Sarcoma
Don't give up the fight. Elsa never did - Living with a Sarcoma
image by: Stick it to Sarcoma Foundation
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What I Want Others To Know This Sarcoma Awareness Month
July 1st marks the beginning of what now and forevermore will be a very important month for me: Sarcoma Cancer Awareness Month. On July 1st of last year, the word “sarcoma” was not even a part of my vocabulary. It wasn’t until the middle of July that I would become a sarcoma cancer fighter and, believe me, my awareness of the disease has been peaked!
I think so many of us are like that whether we be in and out of the healthcare industry. My primary care doctor, radiologist, and first surgeon had never seen a sarcoma tumor before. I only had one friend who knew what it was due to her brother having battled it. And almost every other person that I have spoken with doesn’t have…
Resources
Sarcoma–The standard-bearer in cancer discovery
Sarcoma is a rare tumor type that occurs most frequently in connective tissue. Despite its uncommon occurrence, sarcoma research has provided the means for groundbreaking research that has advanced our understanding of general cancer mechanisms. It is through sarcoma research that the pioneering efforts of cancer immunotherapy were explored, that we understand the inherent genetic nature of cancer mutations, and that we appreciate the subclassification of general cancer types to make more accurate prognoses.
A Dancer Battles the 'Forgotten Cancer'
The primary lesion where the cancer first appeared can be in a variety of places such as the bones, muscles, or nerves, and depending on the flow of blood the cancer can repeatedly recur or metastasize anywhere in your body. Also, you can have sarcoma break out in places deep inside your body and still not find tumor markers in your blood. This makes using diagnostic imaging difficult. And there are no effective anti-cancer treatments against most sarcomas.
A Letter to Vice President Biden
My name is Brendan Locke. January 14, 2016, was the worst day of my life. My wife who otherwise is and was very healthy was diagnosed with stage 4 synovial sarcoma. This cancer only touches 1 out of 1 to 2 million people per year and hers is even more rare. Supposedly, there are only 200-300 cases like hers in the world.
ELSA
Elsa asked me several times to let everyone who reads her blog know that she could not post any longer. For the past few weeks, and months, she used all her strength to continue fighting, to make sure that the disease that ravaged her body would get all the fight-back she could muster.
From Jimmy
I am sharing this not for sympathy for me. I am sharing this for all of the people who take the time to read this. No matter how much life seems to make you angry, money problems, someone cuts you off on the road, dealing with brain dead idots. Be VERY thankful you are alive and your family is healthy. Life is good. Enjoy every second. My wife has been a rock in the past week, and has done a wonderful job of expressing what we are dealing with. Bottom line, be thankful for what you have. I am. It can get worse. FAST. So please, relax, tell everyone you love them, it's okay. Enjoy life!!
It Looked Like a Beer Belly. It Turned Out He Had a 77-Pound Tumor.
For months, Hector Hernandez, 47, didn’t understand why his stomach had gotten so big. “I just thought I was fat,” he said. “I’ve always been a big guy.” It would be a year and a half before he discovered that his large belly was actually a 77-pound tumor. In the meantime, he watched as it grew and grew.
Living With Sarcoma
Cancer isn’t all doom and gloom - although there is a fair amount of that thrown in - there are highs (not all of them caused by morphine) as well as lows. And after all was finished, the net result might even be that I’m a better person for going through it.
Portraits Of Sarcoma Patients Challenge Body Image Perceptions After Cancer
‘When I look at myself in the mirror it reminds me what I’ve been through.’
What I Want Others To Know This Sarcoma Awareness Month
My primary care doctor, radiologist, and first surgeon had never seen a sarcoma tumor before. I only had one friend who knew what it was due to her brother having battled it. And almost every other person that I have spoken with doesn’t have any idea what it is. I certainly didn’t until I was diagnosed. It is a privilege to be sharing facts about sarcoma with you today
Eric D. Davis Sarcoma Foundation
The Eric D. Davis Sarcoma Foundation is dedicated to finding a cure for sarcoma, a rare cancer, by increasing public awareness, funding sarcoma research, and ensuring improved therapies for patients diagnosed with the disease.
Kylee’s Dancing Angels
Kylee’s Dancing Angels is a non-profit Foundation, established in honor and memory of Kylee Brooke Webster, who lost her battle to sarcoma in October 2013. Through fundraising efforts and the establishment of partnerships with people and organizations that Kylee held close to her heart, we hope to make a positive difference in the lives of others who have been diagnosed with sarcoma.
Liddy Shriver Sarcoma Initiative
The Liddy Shriver Sarcoma Initiative was founded in 2003. Its mission is to improve the quality of life for people dealing with sarcomas around the world. The Initiative increases public awareness of sarcoma, raises funds to award research grants, and provides support and timely information to sarcoma patients, their families, and medical professionals.
