Seven braces, six shoe lifts, five sets of crutches, four reclining wheelchairs (sizes XS, S, M, L) three walkers, two canes, and one wheelchair ramp – this represents six years of surgeries and dealing with Perthes for more than nine years (2.5 years were misdiagnosed)...For all the new and current warriors battling Perthes, here are some tips...
Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteochondritis) that makes it painful to walk.
Mum of two perthes kids, having also had perthes as a child, I am interested in helping others to avoid the pitfalls and find the joy that does come with seeing your child grow and mature, with an empathy and maturity that only a journey like perthes can bring.
My name is Jodie, my son Brady was diagnosed with Perthes disease a few months ago. We are wanting to get a local support group started & spread awareness
There are successes and normal lives to be had after Perthes - though during the long and tedious process (years!) and the uncertainty that comes with it, its easy to question if things will ever be normal again.
Donavan's control battle with Perthes disease (LCPD).
One boy's journey to recovery.
Dalton was diagnosed with Legg Calve Perthes Disease (LCPD) on 12/27/08 at age 4.
What a wild ride it is...
Legg-Calvé-Perthes disease is a rare disease of the hip that afflicts approximately 1 in 1200 children. Of those children, only about one in four are girls.