiple other factors may contribute to an unstable hip. In addition to acetabular bony coverage, these factors include femoral torsion, femoroacetabular impingement, and soft tissue laxity. A number of physical examination tests and radiological parameters may be used to correctly diagnose the pathology contributing to a patient’s unstable hip.
Understanding Hip Dysplasia
If you have hip dysplasia, you are not alone! Its the most common cause of hip arthritis before the age of 50. Nine out of ten cases of hip dysplasia are diagnosed during adolescence or adulthood. Doctors are more and more aware of this common condition that often escapes detection during childhood. In fact, this silent form of hip dysplasia is the reason for 5% to 10% of all total hip replacements in the USA.
Resources
Hip Dysplasia Life
A how-to guide for surviving and thriving with hip dysplasia, for you and your family.
International Hip Dysplasia Registry
The International Hip Dysplasia Registry (IHDR) study group is an international collaboration of surgeons and medical professionals dedicated to improving the lives of children with hip dysplasia.
Miles4Hips
We are dedicated to raising awareness of adolescent and adult hip dysplasia, supporting the efforts of the International Hip Dysplasia Institute (IHDI), providing information and resources for the adolescent and adult hip dysplasia community, and promoting the enjoyment of movement and miles in all people for healthy hips and minds.
Help for Hip Dysplasia
Help for Hip Dysplasia provides generalised information, and is not intended to replace the advice of your Consultant...
Help for Hip Dysplasia Podcast
This podcast is about all things dysplasia and includes personal stories, interviews with the specialists, and with people with hip dysplasia.
Hipster Life
Hip dysplasia from a patient's perspective.
I'm a HIPpy
To improve hip health, mobility, and quality of life in children with Hip Dysplasia and other hip conditions, globally.
International Hip Dysplasia Institute
It is the mission of the International Hip Dysplasia Institute to reduce the physical, social, and economic burden for children and adults affected by neonatal hip instability and developmental dysplasia of the hip.
Adult Hip Dysplasia Group
I have started this group for anyone who has been diagnosed with Congenital/ Developmental Dysplasia of the Hip and are considering, going into, or recovering from surgery. I have gathered info about treatment and support.
DDH UK Support Network
DDH UK is a support network is a closed group that offers support and information for anyone on their hip dysplasia journey
Peri-Acetabular Osteotomy (PAO) UK Based Group
The page has been set up purposefully for UK based members who have been diagnosed with Hip Dysplasia and are undergoing PAO surgery to talk about experiences, share hints and tips, tears and tantrums throughout this somewhat daunting and lengthy process.
