CRPS is a severely disabling condition characterised by burning pain, increased sensitivity to all stimuli, and sensations of pain in response to normally non-painful stimuli including: light touch, a breeze, sound, vibration, bright lights and more.
Complex Regional Pain Syndrome “CRPS” and Reflex Sympathetic Dystrophy Syndrome “RSD” are both names used to describe the chronic neurological syndrome. The Syndrome used to go by RSD, but over the last few years, has changed names to CRPS. You’ll find literature under both names.
The key symptom is prolonged pain that may be constant and, in some people, extremely uncomfortable or severe. The pain may feel like a burning or “pins and needles” sensation, or as if someone is squeezing the affected limb. The pain may spread to include the entire arm or leg, even though the precipitating injury might have been only to a finger or toe.
I have come to realize winning isn’t just actually winning. It’s getting out the door. It’s getting to run a mile even when you don’t feel well. Winning is living with CRPS, but not letting it define your life. I may have CRPS, but it sure doesn’t have me.
We don’t know the pain you are in, but you most certainly do not know the pain we live with every second of every day. We all just need to listen more and those without chronic pain need to also understand more. We didn’t ask for this and we would give anything to not be living here.
RSDSA promotes awareness of CRPS, funds research towards more effective treatments and a cure, and supports individuals with CRPS.
Complex Regional Pain Syndrome / Reflex Sympathetic Dystrophy
support for sufferers, their families, carers and their friends...
As a patient, it’s important to be able to remember and adequately describe your pain to your healthcare provider. Pain is a complex sensation that can constantly change with varying intensities, textures, locations, and patterns of spread. Keeping track of all of the complex changes that can occur from day-to-day is a daunting task! This is especially true for individuals who suffer from a severe type of chronic pain called Complex Regional Pain Syndrome (CRPS) — aka, Reflex Sympathetic Dystrophy (RSD).
...I was diagnosed with a disease called CRPS/RSD and it changed my life. I created this website for others that suffer from the same condition, or who live with chronic pain. My goal is to raise awareness and the educate others so that we can find a cure for this disease.
Why we decided to call this organization “RSD/CRPS Doesn’t Own ME” is because, yes, we have RSD/CRPS but that doesn’t mean that we are less than amazing people. We have goals and we have dreams and no matter what people will try to tell us, we are worth more than gold or silver.
Launched in 1995 our goals are not only to ease the suffering and confusion of patients and their loved ones regarding CRPS, but also to educate all of the above on this extremely difficult to understand disease. We do that by sharing information through our website, via mail, phone, and email, as well as through fundraisers and awareness events held all across the United States.
Thought it was about time NZ had its own website on CRPS/RSD so welcome to the first CRPS-NZ website, here we will discuss all things about CRPS/RSD .
Complex regional pain syndrome typically develops after an injury, surgery, stroke or heart attack, but the pain is out of proportion to the severity of the initial injury.
Complex regional pain syndrome (CRPS), also called reflex sympathetic dystrophy syndrome, is a chronic pain condition in which high levels of nerve impulses are sent to an affected site. Experts believe that CRPS occurs as a result of dysfunction in the central or peripheral nervous systems.
CRPS is most common in people aged 20-35. The syndrome also can occur in children; it affects women more often than men.
Many cases of CRPS gradually improve to some degree over time, or get completely better. However, some cases of CRPS never go away, and the affected person will experience pain for many years.
The symptoms of CRPS vary in severity and how long they last. Symptoms usually begin within one month after an injury or after having to stay in bed for a long time. The main symptom is pain in the arm or leg, which is often burning, sharp, stabbing or stinging. There may also be tingling and numbness.