The secret of health for both mind and body is not to mourn for the past, worry about the future, or anticipate troubles, but to live in the present moment wisely and earnestly - Buddha
image by: David-i98
I want to thank those who create the amazing devices that make my diabetes easier to manage and help me stay healthier. That said, there's a cost to new technology and devices we never talk about. It's the one to patients. And I'm not talking financial. While devices lighten the burden of managing my disease, they also create new burdens.
Patients who use devices must among other things:
- Invest time, effort and brainpower researching which device, among the many, are best for them
- Often spend time and aggravation dealing with their insurance company
- Spend time in training sessions learning how to use their device
- Know what to do when devices err
- Manage potential danger to one's health when devices fail
- Be cool-headed and adaptable when the data makes no sense
- Upload data for their own and provider's use
- Make space on their body and give up their vanity
- Find accessories for, and carry around, a ton of equipment and backup supplies
- Sit on the phone with customer service reps at all hours of the day and night
As tiring as it is to manage a chronic illness like diabetes, managing devices adds another layer of complexity and fatigue. And, as invisible as my Type 1 diabetes is to everyone, the responsibility of managing devices is also invisible...
Device engineers and designers need to spend more time understanding what a day of living with and managing diabetes is like. Many rarely even speak to patients. Digging deeper into the patient experience would lead to devices and technologies that better serve our needs and fit more seamlessly into our lives. Aka more convenience, less hassle.
Health professionals should understand that when they equip a patient with an insulin pump or a continuous glucose monitor, even sometimes an insulin pen, it's not necessarily "problem solved." It's often the beginning of new challenges.
For example, fitting the time that devices require into one's life. Taking pains to prevent or address rashes that occur from devices' adhesive. Stressing out because you forgot to put your CGM receiver into a changed purse. Dealing with insulin pump tubing that gets caught on doorknobs or blocks the flow of insulin, sending one hurtling toward dangerous Diabetic Ketoacidosis.
Empathy and support from health care providers would go a long way. Insurance companies must accept that there may be extra financial cost involved to using devices and allow for it because technology sometimes fails...
Diabetes devices are life-enhancing. For the most part they give us remarkable capacity to better manage our health. I well remember 40 years ago when we didn't even have glucose meters. But we must recognize that new technology also adds effort, frustration, discomfort, confusion and expense to patients' lives. Let's design devices with the aim to lessen those costs.
In actuality, we're still in the Beta phase when it comes to medical devices. And it's patients who bear the work and weight of testing them each day.
Source: Riva Greenberg, Excerpt from The Hidden Cost of Diabetes Devices to Patients, The Blog, Huff Post, August 10, 2015.