Young Stroke
Stroke occurs throughout childhood, from birth through 18 years of age, and more commonly than people think - Dr. Michael Rivkin
image by: Stroke Association
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When A Baby Has A Stroke: A Personal Story From the Executive Director of International Alliance for Pediatric Stroke
“Your baby has a brain abnormality.”
Those were the chilling words my husband and I heard when I was 29 weeks pregnant with our third child. We were told by the perinatologist that our unborn baby’s brain ventricles were enlarged and she would probably have hydrocephalus, a condition that results when spinal fluid cannot leave the brain and can lead to increased pressure within the skull. He couldn’t tell us much more than that. We prepared for the worst and hoped for the best over the rest of my pregnancy.
Our daughter, Michelle, was born just shy of 36 weeks, and the neurosurgeon was at the delivery to confirm that she did, indeed, have hydrocephalus. Three days…
Resources
My Little Boy Was Just 7 Years Old When He Had a Catastrophic Stroke
The risk of stroke from birth through age 18 is about 11 in 100,000 children per year.
Stroke in kids: What’s different?
Every May, we recognize National Stroke Awareness Month to honor everyone who has experienced a stroke — and to raise awareness of this disease. That awareness is especially important for pediatric stroke, which is more common than you might imagine.
Real Mom: My Baby Had a Stroke
Mike and I were dumbfounded. A baby can have a stroke? One of my first thoughts was whether I caused this. But most of all I wondered what this meant for Luc.
The Reality of Pediatric Stroke
Contrary to what most people believe, stroke is a potential risk for everyone, including children and teens. Stroke occurs at the highest rate in the first year of life, and is most common between the 28th week of pregnancy up until one month after birth.
When A Baby Has A Stroke: A Personal Story From the Executive Director of International Alliance for Pediatric Stroke
We were fortunate that Michelle’s stroke was diagnosed early so she could start therapy at a young age.
International Alliance for Pediatric Stroke
A stroke can happen to anyone at any age, including babies, children, teens, and even before birth. Unfortunately, there is very little information, support, and research for this population. The International Alliance for Pediatric Stroke (IAPS) was created to bring together global pediatric stroke communities, uniting in a common effort to advance knowledge, awareness and research for these children.
Pediatric Stroke Network
The goal of this site is to bring together friends and families of infant or childhood stroke survivors from around the world. Childhood stroke is steadily on the rise, finding other parents to connect with can often be difficult especially when you are looking to find parents dealing with the same type of stroke or after effects and disabilities.
Pediatric Stroke Warriors
Pediatric Stroke Warriors is committed to serving the needs of children, their families and the medical professionals involved in their care. Family founded in 2015, Pediatric Stroke Warriors has grown into the largest childhood stroke related nonprofit based out of the Pacific Northwest Region serving both local and national communities. We are dedicated to a mission of building awareness for pediatric stroke among general and medical communities alike, and hope and support to all impacted children and their families.
Young Stroke Media
“The American public is still very locked on stroke being an [affliction] of the elderly. But we are an emerging population… and we really need to be recognized.”
YoungStroke
To advocate for the needs of those who experienced their first stroke before age 65. Young Stroke, Inc. accomplishes this mission through research and education initiatives.
Children's Hemiplegia and Stroke Association
Welcome to the Children's Hemiplegia and Stroke Association, a non-profit organization, offering support and information to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy.
HemiHelp
HemiHelp is a membership organisation supporting children and young people with hemiplegia, and their families.
National Stroke Association
National Stroke Association is the only national organization in the United States that focuses 100% of its efforts on stroke. National Stroke Association achieves its mission to lower the incidence and impact of stroke by developing compelling community outreach programs, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke.
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