Keratoconus
Have a vision. It is the ability to see the invisible. If you can see the invisible, you can achieve the impossible - Shiv Khera
image by: Keratoconus Group
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Vision to Win Gold
Three years ago I shook hands with Steve Holcomb who was forced to retire as the top U.S. Olympic bobsled driver due to becoming legally blind from a degenerative eye disease known as Keratoconus where the cornea (outer lens) herniates out. In February 2010 at the Winter Olympics in Vancouver, Steve walked away with a Gold medal, the first for the U.S. in bobsled in 62 years (last time that happened was when Harry Truman was president!) An incredible, miracle comeback of all comebacks. What happened in those three years?
Steve’s Olympic team, coaches, and team doctor (Scott Stoll, MD) wouldn’t let their best hope for Olympic gold stay retired. They refused to accept conventional…
Resources
What Is It Like To Have Keratoconus?
I could tell many other stories of inconvenience, but mostly I’ve been blessed to have a manageable case of keratoconus and have access to good medical care.
An Affliction Of The Cornea Gets A Closer Look
Kaley Jones didn't know what hit her. She was just 17, sitting in her history class, when she realized she suddenly couldn't read what was written on the white board. Nor could she make out the faces of her classmates.
Keratoconus Journey: Gage
Growing up, Gage was known for squinting. Even though he struggled with his vision most of his childhood, he just thought this was how everyone else saw the world. It wasn’t until his sophomore year of high school when he finally decided to see an optometrist.
New keratoconus treatment may prevent need for corneal transplant
Cross-linking procedure can halt corneal changes, preserve vision.
Vision to Win Gold
To honor Steve, I recently renamed the procedure the “Holcomb C3-R” which is the first time a treatment for a disease has been named after the Olympic athlete who made it world famous.
5 fast facts about keratoconus
Many people suffer with vision problems for years without knowing their blurred vision, glare or halos are due to a condition called keratoconus.
KC Global
All of us Vs Keratoconus.
Keratoconus Group
Keratoconus Group is a support community for keratoconus patients. we are a team of volunteers who either have keratoconus or have had corneal transplant, and we work to create a welcoming and friendly community for keratoconus and corneal transplant patients.
KeratoconusInserts.com
Some doctors misadvise their patients that “hard contact lenses hold the cornea and stop it from progressing.” Unfortunately, this is not the case. If someone’s head is expanding, wearing a baseball cap will not stop the head from expanding. The ONLY method to stop the worsening of Keratoconus is with corneal crosslinking treatment.
National Keratoconus Foundation
The NKCF was created to raise awareness of keratoconus, provide information and support to those with this eye condition and to support research to find the cause of keratoconus, identify treatment options and eventual cure for keratoconus.
The Keratoconus Center
This website was designed to provide the latest information about treatment and research for patients with keratoconus and research about the disease keratoconus.
Canadian Keratoconus Foundation
The mission of the CKF is to increase the awareness and understanding of keratoconus, offer support services to keratoconus patients, and to encourage scientific research into the cause(s) and treatment of keratoconus.
Cornea Research Foundation of America
Keratoconus (KCN) is a disease characterized by thinning and protrusion of the cornea, resulting in an irregular, conical shape (Figure 1 and 2). Irregular astigmatism occurs as the keratoconus progresses, and results in blurred vision, which can be impossible to correct with spectacles. Usually keratoconus occurs in both eyes, and involves the central cornea with the apex of the cone just below the visual axis.
Keratoconus Australia
The purposes of Keratoconus Australia Inc (Association) are to prevent and control the eye disease, keratoconus, and visual impairment caused by keratoconus...
Keratoconus NZ
Keratoconus NZ is an information site produced by experienced keratoconus practitioner Peter Walker. It was developed for people with keratoconus and their families to gain a deeper understanding of the condition.
UK Keratoconus Self-Help and Support Association
We are a small UK based charity run by a committee who all have this condition.
Avedro
Avedro’s corneal cross-linking procedure is the first and only therapeutic treatment that stiffens the cornea to slow the progression of the keratoconus.
Eye Health Central
The National Eye Institute (NEI) estimates that 1 in 2000 people are affected by keratoconus, the leading form of corneal dystrophy. Some studies have reported the number may be as high as 1 in 500, depending on the criteria used, as high astigmatism is often confused for keratoconus and vice versa.
NORD
Keratoconus is an eye (ocular) disorder characterized by progressive thinning and changes in the shape of the cornea. The cornea is the thin, clear outer layer of the eye and is normally dome-shaped. Slowly progressive thinning of the cornea causes a cone-shaped bulge to develop towards the center of the cornea in the areas of greatest thinning. Affected individuals develop blurry or distorted vision, sensitivity to light (photophobia), and additional vision problems. Keratoconus often begins at puberty and most often is seen in teenagers or young adults.
StatPearls
Corneal transplant is considered the last resort when the cornea is too thin to receive CXL and the symptoms are severe. The cornea is replaced fully (penetrating keratoplasty) or in part (lamellar keratoplasty) with healthy donor cornea tissue.
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