Meniere's disease
Meniere’s disease will not define you. It cannot and will not ever be bigger than your dreams - Glenn Schweitzer
image by: Meniere's Resources, Inc.
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Facing Meniere’s Disease Without Fear
Life can be frustrating. For years, our lives move a long at a steady pace. We have our ups and downs, but life just marches on. Every once in a while though, we get blindsided. Tragedy tends to strike when we least expect it and often when we are most vulnerable.
This is the nature of Meniere’s disease. Everything is going just fine until one day it isn’t. In an instant, everything changes. First comes the fear of the unknown. The confusion of suffering from vertigo without explanation or context. If your stubborn like I was, this could go on for months. I suffered for more than four months before I ever accepted the fact that their was something wrong. It took more then one full…
Resources
I’ve Got What? Meniere’s Disease? Speak Up! I Can’t Hear You!
My new ear, nose and throat specialist thinks I’ve got something called Meniere’s Disease. Here, for all of you hypochondriacs, are the symptoms: Fullness in one ear Tinnitus (ringing ears) Vertigo And occasionally? Migraines.
At Last, Medicine Really Listens to van Gogh
A medical report being published today contends that Vincent van Gogh was not mad and did not have epilepsy, as has been speculated, but had a painful inner ear disorder that caused him to cut off his left ear and eventually to kill himself.
Colorado Springs drug study could help Meniere's Disease sufferers
Treatments for the disease have focused on reducing and normalizing the fluid balance in the inner ears, typically through lifestyle changes - a low sodium diet and, in some cases, diuretics, or water pills, Romett said. More recently, small doses of steroids injected directly into the middle ear, through the eardrum, have shown very promising - if temporary - results.
Dizzying Times
There is an equally long list of potential remedies: Diuretics to reduce fluid retention. Less salt for the same reason. No caffeine, MSG or nicotine. Medications for sea sickness, maybe even steroids. Surgery that seems to have a very low success rate. Yoga, tai chi or meditation. The only thing that everyone agrees is effective is lying perfectly still until the vertigo passes.
Meniere's Disease - A Common Misdiagnosis
Unfortunately, Meniere’s disease is a condition that is over-diagnosed, meaning that many are diagnosed with Meniere’s disease, but they don’t actually have it. If you or someone you know has been diagnosed with Meniere’s and do not have significant hearing loss in one ear and/or are under the age of 40, consider obtaining a second opinion. Most who are incorrectly diagnosed with Meniere’s are suffering from Vestibular Migraines...
Prosper Ménière and His Disease
In 1861, Prosper Ménière presented a paper before the French Academy of Medicine in which he described a series of patients with episodic vertigo and hearing loss. He also mentioned the postmortem examination of a young girl who experienced vertigo after a hemorrhage into the inner ear. Prior to that time, vertigo was thought to be a cerebral symptom similar to epileptic seizures. Ménière pointed out that vertigo frequently had a benign course and that common treatments, such as bleeding, often did more harm than good. He was not attempting to define a disease or syndrome but rather to italicasize that vertigo could originate from damage to the inner ear. Confusion regarding the clinical and pathologic features of Ménière disease persisted well into the 20th century.
Sweet Catastrophe
Before being diagnosed in December of 2013 I had never heard of Meniere's Disease. It's somewhat rare and difficult to diagnosis properly - that being said I thought it would be helpful to share my story in hopes that perhaps my experiences can help others.
Facing Meniere’s Disease Without Fear
Life can be frustrating. For years, our lives move a long at a steady pace. We have our ups and downs, but life just marches on. Every once in a while though, we get blindsided. Tragedy tends to strike when we least expect it and often when we are most vulnerable. This is the nature of Meniere’s disease.
Mind over Meniere's
If you suffer from Meniere’s disease, there is hope! Meniere’s disease will not define you. It cannot and will not ever be bigger than your dreams. This blog is an exploration of treatment strategies that work.
Meniere's Disease Foundation
The purpose of this site is to inform people with Menieres Disease about available treatments and possible help to alleviate the symptoms of Meniere's.
Meniere's Disease Support Group
This is a group to create awareness and provide support to people who have Meniere's Disease. It provides an outlet for those who need it.
Meniere's Society
The charity for people with dizziness and balance disorders We provide support and information to those affected by vestibular disorders and fund vital research into all aspects of these conditions.
Menieres-Disease.ca
This website has Meniere's Disease information and resources to help you understand what you are going through with this terrible condition. We put this site together from personal experience of David's (husband and father) suffering with balance and hearing problems.
Prosper Ménière Society
Its primary goal is to promote the academic dissemination and discussion of clinical research data on Ménière’s disease and all aspects of inner ear dysfunction, pathophysiology, diagnosis and treatment.
Brain Foundation
A typical attack of Meniere's disease may be preceded by fullness or aching in one or both ears. Hearing fluctuation or tinnitus may also precede an attack. A Meniere's episode generally involves severe vertigo (spinning), imbalance, nausea, and vomiting. The average attack lasts two to four hours. After a severe attack, most people find that they are extremely exhausted and must sleep for several hours.
Dizziness-and-Balance.com
In 1861, the French physician Prosper Meniere described a condition which now bears his name. Meniere's disease is a disorder of the inner ear which causes episodes of vertigo, ringing in the ears (tinnitus), a feeling of fullness or pressure in the ear, and fluctuating hearing loss.
MayoClinic.org
Meniere's disease can occur at any age, but it usually starts between the ages of 20 and 50. It's considered a chronic condition, but various treatments can help relieve symptoms and minimize the long-term impact on your life.
NHS
It's worth noting, however, that the symptoms and severity of Ménière's disease vary widely from person to person. Some people may experience frequent attacks of vertigo along with hearing loss, while others may have severe tinnitus with minor vertigo. Other symptoms include sensitivity to sound (hyperacusis) or distorted sound.
Patient
In Ménière's disease there is a progressive distension of the membranous labyrinth, which is called 'endolymphatic hydrops'. This may injure the vestibular system, causing vertigo; or the cochlea, causing hearing loss.
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