The most common early sign of childhood eye cancer is a white glow in the pupil of the affected eye. The cancer is easy to diagnose and when treated early, is very curable - We C Hope


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A Few Things I’ve Learned on Our Journey with Retinoblastoma

Here are a few things I’ve learned on Khloe’s two and a half year journey with cancer that I’d like to share with other parents:

Don’t think that it won’t happen to you. It sounds cliché, but it’s true. It never occurred to me that cancer would hit our family. My heart would always go out to friends and other family members who were battling cancer or another serious health condition, but I never imagined it would happen to my family. Because of that, it took me a really long time to mentally process what was happening.

Be an advocate for your child. Regardless of whether your children have a serious health condition or not, learn how to be an advocate for them. It takes…

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 A Few Things I’ve Learned on Our Journey with Retinoblastoma

Like many four-year-olds, my daughter recently started attending preschool. It’s an exciting milestone for any parent, but for me, it was an achievement that I wasn’t certain my daughter Khloe would attain. That’s because Khloe has bilateral retinoblastoma, which is an advanced form of cancer in both of her eyes. When children have this disease, there is a possibility of them losing their eyes.

World Eye Cancer Hope

Increasing access to specialist care will bring the promise of life and sight to every child, and improved life-long health to survivors. This is our mission.

Pediatric Retinoblastoma

Pediatric retinoblastoma is often missed during routine wellness check-ups by pediatricians. I have developed this website to build pediatric retinoblastoma awareness and to help parents identify pediatric retinoblastoma warning signs. Please share this resource with other parents, teachers, and child caregivers to help save a child's life.


Retinoblastoma is a malignancy of the retinal cell layer of the eye. It is the most common eye tumor in children and it usually occurs before the age of five. It can occur in one eye (unilateral) or in both eyes (bilateral). Retinoblastoma is usually confined to the eye and has not spread to other tissues. The present challenge for those who treat retinoblastoma is to prevent blindness and other serious effects of treatment that reduce the life span or the quality of life after treatment.


Retinoblastoma occurs when there is a mutation to the retinoblastoma gene (RB or RB1). This is a tumor suppressor gene that acts as a brake on cell division. This gene is present in all cells in the body. There are two copies of the RB1 gene in each cell. This gene is located on chromosome 13q. In order for retinoblastoma to occur, both copies of the gene need to have the mutation.

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