ESRD (End Stage Renal Disease)
I'd like people to know that you can head off kidney disease, maybe prevent a transplant or stop the disease from progressing after detection by doing a simple urine test in the doctor's office - Sean Elliott
image by: American Kidney Fund
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My Journey with Kidney Failure: From Engaged Patient to Patient Mentor
I was placed on dialysis when I was 30 years old. Before my diagnosis of end-stage renal disease (ESRD) or kidney failure, I had been an active, adventurous world traveler. I spent time in the Middle East, first in the Army, then later as a civilian defense contractor. When I finally rotated back to Kansas City, I got a job with a security company and starting fielding new opportunities that could send me around the world again.
It was around that time that I began to experience some health issues. I was rapidly gaining weight and performing even the simplest tasks would wipe me out. One night after work I decided to stop by an emergency room and get checked out. After the nurse…
Resources
Dialysis Is a Way of Life for Many Older Patients. Maybe It Shouldn’t Be.
So-called conservative management can ease symptoms without dialysis in some people with kidney disease. But many of them are never given the option.
Kidney failing? Grow a new one
Kidneys are not romanticised like the heart, or held on high like the brain. But these fist-sized organs are integral to our ability to filter waste and excess fluid from our bodies. And they’re a pain in the midriff when they go wrong. But now it’s possible to grow new kidneys from scratch – at least small ones. This breakthrough in bioengineering was published today in Nature and is a big step forward in regenerative medicine.
Medical Myths: Unprepared For The End Stages Of End-Stage Kidney Disease
The news wasn’t good. The choice was either dialysis or die in three months. At the age of eighty-seven, Dad was part of the ever-dwindling “greatest generation” of men and women who served their country by fighting in World War II. And like many in this generation, he had declining health.
The Kidney Trade
Can economists make the system for organ transplants more humane and efficient?
We Need To Address The Rising Rates Of Kidney Failure
Debilitating symptoms, decreased quality of life, mental health issues, financial challenges and frequent need for medical visits and hospitalizations significantly impact the lives of people with kidney failure.
Burden of Hypertensive Crisis in Patients With End-Stage Kidney Disease on Maintenance Dialysis
Hypertension is a highly prevalent disease in patients with ESKD.14 Patients with ESKD are at high risk to develop acute hypertension.7 HTN-C is defined as acute rise in blood pressure associated with or without end-organ damage.10 There is very limited data available on HTN-C in patients with ESKD on dialysis, and there is no definition or guidance in the literature for HTN-C that is specific to ESKD.
Caring for Persons With Advanced Kidney Disease Should Not Feel Like a Nail-Biting Game of Jenga
Persons with advanced kidney disease should be empowered to understand how each new medication, life event, dietary change, or hospitalization can influence their disease progression. Care should be easily organized and accessible, so that any provider can readily understand where patients are in the course of their kidney disease.
Emergency department use by patients with end-stage renal disease in the United States
We described the unique demographic, socioeconomic, and clinical characteristics of ED patients with ESRD, using the most comprehensive, nationally representative study to date. These patients’ higher hospital and ICU admission rates indicate that patients with ESRD require a higher level of emergency care.
High Blood Pressure in Teens Tied to Kidney Failure in Adulthood
Hypertension in adolescence doubled the risk for end-stage renal disease in adulthood.
Living with kidney disease, hope for the future
Don’t be afraid. It can be a scary thing when you’re diagnosed. I didn’t know anyone else with kidney disease. But you have to educate yourself. Get as much information as possible. There are so many resources out there.
Study: the kidney shortage kills more than 40,000 people a year
If there were enough kidneys for everyone in the US who needed one, we could save 43,000 lives every single year. That’s the conclusion of researchers Frank McCormick, Philip Held, and Glenn Chertow, in an editorial published in the Journal of the American Society of Nephrologists.
Top 5 Innovations for Patients with End Stage Renal Disease
Our Chief Medical Officers weigh in on the latest technologies and healthcare innovations that have the most potential to transform patients’ lives this coming year.
Why is dialysis free?
As we all know, there’s been decades of debate regarding universal healthcare in the US. However, dialysis is different – lucky for you, your kidneys are completely covered under Medicare.
My Journey with Kidney Failure: From Engaged Patient to Patient Mentor
I was placed on dialysis when I was 30 years old. Before my diagnosis of end-stage renal disease (ESRD) or kidney failure, I had been an active, adventurous world traveler. I spent time in the Middle East, first in the Army, then later as a civilian defense contractor. When I finally rotated back to Kansas City, I got a job with a security company and starting fielding new opportunities that could send me around the world again.
Coalition for Supportive Care of Kidney Patients
The Coalition for Supportive Care of Kidney Patients (CSCKP) brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. We are professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life.
End Stage Renal Disease Network Program
The mission of the End Stage Renal Disease (ESRD) Network Program is to promote health care for all ESRD patients that is safe, effective, efficient, patient-centered, timely, and equitable.
The National Forum of ESRD Networks
Advocating for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the USA.
Dialysis Patient Citizens
Dialysis Patient Citizens (DPC) is the nation’s largest patient-led organization working to improve the quality of life for dialysis patients. Join us in making a difference for those with kidney disease by enrolling as a DPC member today. (Membership is free.)
ESRD Networks
CMS relies on the Network Organizations to develop a relationship with the dialysis professionals, providers, and patients and create a collaborative environment to improve patient care. One of the primary functions of the Network Organizations is to assist CMS in understanding the needs of ESRD patients by including patients in quality improvement activities and meetings with CMS.
Home Dialysis Central
Home Dialysis Central is a one-stop, online source of up-to-date, unbiased information about home dialysis—in all its forms—for people with kidney disease, their families, and the healthcare professionals who provide kidney disease care.
American Association of Kidney Patients
As the oldest and largest, independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.
StatPearls
End-stage renal disease can present with a constellation of signs and symptoms. Some include volume overload refractory to diuretics, hypertension poorly responsive to medication, anemia, mineral and bone disorders, and metabolic derangements including hyperkalemia, hyponatremia, metabolic acidosis, hypo/hypercalcemia, and hyperphosphatemia.
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