Rare Conditions

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Rare Conditions

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The Rare Disease Search Engine That Outperforms Google

Rare diseases are inherently hard to diagnose. According to the European Organisation for Rare Disease, 25 per cent of diagnoses are delayed by between 5 and 30 years.

So it’s no surprise that medics are looking for more effective ways to do the job. An increasingly common aid in this process is the search engine, typically Google.  This forms part of an iterative process in which a medic enter symptoms into a search engine, examines lists of potential diseases and then looks for further evidence of symptoms in the patient.

The problem, of course, is that  common-or-garden search engines are not optimised for this process. Google, for example, considers pages important if they…

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Last Updated : Thursday, April 16, 2020