Crohn's
Crohn's is going to be a part of my life forever and there will be better times. I need to just remind myself when times are tough that eventually they will be good again - Elizabeth Hebda
image by: Crohn's & Colitis UK
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What It's Actually Like to Live with Crohn's Disease
I have ileum Crohn's—the most common form—which affects the small intestine and the colon. The normal function of the bowel is disrupted because the tissue can swell, thicken or form scar tissue, leading to blockage due to the narrowing of vital passageways. A condition known as malabsorption—"a failure to absorb nutrients from the gastrointestinal tract"—can occur, which leads to fatigue and loss in weight. And ulcers may form in the deepest layers of the bowel wall. I live on a diet of 30mg of Co-Codomol and 3mg of Budesonide capsules, but, because the steroid tablets no longer carry out their function and the pain persists, the hospital are starting me on Adalimumab injections, which helps…
Resources
Crohn’s Disease Changed My Body. Here’s How I Made Peace With My Diagnosis
Finding the right Crohn’s treatment hasn’t been easy, so I’ve had to be patient and accept that it’s a trial-and-error process. When I was first diagnosed, I started taking antibiotics and anti-inflammatory medication like steroids. None of those worked well for me, so I started on a biologic medication, a series of injections that were administered every six weeks or so.
Crohn’s Disease Is on the Rise
Many think the abdominal disorder starts in childhood, but it can occur at any age and is becoming more prevalent throughout the world.
My IBD Glossary for the Newly Diagnosed
It is a pretty scary time when you start having symptoms that you cannot figure out or understand. It's sometimes even scarier having to go see a doctor, or even worse, straight to the emergency department at the hospital. Even in my 35 years of Crohn's, I'm still learning new words when it comes to this disease. Many doctors start listing off all this information that you're supposed to figure out and many of us do not ask the question, "Can you repeat that in English please?"
A Clean Slate: Engineering the Gut Microbiome with “Good” Bacteria May Help Treat Crohn’s Disease
An imbalance in the gut microbiome – more “bad” bacteria than “good” – is known as dysbiosis, which is caused by environmental stressors, such as intestinal inflammation, antibiotics, or diet. Gut dysbiosis is believed to fuel Crohn’s disease and other diseases, but the mechanisms behind that relationship is not fully understood by researchers looking to strike a healthier, bacterial balance for patients.
A single gene can either raise or lower Crohn’s disease risk
Crohn’s disease is the most serious form of inflammatory bowel disease. Current treatments for the condition frequently fail to provide much relief, and people with the disorder often have to have particularly inflamed regions of their gut removed surgically.
Are You Ready to Swallow a Pill Full of Poop?
Scientists now know that the wrong balance of bugs in your gut—a delicate ecosystem that can collapse as you age, travel, or even take new medication—can lead to all sorts of distress. Seres is one of the first startups aiming to design treatments that would manipulate the microbiome to repair bad guts and cure diseases.
Before He Died, Paul Allen Gifted $125 Million To A New Institute To Study The Immune System
The new institute will study the immune system in three ways: by looking at immune responses in healthy people, then by looking at the immune systems of people with cancer, and then by comparing those to the immune systems of people with diseases like rheumatoid arthritis, ulcerative colitis, and Crohn’s disease, which are caused by an overactive immune system.
How one man went from Dying to Thriving
Dane will tell you from experience being diagnosed with Crohn’s/Colitis is very scary and there are many things you will need to do including finding a doctor who specializes in this area. He will also encourage you to create a positive mindset and build your SHIELD. SHIELD stands for Supplements, Herbs, Imagination, Exercise, Lifestyle and Diet. Like the great Hippocrates stated, “Let food be thy medicine and medicine be thy food.” Dane is a testament to what food can do for us when applied correctly based on our individual and unique makeup.
I’m Chronically Ill With Crohn's Disease, But My Relationship Is Built On A Love Of Food
It’s definitely hard to make the “right” choices, especially when there isn’t some unified codex or diet of what people with Crohn’s should eat.
Stem cell transplants to be used in treating Crohn’s disease
Current treatments, including steroids, aim to suppress this immune reaction. In the last decade, there have been great advances in treatments including targeted biological therapies that can heal the gut. However, these treatments don’t work for all patients, and some who initially respond well may loose their response over time. If the stem cell transplant is shown to improve the symptoms and quality of life for patients with Crohn’s disease, this will be an important advance in treating the disease in patients who haven’t responded to standard treatments.
Stem Cell Therapy: A Potential Crohn's Disease Breakthrough in 2022?
Stem cell therapy may be a viable new treatment option for Crohn's Disease. Studies have shown that stem cells may be able to greatly improve patient symptoms without the exorbitant recurring costs of traditional medications.
