Legg Calve Perthes

Never stop advocating for your children and their critical needs - Meg Holt

Legg Calve Perthes

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Remember Where You Started

For all the new and current warriors battling Perthes, here are some tips:

Always follow your instinct. It will not lead you in the wrong direction. If it feels right, then God is leading you down the correct path.
Ask for your medical records, and if they do not give them to you, go to the person higher in the chain of command. Those are YOUR records and you can learn a lot that your physician will never tell you in person (like a cut was made too deep and caused your son’s hip to fracture – not to mention the bone was too soft).
Do not attempt a head splitting osteotomy until the bone is hard enough to handle the…

Resources

Seven braces, six shoe lifts, five sets of crutches, four reclining wheelchairs (sizes XS, S, M, L) three walkers, two canes, and one wheelchair ramp – this represents six years of surgeries and dealing with Perthes for more than nine years (2.5 years were misdiagnosed)...For all the new and current warriors battling Perthes, here are some tips...

Perthes Kids Foundation

Perthes Kids Foundation was established to help raise global awareness for children and families surviving Legg-Calve-Perthes Disease, a degenerative hip bone disorder (osteochondritis) that makes it painful to walk.

Perthes NZ

Mum of two perthes kids, having also had perthes as a child, I am interested in helping others to avoid the pitfalls and find the joy that does come with seeing your child grow and mature, with an empathy and maturity that only a journey like perthes can bring.