Multiple Sclerosis
Most people, when they get to empty, they have a reserve tank. But with MS you go to empty, you are on empty, that's it, you are done and you literally collapse - Ann Romney
image by: Brett Jordan
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My MS Diagnosis: A Story About Living A Positive Life
Of the more than 2.3 million people worldwide who are diagnosed with multiple sclerosis, I am only one story. I am a wife, mother, daughter, daughter-in-law, sister, friend, and woman living with an incurable and unpredictable disease. And even though I am only one person, my story can add great value by educating others about what it’s like to live with an autoimmune disease. One story can make a difference.
As the Dalai Lama said, “Just as ripples spread out when a single pebble is dropped into water, the actions of individuals can have far-reaching effects.”
My story begins in 1981...
After my senior year of college I drove to Vermont with my two best friends.…
Resources
Selma Blair on living with MS: ‘My doctors urged me not to go public. They worried I wouldn’t get work’
In an extract from her new memoir, the actor remembers the moment she found out she had multiple sclerosis – and finally understanding why her body had been betraying her for years.
A new ‘cure’ for MS? Not so fast.
The stem cell treatment for MS greeted as a “cure” is a breakthrough for five per cent of people with MS. What about the other 95 per cent?
Ann Romney - Living with Multiple Sclerosis
Most people, when they get to empty, they have a reserve tank. But with MS you go to empty, you are on empty - Ann Romney
Concussions in Teenagers Tied to Multiple Sclerosis Risk
Here’s yet another reason to protect young athletes from head trauma: A large-scale new study found that concussions in adolescents can increase the risk of later developing multiple sclerosis. The risk of multiple sclerosis, or M.S., an autoimmune nervous system disorder with an unknown cause, was especially high if there were more than one head injury.
Gut Germs Appear to Play Role in Multiple Sclerosis
Two teams of scientists have found the strongest evidence yet that intestinal bacteria play a role in multiple sclerosis, an incurable disease in which the body’s immune system attacks the myelin coating on neurons, causing tremors, fatigue, cognitive problems, and more. Gut germs that were unusually abundant in people with MS changed white blood cells in a way that made them more likely to attack the body’s own cells, including neurons...
Hitting a Medical Wall, and Turning to Unproven Treatments
Within a year, Dr. Wahls had ditched her motorized assists and started riding a bicycle. Eight years later, she shows no signs of her disease. Last summer, the National Multiple Sclerosis Society, which has been tracking research into diet and inflammation, committed more than $1 million to study the effect of her diet on M.S.-related fatigue.
Montel Williams - I have MS. It doesn’t have Me
I have one of the biggest mouths on this planet, and I decided to keep using it until everyone, everywhere, knows about MS, what can be done to fight it, and a cure is found - Montel Williams.
Multiple Sclerosis: Could This Be The Cure?
Currently, there is no cure for MS. However 'the Zamboni' a new theory and possible treatment challenges the established concept of MS being an autoimmune disease.
The Artists Explaining Their Multiple Sclerosis Through Art
Artists Kirsty Stevens and Hannah Laycock tackle the knowledge gap that surrounds MS by creating art that is tangible and accessible.
This is why you shouldn’t believe that exciting new medical study
In 2009, a breakthrough: a charming Italian researcher, Dr. Paolo Zamboni, claimed to have cured his wife's MS by "unblocking" the veins in her neck. He theorized MS wasn't an autoimmune disorder but a vascular one. The research was counterintuitive, it gave people with the disease hope, and it had an appealing personal tale behind it, involving one man's quest to save his wife. It was catnip for health reporters, who hailed "liberation therapy" as a romance-fueled medical triumph. Sadly, however, Zamboni's discovery was more hype than breakthrough.
This isn’t hype: Canadian doctors just reversed severe MS using stem cells
The game changer for Molson was an experimental chemotherapy and stem cell bone marrow transplant she got in 2002 as part of a study in Canada. Molson was one of a small cohort of 24 people with MS who received the high-risk therapy. Of the 24 patients, 70 percent saw the progression of their disease halted or reversed.
