Cutaneous T Cell Lymphoma

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Cutaneous T Cell Lymphoma
Cutaneous T Cell Lymphoma

image by: Cutaneous Lymphoma Foundation

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Thank God for Medicare

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All I can say is “thank God for Medicare” as I have recently started my third face-off with cancer.

Ten years ago my family doctor discovered an enlarged prostate gland and further tests showed I had early stage prostate cancer.

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 Thank God for Medicare

Initially, the type of CTCL the doctors thought I had was classified by the name of mycosis fungoides (and let me assure you that the “fun” part is grossly exaggerated), but just recently the diagnosis has been changed to Sezary Syndrome, an even rarer form of lymphoma. This type of lymphoma affects the skin and since the skin is our biggest organ, it’s a head to toe experience!

Journey Through Mycosis Fungoides

My journey through diagnosis, treatment and hopefully remission of cutaneous t-cell lymphoma, specifically mycosis fungoides.

My Battle w/Mycosis Fungoides & Sezary Cell Syndrome

CTCL-Lymphoma Cancer also known as Mycosis Fungoides This is my story of the graciousness of God and the support of friends and my wonderful family!

Cutaneous Lymphoma Foundation

The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person affected by cutaneous lymphoma by promoting awareness and education, advancing patient care and fostering research for the best possible outcomes.

International Society for Cutaneous Lymphomas

Dedicated to the treatment, research and caring of patients with cutaneous lymphomas.

Lymphoma Research Foundation

T-cell lymphomas account for approximately 15 percent of all NHLs in the United States. There are many different forms of T-cell lymphomas, some of which are extremely rare. Most T-cell lymphomas can be classified into two broad categories: aggressive (fast-growing) or indolent (slow-growing). One of the most common forms of T-cell lymphoma is cutaneous T-cell lymphoma (CTCL),

United States Cutaneous Lymphoma Consortium

The United States Cutaneous Lymphoma Consortium (USCLC) is a multidisciplinary professional organization dedicated to improve the quality of life and prognosis of patients with cutaneous lymphomas through discovery and application of new knowledge.


CTCL is a rare cancer affecting white blood cells called T-lymphocytes (T-cells). T-cells are important to your immune system, which helps the body fight infection. When T-cells start to grow too quickly, they can accumulate in the body, causing a cancer called T-cell lymphoma. T-cell lymphoma primarily affecting the skin is called CTCL. Thanks to recent treatment advances, many patients are able to maintain their quality of life while managing their CTCL, and some are able to remain in remission (cancer stops growing) for long periods of time.

DermNet NZ

Mycosis fungoides is the most common type of CTCL and accounts for almost 50% of all primary cutaneous lymphomas. The second most common group of CTCL is primary cutaneous CD30+ lymphoproliferative disorders.


The diagnosis of early mycosis fungoides often needs integration of clinical, histological and molecular features, since it can be confused with benign eczematous skin disease.


Sézary syndrome abbreviated as SS is an erythrodermic type of cutaneous T-Cell lymphoma (CTCL) which is a term that includes all groups of cutaneous lymphomas that arise from T-lymphocytes.

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