Patient Voices: Crohn's Disease
How does Crohn’s disease affect the lives of the young? How do men and women cope with the embarrassing symptoms and sometimes invasive treatments? Listen to the stories of seven men and women living with Crohn’s disease.
Stem cell transplants to be used in treating Crohn’s disease
Recent research has shown stem cell transplantation to be very effective in treating other autoimmune disease, such as multiple sclerosis. Our trial, called ASTIClite, will investigate whether transplantation can reduce gut inflammation and offer hope to people with Crohn’s disease for whom all other treatments have been unsuccessful. ASTIClite is a follow up to our previous ASTIC trial in 2015, which investigated a similar stem cell therapy. Although the therapy in the original trial did not cure the disease, we found that many patients benefited from the treatment.
Crohn’s disease can be detected in blood eight years before symptoms show, finds study
Findings may enable earlier treatment before severe damage happens requiring life-changing surgery.
Early, tight control of Crohn’s disease may have lasting benefits
Early approaches to treatment of Crohn’s disease followed a step-up algorithm in which the newer medications would only be used if the patient did not benefit from established therapies. This sequential approach — termed step therapy — has more recently been called into question, as studies have repeatedly shown that the newer drugs for Crohn’s disease are more effective than the old standards, and have preferable side effect profiles.
Everything You Need to Know About Crohn’s Disease Medications
One of the many frustrating things about living with Crohn’s disease is that it requires lifelong care. While there’s no cure (yet), there are many Crohn’s disease medications that can help reduce your symptoms, such as severe diarrhea and abdominal pain, so you can hopefully have more control over how you feel in your day-to-day life.
Gut Fungus Suspected in Crohn’s Disease
Moreover, when the researchers examined these bacteria and fungus, they found that the three microorganisms worked together to form a so-called biofilm—a thin, sticky layer of microorganisms—that attaches itself to a portion of the gut. This biofilm could trigger the inflammation that causes the symptoms of Crohn's disease, the researchers said.
Here’s What to Expect During a Crohn’s Disease Flare-Up
And how to keep your symptoms under control as much as possible.
How Long Should You Expect to Be on Crohn’s Disease Treatment?
The truth is, Crohn’s—and all forms of inflammatory bowel disease (IBD), for that matter—doesn’t have a cure yet,1 so the goal of treatment is to keep flare-ups under control and prevent further damage to the gastrointestinal (GI) tract, according to the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Once you and your doctor land on a care plan that accomplishes these things and works for your lifestyle, you should be able to go about your day-to-day life generally symptom-free.
How to Handle a Bathroom Emergency With Grace and Speed
Once you understand how your Crohn’s symptoms manifest and when you’re most likely to need a bathroom extremely close by, try to plan for situations where you won’t have total control of the food options or your ability to rest.
It’s Not Easy But I Won’t Let My IBD Define Me
We’ve all said it before: “I won’t let IBD define me.” Despite the sincerity of this statement, it is truly difficult to carry out. There are times when we can’t avoid it and have to let others take care of us.
Online, I'm the Picture of Health. Offline, I Have a Chronic Illness
I was diagnosed with Crohn’s disease at 19—but you'd never guess that from scrolling through my Instagram feed.
Why There’s No “Right” Way to Be Healthy
Last week, when I told my blog readers about my recent colitis diagnosis and flare-up, someone asked me whether I still considered myself a healthy-living blogger. My response was short and simple: Yes, I’m still a healthy-living blogger.
Yes, You Can Be an Athlete With a Chronic Illness
Kathleen Baker wanted to swim at the Olympics, but she had Crohn’s. Getting there meant training in a new way.
What It's Actually Like to Live with Crohn's Disease
I live on a diet of 30mg of Co-Codomol and 3mg of Budesonide capsules, but, because the steroid tablets no longer carry out their function and the pain persists, the hospital are starting me on Adalimumab injections, which helps to reduce swelling and pain by limiting inflammation.
15 Things to Remember if You Love a Person with Crohn’s Disease
Just getting the fact out that it really is a serious disease and not just a “condition” is truly important, because misinformation makes it hard to develop empathy for a friend or partner with this disease. That said, here are 15 things that Crohn’s sufferers will endure that require understanding, patience, and support.
5 Things I Do to Make Living With Crohn’s Feel Less Isolating
The right treatment, a support system, and learning to adapt have made all the difference for me.
7 People With Crohn’s Share Their Advice for People Who Just Got a Diagnosis
While you’re figuring out a treatment plan, facing the unknowns about how Crohn’s can affect your day-to-day can be intimidating—like, what are the first steps to navigating life with the condition? To find out, we asked seven people with Crohn’s disease to share advice, insight, and guidance for those who just received a new diagnosis.
