Chronic Kidney Disease (CKD)

Chronic kidney disease is a global health burden with a high economic cost to health systems and is an independent risk factor for cardiovascular disease - Nathan R. Hill et al

Chronic Kidney Disease (CKD)
Chronic Kidney Disease (CKD)

image by: Johnny's Kidney Journey

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Putting Kidney Disease Patients at the Center of Proactive Care

Chronic kidney disease (CKD) affects 30 million adults in the United States—almost 11% of the population. Yet kidney disease patients are at the mercy of a system that is inadequate to care for them—from lack of, or haphazard, diagnosis and little preventative care to the financial incentives that result in patients getting churned through the for-profit industrial complex of kidney care.

Patients deserve better, and therefore a complete overhaul is required. Now is the time for healthcare providers and payers to come together, putting patients first by adopting a multidisciplinary approach that ensures they receive the care most suited to their needs.

Inadequate…

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Resources

 Putting Kidney Disease Patients at the Center of Proactive Care

Chronic kidney disease (CKD) affects 30 million adults in the United States—almost 11% of the population. Yet kidney disease patients are at the mercy of a system that is inadequate to care for them—from lack of, or haphazard, diagnosis and little preventative care to the financial incentives that result in patients getting churned through the for-profit industrial complex of kidney care.

5 Signs Your Kidneys or Heart Could be in Trouble

Diabetes and high blood pressure can cause damage to both the heart and kidneys. If you have heart disease, it is likely that you have kidney disease and vice-versa. Many people don’t experience severe symptoms until their kidney or heart disease is quite advanced, but there are some warning signs. Could you be ignoring them?

Cricket Health

We empower kidney patients to take charge of their health, helping them achieve better outcomes while reducing costs for the system.

KidneyX

The Kidney Innovation Accelerator (KidneyX) is a public-private partnership between the US Department of Health and Human Services and the American Society of Nephrology to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases. KidneyX seeks to improve the lives of the 850 million people worldwide currently affected by kidney diseases by accelerating the development of drugs, devices, biologics and other therapies across the spectrum of kidney care including...

American Association of Kidney Patients

The American Association of Kidney Patients (AAKP) is a national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.

Coalition for Supportive Care of Kidney Patients

The Coalition for Supportive Care of Kidney Patients (CSCKP) brings together like-minded people who care deeply about the quality of compassionate, supportive care for kidney patients. We are professionals from many disciplines and laypersons who are working for true patient-centered care that values quality of life.

Conservative Kidney Management

CKM is a treatment option for managing advanced chronic kidney disease. This pathway is a resource for patients and healthcare professionals with a focus on quality of life, symptom management, and living well without dialysis.

Demystifying Kidney Disease for the Average Joe!

Making sense of kidney disease: Dr "VC" Chauhan's "plain-English" take; without the doctor's jargon.

La Isla Network

La Isla Network is dedicated to ending chronic kidney disease of undetermined causes (CKDu) among workers and their communities worldwide.

Life Options

Life Options is a program of research, research-based education, and outreach founded in 1993 to help people live long and live well with kidney disease. A national panel of doctors, researchers, patients, nurses, social workers, dietitians, and ESRD Network directors reviews all Life Options materials and helps guide research.

RareRenal

The National Registry of Rare Kidney Diseases (RaDaR) is an initiative by UK kidney specialists (the Renal Association). It is designed to pull together information from patients who have certain rare kidney diseases. This will give a much better understanding of how these illnesses affect people. It will also speed up research.

Kidney Care UK

We are the leading kidney patient support charity providing advice, support and financial assistance to thousands every year.

Kidney Health Australia

Kidney Health Australia was first incorporated on 9 August 1968 as a non-profit organisation which has served the kidney community of Australia for well over 40 years. Kidney Health Australia's mission, vision and values are at the core of how we conduct our business and form the foundation for our future direction. Kidney Health Australia has given a long term commitment to families and children affected by kidney disease, but the biggest challenge remains for us to reach those two million Australians who do not know they have early kidney damage.

Kidney Patient Guide

This site has been made possible by a generous grant from the Wellcome Trust's Science on Stage and Screen awards. This site is the result of collaboration between health care professionals, experts in information technology and multimedia, specialist health care writers, and - above all - people with renal failure, their families and carers.

