Total Anomalous Pulmonary Venous Return (TAPVR)
What generally happens is, you have a beautiful little baby, they're born, and then they turn completely blue - Sarah Badran MD
image by: Maboneng Heart and Lung Institute
Sydney was born with total anomalous pulmonary venous return (TAPVR) with an atrial septal defect (ASD) and patent ductus arteriosus (PDA).We so desperately wanted to believe that surgery had cured her, but the reality is that no one is ever truly cured from congenital heart disease (CHD)... Since her second open-heart surgery, Sydney has undergone multiple cardiac catheterizations and had a stent placed in her pulmonary vein. We stopped keeping track of how many ECHOs, EKGs, and lung perfusion scans she’s undergone a long time ago. It’s part of her life and will always be her “normal.” Sydney will have a lifelong battle with CHD, but she is thriving. She is becoming more aware and self-conscious…
These terms were completely foreign to us and the thought of our baby undergoing, let alone surviving, open-heart surgery was beyond comprehension.
Children with TAPVR also have other heart defects. They have a hole in the wall separating the two upper chambers of the heart (atrial septal defect) and may have a patent ductus arteriosus, an extra blood vessel between the pulmonary arteries and the aorta.
In this condition, the 4 blood vessels (pulmonary veins) that carry oxygen-rich (red) blood to the heart from the lungs aren’t connected correctly. Normally these blood vessels should be connected to left upper chamber (atrium) of the heart. Instead, they’re connected somewhere else.
TAPVC is most commonly detected after birth by echocardiogram.
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