Toxin From Common Foodborne Bacteria Linked With Multiple Sclerosis
A toxin produced by a common foodborne bacteria could play a role in multiple sclerosis, a new study suggests. Researchers from Weill Cornell Medical College found that the epsilon toxin, produced by certain strains of the foodborne bacteria Clostridium perfringens, targets the same myelin-producing cells that also die in multiple sclerosis, as well as other cells that play a role in inflammation in multiple sclerosis. These cells include the meningeal and retinal vascular cells.
Vitamin D Levels May Help Predict Risk Of Multiple Sclerosis
It is well known that there is a relationship between higher levels of sun exposure (sunlight is the most efficient source of Vitamin D) and lower risk of developing MS, as people who live farther from the equator have a higher incidence of MS. It is for this reason that Vitamin D is well regarded as anti- inflammatory, or boosting the immune system.
What is Multiple Sclerosis
An excellent animation about Multiple Sclerosis
Why I'm Thankful for My Diagnosis of Multiple Sclerosis
Like Clarence the Angel granting George Bailey the ability to see what life would have been like if he'd never been born, I wanted to write about how different my life would have been without my diagnosis.
Christina Applegate describes ‘tough road’ following multiple sclerosis diagnosis
“A few months ago I was diagnosed with MS. It’s been a strange journey,” wrote the 49-year-old in her tweet. “It’s been a tough road. But as we all know, the road keeps going. Unless some asshole blocks it.”
Lessons from a thriving physical therapist to a younger self just learning about multiple sclerosis
As she learned to manage her own illness in her mid-20s, Krauss was simultaneously learning how to treat her physical therapy patients, whose lives were also being reshaped by disease.
MS: four in five multiple sclerosis sufferers in UK are misdiagnosed
Poll finds more than a quarter are told incorrectly they have a trapped nerve, with 39% of people with MS waiting over a year for correct diagnosis.
Multiple Sclerosis: Hope Through Research
Although researchers have not been able to identify the cause of MS with any certainty, there has been excellent progress in other areas of MS research—especially in the development of new treatments to prevent exacerbations of the disease. New discoveries are constantly changing MS treatment options and helping to reduce MS-related disability.
Patient Voices: Multiple Sclerosis
Multiple sclerosis can be an insidious disease, affecting many parts of the body and gradually causing serious disability. What is it like to live with M.S.? Six men and women speak about their experiences.
Selma Blair: ‘Things fell into place when I was diagnosed with MS’
Hollywood actor Selma Blair talks honestly and with refreshing humour about how her life has changed, her groundbreaking documentary – and the comfort of famous friends.
The Different Types of MS, Explained
What is remarkably unpredictable, often invisible, and once you have it, it’s part of your life forever? That might sound like a Sunday-level New York Times crossword riddle, but it’s actually just a description of multiple sclerosis (MS), a disease that has wide-ranging neurological symptoms and impacts people very differently.
What causes multiple sclerosis? What we know, don’t know and suspect
There’s still a lot we don’t know about the causes, but so far the research indicates our genes and environment each have a role in driving susceptibility to MS.
‘A silent disaster unfolding’: my life with multiple sclerosis
Playing with my daughter, I noticed my fingers were numb. Then came the memory loss and clumsiness. I thought it was just age, but the doctor had bad news...
My MS Diagnosis: A Story About Living A Positive Life
Of the more than 2.3 million people worldwide who are diagnosed with multiple sclerosis, I am only one story. I am a wife, mother, daughter, daughter-in-law, sister, friend, and woman living with an incurable and unpredictable disease. And even though I am only one person, my story can add great value by educating others about what it's like to live with an autoimmune disease. One story can make a difference.
Above MS
MS ActiveSource is a place that offers information to support people living with Multiple Sclerosis. Information on MS ActiveSource is updated to provide new ideas for living well and staying active. In short, it is a tool to help you take control of your MS. Here you can use any of your MS ActiveSource tools to build a personalized homepage or connect with a mentor or support
Can Do MS
Can Do MS delivers health and wellness education programs to help families with MS thrive.
MS Coalition
The Multiple Sclerosis Coalition's mission is to increase opportunities for cooperation and provide greater opportunity to leverage the effective use of resources for the benefit of the MS community.
MS Society
We’re the MS Society – a community of people living with MS, scientists, campaigners, volunteers and fundraisers. We understand what life’s like with MS, and we support each other through the highs, lows and everything in between.