Kidney Patients UK

The National Kidney Federation is unique because, although there are a large number of kidney charities, the NKF is the national kidney charity actually run by Kidney Patients for Kidney Patients.

Kidney Research UK

Founded in 1961, Kidney Research UK is the leading UK charity funding research that focuses on the prevention, treatment and management of kidney disease. Kidney Research UK also dedicates its work to improving patient care and raising awareness of kidney disease.

National Kidney Foundation

The National Kidney Foundation (NKF) has been providing help and hope to kidney patients and their families since 1950. Today, with local offices across the country, NKF is meeting the growing public health challenge of chronic kidney disease with a range of vital programs and services for the public, patients and healthcare professionals.

National Kidney Registry

The mission of the NKR is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.

Renal Support Network

The Renal Support Network (RSN) is a nonprofit, patient-focused, patient-run organization that provides nonmedical services to those affected by chronic kidney disease (CKD). RSN strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them and their family members to take control of the course and management of the disease.

RenalWEB

RenalWEB is a neutral, nonaffiliated web site for the dialysis industry and community. With hundreds of web sites containing dialysis product information, RenalWEB has function as a "daily newspaper" for useful information, new products, services, and educational resources since 1999.

The National Forum of ESRD Networks

The Forum of ESRD (End-stage Renal Disease) Networks advocates for the organizations that monitor the quality of chronic kidney disease, dialysis and kidney transplant care in the United States.

UK Renal Registry

The UK Renal Registry is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society.

American Kidney Fund

The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

DaVita

DaVita Inc., a FORTUNE 500® company, is a leading provider of kidney care in the United States, delivering dialysis services to patients with chronic kidney failure and end stage renal disease. DaVita strives to improve patients’ quality of life by innovating clinical care, and by offering integrated treatment plans, personalized care teams and convenient health-management services.

Fresenius Kidney Care

Helping you live a better life on dialysis.

HuffPost

Various articles.

Irish Kidney Association

The Irish Kidney Association is a charitable voluntary organisation founded in 1978. We are dedicated to meeting the needs of renal patients and their families and carers, living with and affected by end stage renal disease. These needs are spread across all aspects of life — medical, social and psychological.

Kidney & Urology Foundation of America

The Kidney & Urology Foundation of America provides research grants and develops quality educational conferences for physicians and other medical professionals in the nephrology, urology and transplant communities.

Kidney Cancer Association

The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers.

KidneyCoach.com

KidneyCoach.com is a blog created to help people, like you achieve health and happiness in all areas of their life through the creation of powerful free content (articles, video, and audio) each week.

National Kidney Center

Our desire is to share compassion with individuals who are diagnosed with kidney disorders by supporting efforts for early screening, detection and awareness of treatment options that include paired donation. The National Kidney Center will work to educate each generation about the risk factors that can lead to kidney disease and the treatment options available to live a full life.

Nephrology News & Issues

Nephrology News & Issues, part of Grand View Media Group in Birmingham, Ala., published its first issue in 1987 with the aim of informing readers of the latest developments in nephrology while providing a forum for the exchange of ideas among the professional disciplines responsible for delivering care to the end-stage renal disease patient.



Organ Procurement and Transplantation Network

The primary goals of the OPTN are to increase the effectiveness and efficiency of organ sharing and equity in the national system of organ allocation, and to increase the supply of donated organs available for transplantation.

Renal Research Institute

The Renal Research Institute is dedicated to advancing therapy options for dialysis patients to provide the highest caliber of care based on advanced clinical technology. The Institute is committed to research and innovation that will lead to improved patient outcomes and quality of life.

The Kidney Foundation of Canada

Information and tools to help you manage your renal diet.

The Nephron Information Center

Our mission is to use this medium to make the public more aware of kidney disease in a sincere effort to prevent it when we can, and to help our colleagues achieve good outcomes in those who already have end stage renal disease. Our role is to provide as much information as possible to patients, professionals and the general public.

The Scottish Renal Registry

The Scottish Renal Registry (SRR) is a national registry of patients receiving renal replacement therapy for established renal failure in Scotland.

Uro Today

UroToday's mission is to create a free, credible, referenced online publication providing global open access to accurate and timely urological disease information. UroToday is dedicated to ensuring that the availability and accessibility of research material is not affected by marketing and distribution strategies used by publishers.

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