Myasthenia gravis

I just hopped on this rollercoaster and through my trials and tribulations I hope to be the strongest me I can be - Me and MG - Riding the Myasthenia Rollercoaster

Myasthenia gravis

image by: Conquer Myasthenia Gravis

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"You look great today"...umm yeah...

Oh how many times have i heard those words uttered? Way too many to count... or you sound great, or "that's a handicapped spot!"...really? I didn't realize that when i put my placard up. Like i want to use the spot. Like i want to HAVE to use the spot. 

My entire life, I have struggled with the proper response to compliments. "Did I sound appreciative?" "I hope my thank you didn't sound egotistical." But now, with an autoimmune disease, I have no idea how to respond. Of course the first two words are easy...a simple "thank you." 

But then my mind starts going...do I explain that it took hours of rest before i had enough energy to leave the house? Do I go into the intricate…

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Resources

 "You look great today"...umm yeah...

Oh how many times have i heard those words uttered? Way too many to count... or you sound great, or "that's a handicapped spot!"...really?

4 Tips on Celebrating a Holiday Alone

Like other friends of mine with MG, lupus, multiple sclerosis, and other illnesses, I have to weigh the joys of being with loved ones against the risks of getting a cold or the flu, which can lead to relapses, hospitalization, and weeks (or months) bedridden.

MG United

MG United began as a conversation with people in the MG community. This is what we heard. And it’s why we’re here.

Myaware

Myaware is the name for the Myasthenia Gravis Association. MGA has been around since May 1976. We support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff.

Life with Myasthenia Gravis (MG)

A page about how my life is affected by Myasthenia Gravis (MG).

Me and MG - Riding the Myasthenia Rollercoaster

My story of living with a chronic neuromuscular disease.

Myasthenia Gravis Blog

Myasthenia Gravis Symptoms,ID Bracelets, Discussions ,Books, News, Videos and Links to Resources

Myasthenia Gravis News

Myasthenia Gravis News is strictly a news and information website about the disease.

Myasthenic Research UK

The support network for myasthenic children, young people and their families.

The Myasthenia Kid...

Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type.

Understanding gMG

gMG can make daily activities a daily struggle. gMG is a rare disease that leads to muscle weakness and can impact daily tasks. While symptoms may start small, over time their impact can grow to be unmanageable.

WomenWithMG.org

WMMG was founded in January of 2013 with the primary purpose of offering support to women diagnosed with MG. We were the first support group created to address the specific needs of women with MG. We also work to raise awareness about MG and provide support to the wider MG community through our website here, and our Friends & Family group.

European Association of Myasthenia Gravis

EuMGA has the aims to: Promote the health and welfare of sufferers from Myasthenia Gravis, Lambert-Eaton Myasthenic Syndrome, Congenital Myasthenic Syndrome and other similar diseases of the human neuromuscular junction in the Countries of Europe. Assist and encourage the formation and development of not-for-profit organizations of patients suffering from these diseases, and their carers, in the Countries of Europe

LEMS.com

Comprehensive online resource for patients and their families regarding Lambert Eaton Myasthenic Syndrome (LEMS).

MDA

MDA leads the search for treatments and therapies for myasthenia gravis (MG). The Association also provides comprehensive supports and expert clinical care for those living with MG.

Myasthenia Gravis Association of Queensland

The objectives of the Association are to be a support group for sufferers of Myasthenia Gravis (MG), and to raise awareness of MG and raise funds for research into MG.

Myasthenia Gravis Foundation of America

The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers through a network of chapters, support groups and programs.

Myasthenia Gravis Society of Canada

We have been operating as an MG advocacy group for over forty years. We see ourselves as an MG support organization whose core purpose is: 1.To support MG diagnosed patients, their families, friends and caregivers, 2.To educate everyone to what MG is including the medical profession, 3.To support MG diagnosed patients, their families, friends and caregivers,

Conquer MG

Conquer Myasthenia Gravis (formerly known as the Myasthenia Gravis Foundation of Illinois) was founded in 1972 by a grass roots group of caring patients, family members and physicians who wanted to help patients achieve the best quality of life, while living with and managing their MG.

National Institute of Neurological Disorders and Stroke

Myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by varying degrees of weakness of the skeletal (voluntary) muscles of the body. The name myasthenia gravis, which is Latin and Greek in origin, literally means "grave muscle weakness." With current therapies, however, most cases of myasthenia gravis are not as "grave" as the name implies. In fact, most individuals with myasthenia gravis have a normal life expectancy.

MayoClinic

Though myasthenia gravis can affect people of any age, it's more common in women younger than 40 and in men older than 60.

MedicineNet

The disease prognosis is highly variable; some patients have complete remission (about 50% with thymus surgery), others have relatively normal lives with continued treatment, and others have a poor prognosis as the disease advances.

MedlinePlus

Common symptoms are trouble with eye and eyelid movement, facial expression and swallowing. But it can also affect other muscles. The weakness gets worse with activity, and better with rest.

NHS

Myasthenia gravis is a rare long-term condition that causes certain muscles to become weak. It mainly affects muscles that are controlled voluntarily – often those controlling eye and eyelid movement, facial expression, chewing, swallowing and speaking. Sometimes, the muscles that control breathing, neck and limb movements are also affected.

Patient

Myasthenia gravis (MG) was first described by Thomas Willis in 1672. It is an acquired autoimmune disease with antibodies against the nicotinic acetylcholine receptor (AChR) at the neuromuscular junction or muscle-specific tyrosine kinase (MuSK).[1] This leads to muscular weakness with easy 'fatiguability', which is worse on exercise and improves with rest.

WomensHealth.gov

MG can affect any muscle, but the muscles that control eye and eyelid movement, facial expression, and swallowing are most often affected. In some people, the first symptom is weakness of the eye muscles. In others, having a hard time swallowing, talking, and breathing can be the first signs.

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