Pierre Robin Sequence

It is during our darkest moments that we must focus to see the light - Aristotle

Pierre Robin Sequence

image by: Pierre Robin Sequence Foundation
     

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Why We Started This Foundation

Thought we should tell you about our ongoing story and why we started this foundation.

Joshua William Parkes was born 20 October 2008 via C-Section. He was diagnosed with a cleft palate at birth. We were referred to see a plastic surgeon regarding the cleft and he said Joshua also has Pierre Robin, that was all very scary for Grant and I as we didnt know what it was and what the implications were.

This all made feeding very hard in the beginning as Joshua could not latch to be breast fed or suck on a normal bottle. We used the Haberman Feeder for a while till we decided to cut slits in the Avent teat, this made drinking very easy for Joshua.

The problems started when…

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Last Updated : Friday, July 24, 2020