Living with a Sarcoma
When I first heard of Sarcomas I was being diagnosed with one. That was seven years ago. At the time I did not associate any malignancy to the word sarcoma. I though that my retroperitoneal liposarcoma was just a harmless mass of fat. Here you'll find out how I deal with my recurrent retroperitoneal liposarcoma.
Rein in Sarcoma
Rein in Sarcoma is dedicated to educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.
Rutledge Cancer Foundation
Rutledge Cancer Foundation Works To Ease The Impact Of Cancer On The Lives Of Teens And Young Adults, Raise Survival Rates And Find A Cure For Sarcomas And Other Solid Tumor Cancers.
Sarcoma UK
This site is a resource for sarcoma patients in the UK. We offer basic information about sarcoma but we do not attempt to duplicate what is being provided well elsewhere - we provide links on the appropriate pages.
Sarcoma Warriors
Sarcoma Warriors was formed as a way to show support for sarcoma patients during a local charity 5-K run in the summer of 2010. A team of people consisting of patients and their families, physicians, nurses, and medical personnel was assembled to support the mission of the race, but more importantly to have fun.
Stick It To Sarcoma Foundation
Stick It To Sarcoma was created to help raise awareness and assist with funding in the fight to find a cure for sarcoma. Less than 1% of cancer funds are used towards sarcoma research.
The Kristen Ann Carr Fund
The Kristen Ann Carr Fund provides grants for cancer research and seeks to improve all aspects of cancer patient life with an emphasis on adolescents and young adults.
Journey of a Sarcoma Patient
Our family's journey down the road called Cancer. My 46 year old, healthy husband, was diagnosed in February 2013 with an undifferentiated pleomorphic, high-grade sarcoma, a rare tumor, in his left leg.
Kristine Becker's Sarcoma Story
Since her first diagnosis Kristine endured: 7 rounds of intense chemotherapy, one of which caused severe hallucinations; Heart and vascular surgery to remove several tumors from her Superior Vena Cava and the veins behind her right clavicle; 37 rounds of radiation to her back; Metastatic tumor in her lung and brain; Brain surgery to remove a large tumor from her right frontal lobe; Paralysis on the left side of her body as a result of a blood vessel rupture that was caused by the brain tumor...
Northwest Sarcoma Foundation
The NW Sarcoma Foundation is a non-profit organization committed to providing education and support to patients and families who are living with this specific cancer.
Sarcoma
This journal provides a central forum for the description of advances in diagnosis, assessment and treatment of this rarely seen, but often mismanaged, group of patients. It is of interest to all those working with bone and soft tissue tumours, including medical, surgical and paediatric oncologists, radiotherapists, pathologists and research scientists.
Sarcoma and Bone Cancer Research Foundation Association
Provides information on these rare diseases and support for those that are living with these diseases in addition to information on new treatment trials.
Sarcoma Foundation of America
The mission of the Sarcoma Foundation of America (SFA) is to act as an advocate for increased research to find new and better therapies with which to treat patients with sarcoma. The SFA raises its own funds to provide research grants to sarcoma researchers.
Sarcoma Oncology Center
This booklet was written to provide information about how soft tissue sarcoma is currently being treated at the nation’s leading cancer centers. You can use this information to better understand your type of sarcoma and your treatment options and ultimately, to become an active, informed participant in your care.
Sarcoma.org
Soft tissue sarcomas are a heterogeneous group of tumors arising from the supporting extraskeletal mesenchymal tissues of the body–i.e., muscle, fascia, connective tissues, fibrous tissues, and fat. They are rare lesions, constituting less than 1 percent of all cancers.
Synovial Sarcoma Survivors Network
We are synovial sarcoma survivors, here for your support.
American Cancer Society
Detailed Guide: Sarcoma - Adult Soft Tissue Cancer
Cancer Council
There are over 70 types. They're named after the abnormal cells that make up the sarcoma. The most common type is malignant fibrous histiocytoma (MFH), which is made up of many abnormal spindle-shaped cells. Liposarcoma is the next most common type of soft tissue sarcoma.
Cancer Research UK
This section of CancerHelp UK is about soft tissue sarcomas. It includes information about causes and symptoms of soft tissue sarcomas, treatment, living with soft tissue sarcomas, and questions for your doctor.
Cancer.Net
How long a person lives with sarcoma depends on many factors, including the size of the tumor, where it is located, the type, the mitotic rate (how fast the tumor cells are growing and dividing), and whether it is superficial or deep (see Staging). If the sarcoma is diagnosed at an early stage and hasn’t spread from where it started, treatment is very effective and many people can be cured. On the other hand, if the sarcoma has spread to other parts of the body, treatment can usually control the tumor, but it is not often curable.
National Cancer Institute
There are many types of soft tissue sarcoma. The cells of each type of sarcoma look different under a microscope, based on the type of soft tissue in which the cancer began.
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