Periodic Paralysis
PP is so very complex..... It is confusing.....there are different forms...the cause of the symptoms and paralysis are due to different processes. Some of the symptoms are the same and some are different - Susan Q.Knittle-Hunter
image by: Periodic Paralysis Network, Inc
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Conversion Disorder vs Periodic Paralysis
Although it took me 62 years to get a diagnosis, statistics indicate it takes approximately 20 years for someone to get a diagnosis for Periodic Paralysis. This is inexcusable and is due to several factors. First, everything else must be ruled out and secondly, because it looks “fake” to doctors. One of the physicians, who originally diagnosed me, told me that of the few patients he has had with Periodic Paralysis, they were all diagnosed with “conversion disorder” before they got their diagnosis. I myself received this diagnosis, as did most of the 125 members of my Periodic Paralysis Network Support and Education Group.
This did not happen 100 or 50 years ago, but in the past few…
Resources
A Total Collapse
“Can you help me?” The 52-year-old father called out to his son, who was asleep in the other bedroom. It was nearly midnight, and the man, awakened from sleep, tried to get up to go to the bathroom. When he stood, he was surprised to find that his legs had no strength, and he fell.
Case Study of the Week: Hypokalemic Periodic Paralysis
The other day in the ER I diagnosed Hypokalemic Periodic Paralysis in a patient for the first time. Really, it was an accident. I ordered lab work on this particular individual hoping it would give me some insight into this usually healthy patient's symptoms.
Insider Tips on Periodic Paralysis: Issues in Developing a Comprehensive Treatment Plan
The three disorders that comprise periodic paralysis are hypokalemic periodic paralysis (hypoPP), hyperkalemic periodic paralysis (hyperPP) (which can occur with or without paramyotonia congenita), and Andersen-Tawil Syndrome (ATS). Related diseases of ion channels that are often discussed and sometimes misdiagnosed as periodic paralysis (and vice versa) include potassium-aggravated myotonia, myotonia congenita, and episodic ataxia, among others.
Jessica’s Journey with Hypokalemic Periodic Paralysis
A genetic defect causing my potassium to be “sucked into” my muscles and out of my blood stream quickly, sends my heart racing. The defect in muscle ion channels leaves my muscles stiff, swollen and unable to move. Although not much can be done to prevent further attacks including taking potassium supplements daily (but I still take them) and there is no cure for my disease at this time...
Living With Periodic Paralysis: The Mystery Unraveled
There are no known cures, but there are treatments/drugs for some forms (Hypokalemic Periodic Paralysis and Hyperkalemic Periodic Paralysis) which can be and are successful for some individuals. The type I have, however, has no traditional medications, which can alleviate the symptoms, but by avoiding the triggers and by using some natural methods, the number of paralytic episodes can be reduced and the severity of the episodes can be lessened.
Potassium Paralysis
These strange paralytic conditions have been described for nearly a century. Patients can often learn to prevent attacks by avoiding strenuous exercise, which can cause swings in potassium levels, and eating foods that are either high or low in potassium.
What Is Periodic Paralysis?
PP is so very complex..... It is confusing.....there are different forms...the cause of the symptoms and paralysis are due to different processes. Some of the symptoms are the same and some are different.
Conversion Disorder vs Periodic Paralysis
Although it took me 62 years to get a diagnosis, statistics indicate it takes approximately 20 years for someone to get a diagnosis for Periodic Paralysis. This is inexcusable and is due to several factors. First, everything else must be ruled out and secondly, because it looks “fake” to doctors. One of the physicians, who originally diagnosed me, told me that of the few patients he has had with Periodic Paralysis, they were all diagnosed with “conversion disorder” before they got their diagnosis. I myself received this diagnosis, as did most of the 125 members of my Periodic Paralysis Network Support and Education Group.
Symptoms and Causes of Hypokalemic Periodic Paralysis
The purpose of this blog is to collate all the key information regarding Hypokalemic Periodic Paralys, its symptoms, side effects and treatment.
Living with Periodic Paralysis: The Blog
This blog is designed to educate the world about Periodic Paralysis a rare, inherited, hard to diagnose, debilitating and cruel metabolic disorder. I have a variant of this condition and my life is filled with constant challenges as I attempt to manage my symptoms to stay alive.
Periodic Paralysis International
We are mission-driven, independent and not-for-profit. Our website reflects our mission to make medically accurate, up-to-date information about the periodic paralyses accessible to patients, caretakers and physicians
Periodic Paralysis Network
The Periodic Paralysis Network, Inc., also known as PPNI was founded in 201l. It is an on-line organization with a multifaceted forum designed to provide hope through support, education and advocacy to individuals with all forms of Periodic Paralysis and their family members and to educate all medical professionals on how to recognize, diagnose and properly treat their patients in a timely manner, using all natural and drug-free methods.
Effer-K
For therapeutic use in patients with hypokalemia with or without metabolic alkalosis; in chronic digitalis intoxication; and in patients with hypokalemic familial periodic paralysis.
Periodic Paralysis Association
The Periodic Paralysis Association is a Non-profit Charitable Corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the Periodic Paralysis Community.
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