8 Must-Meet TikTokkers Who Post on Crohn’s Disease
These young people—including a dancing doctor!—have fun and crush stigmas as they educate others on life with an IBD.
GirlswithGuts
A non-profit organization supporting and empowering women with IBD and/or ostomies.
Crohn's & Colitis Foundation
The Crohn's & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis, and to improving the quality of life of children and adults affected by these diseases.
Crohn's & Colitis UK
We want to see improved lives today, and a world free from Crohn’s and Colitis tomorrow.
Crohn's Forum
Support group and forum for Crohn's Disease, Ulcerative Colitis, and other IBD.
Crohn's UK
Crohn’s disease affects people of all ages but it's more commonly diagnosed in early adulthood. Despite the challenges posed by this chronic inflammation of the digestive tract, effective treatments are available that can greatly improve a patient's quality of life. With the right treatment plan tailored to their specific needs, patients with Crohn's disease can lead active and fulfilling lives.
CrohnsColitisLifestyle
Seven years ago I was diagnosed with Crohn's/Colitis which left me nearly dead at 120 pounds on every drug imaginable! At one point I was on a feeding tube, chemotherapy, immunosuppressants and nearly dead. Now, I take zero drugs, gained 55 pounds of lean muscle, travel the world pursuing my dreams, and I want to show you how you can do the same!
Crohn’s & Ulcerative Colitis Companion
Living with a chronic disease like IBD can sometimes be discouraging, and you may feel embarrassed by your disease. Other times, contacting one of the IBD support groups or organizations listed below may be just what you need. You may take comfort in learning how other people with IBD are managing their condition.
Crohn’s and Colitis Canada
To cure Crohn’s disease and ulcerative colitis and improve the lives of children and adults affected by these chronic diseases.
Ali On The Run
I have Crohn’s Disease. I’ve was diagnosed when I was 7, so I’ve pretty much had it my whole life. In 2010 I had several bad flare-ups, but I’m learning more about my body and how to deal every day. Despite having this autoimmune disease, I consider myself to be a very healthy person. I wrote an article for The Frisky about my life with Crohn’s.
Breaking the Vicious Cycle
The Specific Carbohydrate Diet™ has helped many thousands of people with various forms of bowel disease and other ailments vastly improve their quality of life. In many cases people consider themselves cured. It is a diet intended mainly for Crohn's disease, ulcerative colitis, celiac disease, diverticulitis, cystic fibrosis and chronic diarrhea.
Caring for Crohns
I started Caring for Crohn’s earlier this year as a way to reach out to those in similar situations to mine. There are lots of resources to support IBD patients but not many to support the caretakers. The purpose of the blog is to chronicle what its like to care for an IBD patient but also to educate others about Crohn’s Disease & Ulcerative Colitis and how these invisible diseases impact every aspect of our lives.
Inflamed and Untamed
Hey there! I’m Sara (some people call me Sadie), a classy, sassy, female living life with Crohn’s disease, a j-pouch, intestinal dysmotility, and autoimmune arthritis. It is my goal to show others how to be positive, and to own their disease instead of letting it own them, while educating them about Crohn’s disease and ulcerative colitis (IBD) along the way.
Jenni's Guts
This is my personal story about my specific Crohn's disease. I talk about poop a lot. I cuss occasionally and all pictures are completely jacked from the internet...probably illegally. I claim no rights to them.
Leaving the Seat Down
A sometimes frank, sometimes straight up and sometimes humorous discussion about Crohn's and living with Crohn's. I have Crohn's, but I figure that it's just using my body, hitchin' a ride for a while....until something better comes along.
News From the Tail End
Elizabeth was diagnosed at a young age and has dealt with Crohns with positivity and maturity ever since. Now that she’s in college, she’s sharing her story of college life, support groups, and clinical trials - GBM
Queen Crohn's Blog of Life
For anyone reading this feeling close to despair having tried everything to relieve their Crohn's symptoms, hope is out there!
The Bright Side of Crohn's
Staying positive, and kicking some Crohn's Disease butt.
The Great Bowel Movement
By bringing patients' stories to light and spreading knowledge of the IBD experience, we are all able to become "Poster Children" for our diseases, and spread awareness through telling our personal stories, educating others, and showing confidence despite chronic illness.
Infliximab (Remicade)
Infliximab is a type of biological therapy/immunotherapy designed to stimulate our body's immune system and treat certain diseases. Infliximab is a purified, recombinant DNA-derived chimeric IgG monoclonal antibody protein that contains both murine and human components that inhibit tumor necrosis factor-alpha (TNF-a). TNF-a is a signaling protein involved in acute phase reaction and systemic inflammation.
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