Cyclic Vomiting Syndrome

It sucks. The cause is unknown, the cure is only a dream of ours, and treatment in is complicated and different for each individual that has the disorder. It takes a long time to figure out what will help each of us - Angie Moore

Cyclic Vomiting Syndrome
Cyclic Vomiting Syndrome

image by: Cyclic Vomiting Syndrome Warrior

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That's CVS

The only consistent thing about CVS is how inconsistent it is. Going a whole year without having a CVS episode means nothing to the dark entity which is my disorder.

CVS will come out of hiding and smash you in the face with a brick. CVS is like the thief who robs you blind of all things for which you’ve worked so hard and leaves you feeling violated, angry, and desperate. CVS is the death of health. But recovery is re-birth. I’ve had many deaths and re-births.

An entire year without an episode. My greatest CVS accomplishment to date. But a year was all… One year and 25 days, to be exact. And then just like that – it was “GAME OVER” flashing all over my screen. Reset. Too bad,…

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Resources

 That's CVS

The only consistent thing about CVS is how inconsistent it is. Going a whole year without having a CVS episode means nothing to the dark entity which is my disorder.

Cyclic Vomiting Syndrome Association

The Cyclic Vomiting Syndrome Association (CVSA) serves the needs of cyclic vomiting syndrome (CVS) sufferers, their families and professional care givers by raising awareness and providing education and support to those affected by cyclic vomiting, abdominal migraine and related disorders while advocating for and funding research.

Cyclic Vomiting Warrior

My story isn't pleasant, but it's true

Cyclical Vomiting Syndrome Association UK

We are a registered charity providing information and support to sufferers of Cyclical Vomiting Syndrome and their families.

GI Society

As is the case for many functional GI conditions, we do not know exactly what causes CVS, but there are certain factors that might contribute to its development. Researchers speculate at the possibility of some degree of mitochondrial inheritance, because a maternal family history of either CVS or migraines can make an individual more likely to develop this condition.

GARD

The underlying cause of CVS is unknown. Data suggest there is a strong genetic component for CVS in children, involving changes (mutations) in mitochondrial DNA. Researchers believe that the condition primarily affects the brain, causing abnormalities in how the brain and gut interact.

Mayo Clinic

Cyclic vomiting syndrome occurs in all age groups, though it often begins in children around 3 to 7 years old. Although it's more common in children, the number of cases diagnosed in adults is increasing. The syndrome is difficult to diagnose because vomiting is a symptom of many disorders.

NORD

The hallmark of cyclic vomiting syndrome is recurrent episodes of severe nausea and vomiting. In children, these episodes usually last for several hours to a few days. In adults, episodes tend to occur less frequently, but usually last longer for 8 days.

StatPearls

Affected children often miss school, and affected adults often visit the emergency department several times per year and require time off work. This activity describes the pathophysiology, evaluation, and management of cyclic vomiting syndrome and highlights the role of the interprofessional team in the care of affected patients.

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