Brugada Syndrome

Brugada is rare but that does NOT mean it shouldn’t be discussed, taught, researched, or that it isn’t an issue because less people have it - Brugada Girl

Brugada Syndrome
Brugada Syndrome

image by: Jack Burapa

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Dead Man Walking

Does everyone know what dead man walking means? Its a saying referring to a person who is alive but its like they aren’t really here. Like they are already dead. Let me clarify, I don’t feel that way, but Doctors treat me that way. Not my EP of course because he is my friend and confidante in the world of Brugada. Also my primary Doctor is the absolute best you can find. She’s not afraid of me and listens to me. Pretty much, whoever was my Doctor before diagnosis stuck with me.

But to the rest of the medical field, I am a liability. I have noticed, since diagnosis, Doctors are very hesitant to treat me for fear of causing cardiac arrest. When they see me for the first time, and I go…

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Resources

 Dead Man Walking

I have noticed, since diagnosis, Doctors are very hesitant to treat me for fear of causing cardiac arrest. When they see me for the first time, and I go over my diagnosis, they look at me like they saw the devil.

Brugada Foundation

Aims to promote research and teaching and provide compassionate care in the area of heart disease, particularly for those diseases that may cause arrhythmias ...

Brugada Girl

I hope this blog gets across the negative and positives of this rare heart defect and how to live and cope with life and a diagnosis.

Brugada Syndrome Blog

In this blog, you'll learn more about Brugada Syndrome, including what should be done if someone you know might be at risk of having this syndrome. You will also learn how I came to know so much about a condition that most people, and some doctors, don't recognize.

BrugadaDrugs.org

BrugadaDrugs.org is a non-profit initiative developed by physicians from the University of Amsterdam Academic Medical Center, department of Cardiology, in collaboration with a panel of world-renowned experts on Brugada syndrome as an aid to physicians who treat patients with Brugada syndrome and as an aid to patients with Brugada syndrome and their families with the goal to provide free, worldwide accessible and up-to-date information on safe drug use in Brugada syndrome.

SADS Foundation

Treatment options are few. At present if a person has a definitive diagnosis and symptoms, an ICD is recommended. An ICD is not the answer for every patient. Some research suggests that quinidine may help some patients. Patients should also avoid drugs which block the sodium channels in the heart.

British Heart Foundation

Brugada syndrome is a rare inherited heart rhythm disturbance that restricts the flow of sodium ions into the heart cells. As a result, the flow of electrical impulses through the heart is disrupted, which can lead to life-threatening heart rhythms.

ECGpedia.org

The Brugada syndrome is an hereditary disease that is associated with high risk of sudden cardiac death. It is characterized by typical ECG abnormalities: ST segment elevation in the precordial leads (V1 - V3).

MayoClinic

Many people who have Brugada syndrome don't have any symptoms, and so they're unaware of their condition. A telltale abnormality — called a type 1 Brugada ECG pattern — is detected by an electrocardiogram (ECG) test. Brugada syndrome is much more common in men.

NHS

Brugada syndrome is an uncommon, but serious, heart condition. It can result in abnormally rapid heart rhythms, called arrhythmias, which can cause palpitations or fainting and can be fatal.

NORD

Brugada syndrome is a rare inherited cardiovascular disorder characterized by disturbances affecting the electrical system of the heart. The main symptom is irregular heartbeats and, without treatment, may potentially result in sudden death.

UpToDate

The vast majority of cases of sudden cardiac arrest (SCA) and sudden cardiac death (SCD), due to ventricular fibrillation, are associated with structural heart disease, particularly coronary heart disease. SCA in the apparently normal heart is an uncommon occurrence, accounting for 5 to 10 percent of SCA cases.

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