MS Trust
The MS Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services.
Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease.
MultipleSclerosis.com
Your resource for MS facts, information and motivation.
MultipleSclerosis.net
At MultipleSclerosis.net we empower patients and caregivers to take control of MS by providing a platform to learn, educate, and connect with peers and healthcare professionals.
Myelin Repair Foundation
Since 2004, the Myelin Repair Foundation has funded basic research that has led to the publication of more than 120 peer-reviewed scientific articles, the identification of more than 100 novel potential myelin repair treatment targets and the discovery of multiple new research tools—animal models and assays—that may help to accelerate research on all neurological diseases.
National Multiple Sclerosis Society
The National MS Society is a collective of passionate individuals who want to do something about MS now to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't.
Race to Erase MS
Race to Erase MS is dedicated to the treatment and ultimate cure of Multiple Sclerosis. Funding research is the core focus of the Foundation and all funds raised support our Center Without Walls program, a selected network of the nation’s top MS research centers.
Shift.ms
Shift.ms is the social network for people with multiple sclerosis. Founded by MSers, for MSers, the charity supports many thousands of recently diagnosed people across the world as they make sense of MS. It’s independent and it’s free.
Accelerated Cure Project
The Accelerated Cure Project for Multiple Sclerosis (ACP) is a patient-founded national non-profit organization dedicated to accelerating advances toward a cure for MS.
ActivisMS
The online community for people in North Carolina who want to do something about MS NOW!
All About Multiple Sclerosis
All About Multiple Sclerosis aims to provide accurate and comprehensive medical information about multiple sclerosis (MS) written in plain English by people living with the disease and its symptoms. It contains a detailed description of multiple sclerosis, a large archive of news stories about MS, an MS encyclopedia and a large links section containing hundreds of commented and rated links.
Ann Romney Center for Neurologic Diseases
More than 50 million people worldwide suffer from neurologic diseases. With so many lives at stake, the time is now to take action. The Ann Romney Center for Neurologic Diseases at Brigham and Women’s Hospital (BWH) is a collaborative global pursuit to accelerate treatments, prevention, and cures for five of the world’s most complex neurologic diseases: multiple sclerosis (MS), Alzheimer’s disease, ALS (Lou Gehrig’s disease), Parkinson’s disease, and brain tumors.
Consortium of Multiple Sclerosis Centers
The pre-eminent organization of Multiple Sclerosis health care providers improving the lives of those affected by multiple sclerosis.
Foundation of the Consortium of Multiple Sclerosis Centers
The Foundation of the CMSC is a not-for-profit organization dedicated to supporting the mission of the Consortium of Multiple Sclerosis Centers (CMSC) and its members.
MS Australia
About UsMission Statement MSA Board Patron Objectives John Studdy AwardAbout Us "MS Australia strives for a world without multiple sclerosis through quality research and for service excellence to people with multiple sclerosis and their careers."
MS Ireland
MS Ireland provides a range of services and resources to the whole MS Community, those with MS, family members, employers and Health Professionals.
Multiple Sclerosis New Zealand
We have worked since 1967 to support, educate and advocate for people with MS and their support networks. We have educated the general public, employers and health professionals about MS and actively encouraged on-going medical research to find the cause and a cure for multiple sclerosis.
Multiple Sclerosis Society of Canada
The mission of the Multiple Sclerosis Society of Canada is: To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Rocky Mountain MS Center
At the Rocky Mountain MS Center, we are passionate about solving problems and evaluating all options. Workable solutions are what we value, and we look forward to helping you find answers. So whether you are searching for education, care, support or research, you can look first to the Rocky Mountain MS Center. The answers begin here.
Multiple Sclerosis Association of America
MSAA is a national nonprofit organization whose mission is to enrich the quality of life for everyone affected by multiple sclerosis(MS).
National Institute of Neurological Disorders
An unpredictable disease of the central nervous system, multiple sclerosis (MS) can range from relatively benign to somewhat disabling to devastating, as communication between the brain and other parts of the body is disrupted. Many investigators believe MS to be an autoimmune disease -- one in which the body, through its immune system, launches a defensive attack against its own tissues.
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