NETs

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NETs

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It’s Time to Bring Neuroendocrine Tumors (NETs) Out of the Shadows


Last week the world lost a music legend, Aretha Franklin. Many news organizations erroneously reported that she had passed away due to complications of pancreatic cancer. While Ms. Franklin was quite private about her health, she had spoken about her diagnosis on occasion. She actually did not have pancreatic cancer, but a neuroendocrine tumor in the pancreas.

I see this a lot in the media – misreporting of a cancer diagnosis (but that’s a topic for another day). To the average person, this may not seem like a big difference. Both types of cancer were located in the pancreas, what’s the big deal? But there is a big difference between these two cancers – they are treated very differently,…

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 It’s Time to Bring Neuroendocrine Tumors (NETs) Out of the Shadows

Last week the world lost a music legend, Aretha Franklin. Many news organizations erroneously reported that she had passed away due to complications of pancreatic cancer. While Ms. Franklin was quite private about her health, she had spoken about her diagnosis on occasion. She actually did not have pancreatic cancer, but a neuroendocrine tumor in the pancreas. I see this a lot in the media – misreporting of a cancer diagnosis (but that’s a topic for another day).

NET Cancer Blog

Award winning "community" site. No fund raising or selling please. Blogs and up to date news about Neuroendocrine Cancer from impeccable sources. No myths. Private chat for patient support available in my group.

Healing Net Foundation

To optimize the care of those with neuroendocrine cancer through the education of and collaboration among physicians, health care providers, patients, and caregivers.

NET Patient Foundation

Around 2,000 people are diagnosed as NETs every year, and through the Foundation we aim to promote a wider knowledge of the disease amongst the general population

Neuroendocrine Cancer Awareness Network

Our mission is to intensify awareness of carcinoid cancer in both the medical community and the general public- locally and nationally.

Neuroendocrine Tumor Research Foundation

The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for neuroendocrine cancers.

World NET Cancer Day

Raising awareness of neuroendocrine cancers around the world.

Beth's Adventures with Neuroendocrine Cancer

An overview of my journey dealing with a rare cancer.

CarcinoidInfo,info

An advocate for Carcinoid and Neuroendocrine Tumor Awareness.

CarcinoidSyndrome.org

Whether you’ve recently been diagnosed with a neuroendocrine tumor (NET) or are looking to learn more about the symptoms you’re experiencing – CarcinoidSyndrome.org can help you find the answers you need most.

International Neuroendocrine Cancer Alliance

INCA is the global voice for Neuroendocrine cancer (NET) patients and their carers with a mission to: raise awareness about all types of NETs; push for scientific advancements with a focus on identified unmet needs; and provide a platform for global collaboration to address the many challenges NET patients and the medical community face, in securing a timely diagnosis and accessing optimal treatment, support and care;

The Carcinoid Cancer Foundation

The Carcinoid Cancer Foundation is the oldest nonprofit carcinoid/and related neuroendocrine tumor organization in the United States, founded in 1968. The mission of this foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.

Endocrine-Related Cancer

Endocrine-Related Cancer is the established global journal for basic, translational and clinical research on hormones and cancer. Endocrine-related cancers typically include cancers of the breast, prostate, pituitary, testes, ovary and neuroendocrine system as well as hormone-dependent cancers elsewhere

Hormones and Cancer

This journal examines all aspects of hormone action on cancer causation, progression, dependence, prevention, resistance, and treatment. It details findings with clinical applications in the prevention, diagnosis and treatment of hormonally related cancers.

National Cancer Institute

Information about gastrointestinal carcinoid tumor treatment, including surgery, chemotherapy, radiation therapy, immunotherapy, and vaccine therapy

NORD

Carcinoid tumors are well-differentiated neuroendocrine tumours with secretory properties, releasing serotonin, along with a number of other active peptides. These tumors can arise anywhere along the primitive gut and are therefore found in the bronchial tree (airways) and along the gastrointestinal tract. The tumor cells can also migrate (metastasize) to the liver.

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